| Literature DB >> 30120210 |
Jeannine M Salamone1, Wanda Lucas1, Shelley B Brundage1, Jamie N Holloway1, Sherri M Stahl1, Nora E Carbine1, Margery London1, Naomi Greenwood1, Rosa Goyes1, Deborah Charles Chisholm1, Erin Price1, Roberta Carlin1, Susan Winarsky1, Kirsten B Baker1, Julia Maues1, Ayesha N Shajahan-Haq2.
Abstract
Advocates bring unique and important viewpoints to the cancer research process, ensuring that scientific and medical advances are patient-centered and relevant. In this article, we discuss the benefits of engaging advocates in cancer research and underscore ways in which both the scientific and patient communities can facilitate this mutually beneficial collaboration. We discuss how to establish and nurture successful scientist-advocate relationships throughout the research process. We review opportunities that are available to advocates who want to obtain training in the evaluation of cancer research. We also suggest practical solutions that can strengthen communication between scientists and advocates, such as introducing scientist-advocate interactions at the trainee level. Finally, we highlight the essential role social media can play in disseminating patient-supported cancer research findings to the patient community and in raising awareness of the importance of promoting cancer research. Our perspective offers a model that Georgetown Breast Cancer Advocates have found effective and which could be one option for those interested in developing productive, successful, and sustainable collaborations between advocates and scientists in cancer research. Cancer Res; 78(20); 5723-8. ©2018 AACR. ©2018 American Association for Cancer Research.Entities:
Mesh:
Year: 2018 PMID: 30120210 PMCID: PMC6548189 DOI: 10.1158/0008-5472.CAN-18-1600
Source DB: PubMed Journal: Cancer Res ISSN: 0008-5472 Impact factor: 12.701