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Literature DB >> 26305757

Linking Broad Consent to Biobank Governance: Support From a Deliberative Public Engagement in California.

Sarah B Garrett¹, Daniel Dohan, Barbara A Koenig.

Abstract

Entities: Disease Species

Mesh：

Year: 2015 PMID： 26305757 PMCID： PMC5234696 DOI： 10.1080/15265161.2015.1062177

Source DB: PubMed Journal: Am J Bioeth ISSN： 1526-5161 Impact factor: 11.229

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5 in total

1. From consent to institutions: designing adaptive governance for genomic biobanks.

Authors: Kieran C O'Doherty; Michael M Burgess; Kelly Edwards; Richard P Gallagher; Alice K Hawkins; Jane Kaye; Veronica McCaffrey; David E Winickoff
Journal: Soc Sci Med Date: 2011-07-02 Impact factor: 4.634

2. Effectiveness of public deliberation methods for gathering input on issues in healthcare: Results from a randomized trial.

Authors: Kristin L Carman; Coretta Mallery; Maureen Maurer; Grace Wang; Steve Garfinkel; Manshu Yang; Dierdre Gilmore; Amy Windham; Marjorie Ginsburg; Shoshanna Sofaer; Marthe Gold; Ela Pathak-Sen; Todd Davies; Joanna Siegel; Rikki Mangrum; Jessica Fernandez; Jennifer Richmond; James Fishkin; Alice Siu Chao
Journal: Soc Sci Med Date: 2015-03-14 Impact factor: 4.634

3. EngageUC: Developing an Efficient and Ethical Approach to Biobanking Research at the University of California.

Authors: Sarah B Garrett; Barbara A Koenig; Arleen Brown; Jen R Hult; Elizabeth A Boyd; Sarah Dry; Daniel Dohan
Journal: Clin Transl Sci Date: 2015-01-10 Impact factor: 4.689

4. The Mayo Clinic Biobank: a building block for individualized medicine.

Authors: Janet E Olson; Euijung Ryu; Kiley J Johnson; Barbara A Koenig; Karen J Maschke; Jody A Morrisette; Mark Liebow; Paul Y Takahashi; Zachary S Fredericksen; Ruchi G Sharma; Kari S Anderson; Matthew A Hathcock; Jason A Carnahan; Jyotishman Pathak; Noralane M Lindor; Timothy J Beebe; Stephen N Thibodeau; James R Cerhan
Journal: Mayo Clin Proc Date: 2013-09 Impact factor: 7.616

5. Community engagement for big epidemiology: deliberative democracy as a tool.

Authors: Rebekah E McWhirter; Christine R Critchley; Dianne Nicol; Don Chalmers; Tess Whitton; Margaret Otlowski; Michael M Burgess; Joanne L Dickinson
Journal: J Pers Med Date: 2014-11-20

5 in total

7 in total

1. Effect of deliberation on the public's attitudes toward consent policies for biobank research.

Authors: Tom Tomlinson; Raymond G De Vries; H Myra Kim; Linda Gordon; Kerry A Ryan; Chris D Krenz; Scott Jewell; Scott Y H Kim
Journal: Eur J Hum Genet Date: 2018-01-18 Impact factor: 4.246

2. Integration of stakeholder engagement from development to dissemination in genomic medicine research: Approaches and outcomes from the CSER Consortium.

Authors: Julianne M O'Daniel; Sara Ackerman; Lauren R Desrosiers; Shannon Rego; Sara J Knight; Lonna Mollison; Grace Byfield; Katherine P Anderson; Maria I Danila; Carol R Horowitz; Galen Joseph; Grace Lamoure; Nangel M Lindberg; Carmit K McMullen; Kathleen F Mittendorf; Michelle A Ramos; Mimsie Robinson; Catherine Sillari; Ebony B Madden
Journal: Genet Med Date: 2022-02-25 Impact factor: 8.864

3. Health Research with Big Data: Time for Systemic Oversight.

Authors: Effy Vayena; Alessandro Blasimme
Journal: J Law Med Ethics Date: 2018-03-27 Impact factor: 1.718

4. Researchers' Perspectives on Informed Consent and Ethical Review of Biobank Research in South Africa: A Cross-Sectional Study.

Authors: Erisa Mwaka; Lyn Horn
Journal: J Empir Res Hum Res Ethics Date: 2019-08-05 Impact factor: 1.742