| Literature DB >> 30214921 |
Mary Beth Mercer1, Susannah L Rose1, Cassandra Talerico2, Brian J Wells3, Mahesh Manne4, Nirav Vakharia4, Stacey Jolly4, Alex Milinovich5, Janine Bauman5, Michael W Kattan5.
Abstract
INTRODUCTION: A risk calculator paired with a personalized decision aid (RC&DA) may foster shared decision-making in primary care. We assessed the feasibility of using an RC&DA with patients in a primary care outpatient clinic and patients' experiences regarding communication and decision-making.Entities:
Keywords: clinical decision support; decision aid; risk calculator; shared decision-making
Year: 2017 PMID: 30214921 PMCID: PMC6134541 DOI: 10.1177/2374373517746177
Source DB: PubMed Journal: J Patient Exp ISSN: 2374-3735
Example of an icon array generated when data from the atherosclerotic cardiovascular disease (ASCVD) risk calculator are entered. Specifically, colored icons show the frequency of those at risk of an ASCVD event (coronary death or nonfatal myocardial infarction or fatal or nonfatal stroke in the next 10 years), and uncolored icons show the frequency of those not at risk of an ASCVD event. Image created by Iconarray.com. Risk Science Center and Center for Bioethics and Social Sciences in Medicine, University of Michigan. Accessed September 02, 2016.
Description of 15 Patients and Their Clinical Appointments.
| Patient Demographic Information | Mean (SD, Range) or n (%) |
|---|---|
| Age | 54.4 (8.6, 40-69) |
| Sex | |
| Male | 8 (53%) |
| Female | 7 (47%) |
| Ethnicity | |
| Not Hispanic | 15 (100%) |
| Race | |
| White | 6 (40%) |
| Black or African American | 9 (60%) |
| Tobacco user | |
| Yes | 2 (13%) |
| Never | 5 (33%) |
| Quit | 7 (47%) |
| Missing | 1 (7%) |
| Appointment information | |
| Type of appointment | |
| Follow-up | 12 (80%) |
| Physical | 3 (20%) |
| Relationship with physician | |
| Established | 11 (73%) |
| New | 4 (27%) |
| Appointment duration (minutes) | 33.7 (19.6, 14-80) |
Behaviors Observed and Recorded Using the Observation Checklist During Clinical Appointments for 15 Patients.
| Observed Behaviors | Yes, n (%) |
|---|---|
| Physician referred to the paper RC&DA | 15 (100%) |
| Physician gave patient RC&DA | 12 (80%) |
| Physician asked patient to read RC&DAa | 5 (36%) |
| Patient appeared to read RC&DA | 15 (100%) |
| Patient referred to RC&DA during appointment | 11 (73%) |
| Patient took the RC&DA at end of appointment | 11 (73%) |
| During presentation of RC&DA, physician was positioned: Across from patient | 11 (73%) |
| Beside patient | 4 (27%) |
aN = 14.
Patient Responses (N = 15) to the Control Preferences Scale.
| Item | N (%) |
|---|---|
| I prefer to: | |
| Make the final selection about which treatment I will receive | 1 (7%) |
| Make the final selection after seriously considering my doctor’s opinion | 4 (27%) |
| Have my doctor and I share responsibility for deciding what treatment is best | 8 (53%) |
| Have my doctor make the final decision but consider my opinion | 2 (13%) |
| Leave all decisions regarding my treatment to my doctor | 0 |
Patient Responses (N = 15) to the Decisional Conflict Scale.
| Item | Strongly Agree | Agree | Neither Agree nor Disagree | Disagree | Strongly Disagree |
|---|---|---|---|---|---|
| I know which options are available to me | 7 | 7 | 0 | 1 | 0 |
| I know the benefits of each option | 6 | 7 | 1 | 1 | 0 |
| I know the risks and side effects of each optiona | 5 | 5 | 3 | 1 | 0 |
| I am clear about which benefits matter most to mea | 10 | 3 | 1 | 0 | 0 |
| I am clear about which risks and side effects matter most to mea | 8 | 6 | 0 | 0 | 0 |
| I am clear about which is more important to me (the benefits or risks) | 10 | 4 | 1 | 0 | 0 |
| I have enough support from others to make a choice | 8 | 6 | 1 | 0 | 0 |
| I am choosing without pressure from others | 11 | 4 | 0 | 0 | 0 |
| I have enough advice to make a choice | 10 | 4 | 0 | 1 | 0 |
| I am clear about the best choice for mea | 9 | 4 | 0 | 1 | 0 |
| I feel sure about what to choose | 8 | 7 | 0 | 0 | 0 |
| This decision is easy for me to make | 7 | 7 | 0 | 1 | 0 |
| I feel I have made an informed choice | 11 | 4 | 0 | 0 | 0 |
| My decision shows what is important to me | 9 | 5 | 1 | 0 | 0 |
| I expect to stick with my decision | 8 | 7 | 0 | 0 | 0 |
| I am satisfied with my decision | 8 | 7 | 0 | 0 | 0 |
aResponse was missing for 1 patient.
Patient Perceptions (N = 15) of the RC&DA.
| Perception | n (%) | Illustrative Quote |
|---|---|---|
| RC&DA was easy to understand | 15 (100%) |
|
| Qualities that made RC&DA understandable | “It was just easier I guess to interpret and internalize when you see the data | |
| Visual presentation of information | 9 (60%) | presented in a visual graphic way.” (DA05) “I think it gives you a broader scope on expectations of what can happen and what you can prevent from happening by having the visual aid.” (DA10) |
| Physician’s explanation of DA | 9 (60%) | |
| Side by side comparison of risk | 8 (53%) | |
| Shaded figures | 2 (13%) | |
| Utility | “I think it helps him [physician] to prove the point…I think it just helps you see what your goals need to be.” (DA04) “Because if I am able to actually see what he is talking about, he kind of helped me understand more and make me want to do what I need to do. Because it is like he is showing me everything and what can happen if I don’t do certain things. It will make me want to work harder to do the right thing.” (DA11) | |
| Knowledge to modify risk | 12 (80%) | |
| Impacted current decision-making | 12 (80%) | |
| Could impact future decision-making | 10 (67%) | |
| Improved understanding of health | 10 (67%) | |
| Reinforced current healthy behaviors | 6 (40%) | |
| Recommend decision aid to family and friends | 13 (87%) | “I: Would you recommend this to a friend or family member? P: “Yes, sometimes seeing it is much better than hearing it.” (DA03) |
Abbreviations: DA, decision aid; RC&DA, risk calculator and decision aid.