Literature DB >> 30348013

History and Perspective on DIY Closed Looping.

Dana Lewis1.   

Abstract

People with diabetes have been experimenting and self-modifying diabetes devices and technologies for many decades, in order to achieve the best possible quality of life and improving their long-term outcomes. There are now hundreds of individuals using DIY closed loop systems globally. They work similarly to commercial systems at a basic level, automatically adjusting and controlling insulin dosing, but are different in terms of transparency, access, customization, and usability. The potential downsides to DIY closed looping include varying responses from individual HCPs, who may be concerned about their own liability. However, initial outcomes from this self-selected community (including adult and pediatric populations globally) have been positive. There have now been several studies documenting improvements in A1c, time in range, and other outcomes such as quality-of-life benefits. More studies on quality-of-life improvements and more collaboration between companies and the community are recommended.

Entities:  

Keywords:  #WeAreNotWaiting; APS; OpenAPS; artificial pancreas; automated insulin delivery system; closed loop

Mesh:

Year:  2018        PMID: 30348013      PMCID: PMC6610599          DOI: 10.1177/1932296818808307

Source DB:  PubMed          Journal:  J Diabetes Sci Technol        ISSN: 1932-2968


  8 in total

1.  MSJAMA: the problem with compliance in diabetes.

Authors:  M M Funnell; R M Anderson
Journal:  JAMA       Date:  2000-10-04       Impact factor: 56.272

2.  Open Source Closed-Loop Insulin Delivery Systems: A Clash of Cultures or Merging of Diverse Approaches?

Authors:  Katharine D Barnard; Ralph Ziegler; David C Klonoff; Katarina Braune; Bettina Petersen; Til Rendschmidt; Daniel Finan; Aaron Kowalski; Lutz Heinemann
Journal:  J Diabetes Sci Technol       Date:  2018-08-06

3.  Twitter Analysis of #OpenAPS DIY Artificial Pancreas Technology Use Suggests Improved A1C and Quality of Life.

Authors:  Michelle L Litchman; Dana Lewis; Lesly A Kelly; Perry M Gee
Journal:  J Diabetes Sci Technol       Date:  2018-09-10

4.  Real-World Use of Open Source Artificial Pancreas Systems.

Authors:  Dana Lewis; Scott Leibrand
Journal:  J Diabetes Sci Technol       Date:  2016-11-01

5.  Blood glucose self-monitoring by diabetic patients: refinements of procedural technique.

Authors:  R K Bernstein
Journal:  Diabetes Care       Date:  1979 Mar-Apr       Impact factor: 19.112

6.  Setting Expectations for Successful Artificial Pancreas/Hybrid Closed Loop/Automated Insulin Delivery Adoption.

Authors:  Dana Lewis
Journal:  J Diabetes Sci Technol       Date:  2017-09-18

7.  Real-World Use and Self-Reported Health Outcomes of a Patient-Designed Do-it-Yourself Mobile Technology System for Diabetes: Lessons for Mobile Health.

Authors:  Joyce M Lee; Mark W Newman; Achamyeleh Gebremariam; Preciosa Choi; Dana Lewis; Weston Nordgren; John Costik; James Wedding; Benjamin West; Nancy Benovich Gilby; Christopher Hannemann; Josh Pasek; Ashley Garrity; Emily Hirschfeld
Journal:  Diabetes Technol Ther       Date:  2017-02-28       Impact factor: 6.118

8.  Open-source hardware for medical devices.

Authors:  Gerrit Niezen; Parisa Eslambolchilar; Harold Thimbleby
Journal:  BMJ Innov       Date:  2016-03-14
  8 in total
  34 in total

1.  A Review of Continuous Glucose Monitoring Data Interpretation in the Age of Automated Insulin Delivery.

Authors:  Laya Ekhlaspour; Ideen Tabatabai; Bruce Buckingham
Journal:  J Diabetes Sci Technol       Date:  2019-05-26

2.  A Clinical Guide to Advanced Diabetes Devices and Closed-Loop Systems Using the CARES Paradigm.

Authors:  Laurel H Messer; Cari Berget; Gregory P Forlenza
Journal:  Diabetes Technol Ther       Date:  2019-05-29       Impact factor: 6.118

3.  Realizing Present and Future Promise of DIY Biology and Medicine through a Trust Architecture.

Authors:  Lisa M Rasmussen; Christi J Guerrini; Todd Kuiken; Camille Nebeker; Alex Pearlman; Sarah B Ware; Anna Wexler; Patricia J Zettler
Journal:  Hastings Cent Rep       Date:  2020-11       Impact factor: 2.683

4.  A Clinical Overview of Insulin Pump Therapy for the Management of Diabetes: Past, Present, and Future of Intensive Therapy.

Authors:  Cari Berget; Laurel H Messer; Gregory P Forlenza
Journal:  Diabetes Spectr       Date:  2019-08

5.  Peer Mentoring in the Do-it-Yourself Artificial Pancreas System Community.

Authors:  Hamish Crocket
Journal:  J Diabetes Sci Technol       Date:  2019-10-24

6.  Do-It-Yourself Artificial Pancreas Systems: A Review of the Emerging Evidence and Insights for Healthcare Professionals.

Authors:  Peter Jennings; Sufyan Hussain
Journal:  J Diabetes Sci Technol       Date:  2019-12-17

7.  Patient-Driven Diabetes Technologies: Sentiment and Personas of the #WeAreNotWaiting and #OpenAPS Movements.

Authors:  Michelle L Litchman; Heather R Walker; Caroline Fitzgerald; Mariana Gomez Hoyos; Dana Lewis; Perry M Gee
Journal:  J Diabetes Sci Technol       Date:  2020-07-04

8.  Do-It-Yourself Diabetes Management: Perspectives of a Patient, a Physician, and an Ethicist.

Authors:  Karen Dimentstein; Jay M Sosenko; Kenneth W Goodman
Journal:  Clin Diabetes       Date:  2022-01

9.  Evolution of Do-It-Yourself Remote Monitoring Technology for Type 1 Diabetes.

Authors:  Michelle Ng; Emily Borst; Ashley Garrity; Emily Hirschfeld; Joyce Lee
Journal:  J Diabetes Sci Technol       Date:  2020-01-02

10.  Youth and parent preferences for an ideal AP system: It is all about reducing burden.

Authors:  Persis V Commissariat; Lindsay C Roethke; Jennifer L Finnegan; Zijing Guo; Lisa K Volkening; Deborah A Butler; Eyal Dassau; Stuart A Weinzimer; Lori M Laffel
Journal:  Pediatr Diabetes       Date:  2021-08-09       Impact factor: 4.866

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