Literature DB >> 26433549

Involving Advocates in Cancer Research.

Jane Perlmutter1, Nancy Roach2, Mary Lou Smith3.   

Abstract

Advocates can play an important role in cancer research. In 2010, the National Cancer Institute (NCI) Advocate in Research Working Group (ARWG) defined a "research advocate" as an individual who brings and can convey a nonscientific viewpoint to the research process and can communicate a collective patient perspective through knowledge of multiple disease experiences. Experiences cited in this review are related to publically funded research. They, exemplify challenges and successes of advocate engagement and involvement in the cancer research process.
Copyright © 2015 Elsevier Inc. All rights reserved.

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Year:  2015        PMID： 26433549     DOI： 10.1053/j.seminoncol.2015.07.008

Source DB:  PubMed          Journal:  Semin Oncol        ISSN： 0093-7754            Impact factor:   4.929


  7 in total

1.  Connecting Students with Patients and Survivors to Enhance Cancer Research Training.

Authors:  Robert N Riter; Robert S Weiss
Journal:  Cancer Res       Date:  2019-07-31       Impact factor: 12.701

Review 2.  A New Framework for Patient Engagement in Cancer Clinical Trials Cooperative Group Studies.

Authors:  Patricia A Deverka; Rick Bangs; Karma Kreizenbeck; Deborah M Delaney; Dawn L Hershman; Charles D Blanke; Scott D Ramsey
Journal:  J Natl Cancer Inst       Date:  2018-06-01       Impact factor: 13.506

Review 3.  Promoting Scientist-Advocate Collaborations in Cancer Research: Why and How.

Authors:  Jeannine M Salamone; Wanda Lucas; Shelley B Brundage; Jamie N Holloway; Sherri M Stahl; Nora E Carbine; Margery London; Naomi Greenwood; Rosa Goyes; Deborah Charles Chisholm; Erin Price; Roberta Carlin; Susan Winarsky; Kirsten B Baker; Julia Maues; Ayesha N Shajahan-Haq
Journal:  Cancer Res       Date:  2018-08-17       Impact factor: 12.701

4.  Stakeholder views on participant selection for first-in-human trials in cancer nanomedicine.

Authors:  P Satalkar; B S Elger; D M Shaw
Journal:  Curr Oncol       Date:  2016-12-21       Impact factor: 3.677

Review 5.  Patient stakeholder engagement in research: A narrative review to describe foundational principles and best practice activities.

Authors:  James D Harrison; Andrew D Auerbach; Wendy Anderson; Maureen Fagan; Martha Carnie; Catherine Hanson; Jim Banta; Gina Symczak; Edmondo Robinson; Jeffrey Schnipper; Celene Wong; Rachel Weiss
Journal:  Health Expect       Date:  2019-02-13       Impact factor: 3.377

6.  Barriers to Participation in Therapeutic Clinical Trials as Perceived by Community Oncologists.

Authors:  Andrew R Wong; Virginia Sun; Kevin George; Jennifer Liu; Simran Padam; Brandon A Chen; Thomas George; Arya Amini; Daneng Li; Mina S Sedrak
Journal:  JCO Oncol Pract       Date:  2020-04-02

7.  Cancer Informatics for Cancer Centers: Scientific Drivers for Informatics, Data Science, and Care in Pediatric, Adolescent, and Young Adult Cancer.

Authors:  Anthony R Kerlavage; Anne C Kirchhoff; Jaime M Guidry Auvil; Norman E Sharpless; Kara L Davis; Karlyne Reilly; Gregory Reaman; Lynne Penberthy; Dennis Deapen; Amie Hwang; Eric B Durbin; Sara L Gallotto; Richard Aplenc; Samuel L Volchenboum; Allison P Heath; Bruce J Aronow; Jinghui Zhang; Olena Vaske; Todd A Alonzo; Paul C Nathan; Jenny N Poynter; Greg Armstrong; Erin E Hahn; Karen J Wernli; Casey Greene; Jack DiGiovanna; Adam C Resnick; Eve R Shalley; Sorena Nadaf; Warren A Kibbe
Journal:  JCO Clin Cancer Inform       Date:  2021-08
  7 in total

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