Literature DB >> 33315254

Realizing Present and Future Promise of DIY Biology and Medicine through a Trust Architecture.

Lisa M Rasmussen, Christi J Guerrini, Todd Kuiken, Camille Nebeker, Alex Pearlman, Sarah B Ware, Anna Wexler, Patricia J Zettler.   

Abstract

The speed and scale of the COVID-19 pandemic has highlighted the limits of current health systems and the potential promise of non-establishment research such as "DIY" research. We consider one example of how DIY research is responding to the pandemic, discuss the challenges faced by DIY research more generally, and suggest that a "trust architecture" should be developed now to contribute to successful future DIY efforts.
© 2020 The Hastings Center.

Entities:  

Keywords:  Covid-19; DIY bio; DIY biology; DIY medicine; biohacking; citizen science; community bio; pandemic; participant-led research; personal science; research ethics; trust architecture

Mesh：

Year:  2020        PMID： 33315254      PMCID： PMC8114871          DOI： 10.1002/hast.1194

Source DB:  PubMed          Journal:  Hastings Cent Rep        ISSN： 0093-0334            Impact factor:   2.683


  14 in total

1.  The practices of do-it-yourself brain stimulation: implications for ethical considerations and regulatory proposals.

Authors:  Anna Wexler
Journal:  J Med Ethics       Date:  2015-08-31       Impact factor: 2.903

2.  A Patient-Designed Do-It-Yourself Mobile Technology System for Diabetes: Promise and Challenges for a New Era in Medicine.

Authors:  Joyce M Lee; Emily Hirschfeld; James Wedding
Journal:  JAMA       Date:  2016-04-12       Impact factor: 56.272

3.  Unregulated Health Research Using Mobile Devices: Ethical Considerations and Policy Recommendations.

Authors:  Mark A Rothstein; John T Wilbanks; Laura M Beskow; Kathleen M Brelsford; Kyle B Brothers; Megan Doerr; Barbara J Evans; Catherine M Hammack-Aviran; Michelle L McGowan; Stacey A Tovino
Journal:  J Law Med Ethics       Date:  2020-03       Impact factor: 1.718

4.  Against pandemic research exceptionalism.

Authors:  Alex John London; Jonathan Kimmelman
Journal:  Science       Date:  2020-04-23       Impact factor: 47.728

5.  mHealth Research Applied to Regulated and Unregulated Behavioral Health Sciences.

Authors:  Camille Nebeker
Journal:  J Law Med Ethics       Date:  2020-03       Impact factor: 1.718

6.  Self-experimentation, ethics, and regulation of vaccines.

Authors:  Christi J Guerrini; Jacob S Sherkow; Michelle N Meyer; Patricia J Zettler
Journal:  Science       Date:  2020-09-17       Impact factor: 47.728

7.  Regulating genetic biohacking.

Authors:  Patricia J Zettler; Christi J Guerrini; Jacob S Sherkow
Journal:  Science       Date:  2019-07-05       Impact factor: 47.728

8.  Nonprescribed hormone use and self-performed surgeries: "do-it-yourself" transitions in transgender communities in Ontario, Canada.

Authors:  Nooshin Khobzi Rotondi; Greta R Bauer; Kyle Scanlon; Matthias Kaay; Robb Travers; Anna Travers
Journal:  Am J Public Health       Date:  2013-08-15       Impact factor: 9.308

9.  The Social Context of "Do-It-Yourself" Brain Stimulation: Neurohackers, Biohackers, and Lifehackers.

Authors:  Anna Wexler
Journal:  Front Hum Neurosci       Date:  2017-05-10       Impact factor: 3.169

10.  Approaches to governance of participant-led research: a qualitative case study.

Authors:  Azure Dominique Grant; Gary Isaac Wolf; Camille Nebeker
Journal:  BMJ Open       Date:  2019-04-02       Impact factor: 2.692
View more

北京卡尤迪生物科技股份有限公司 © 2022-2023.