Literature DB >> 33855172

Predictive Analytics and the Return of "Research" Information to Participants.

Shengzhi Wang1, Ellen E Lee2,3, Benjamin Zywicki2,3, Ho-Cheol Kim4, Dilip Jeste2,3,5, Camille Nebeker3,6.   

Abstract

The World Health Organization (WHO) estimates older adults aged 60+ will double by 2050 with 80% living in low to moderate income countries. As remote research studies supported by digital devices increase separation between researchers and participants, it is important to maintain participant trust. Research participants have expressed an interest in accessing both group and individual level results, which are not readily available. To bridge this gap, we engaged residents of a local continuing care senior housing community (CCSHC) to co-design documents used to convey information about study results. The process informed the refinement of informational materials for communicating scientific research that the CCSHC community considers accessible and meaningful.

Entities:  

Keywords:  Digital health; Older adults; Participant engagement; Return of research results

Year:  2020        PMID: 33855172      PMCID: PMC8040747          DOI: 10.1007/978-3-030-51057-2_20

Source DB:  PubMed          Journal:  Appl Hum Factors Ergon Conf


  14 in total

1.  Ethics. Incidental findings in brain imaging research.

Authors:  Judy Illes; Matthew P Kirschen; Emmeline Edwards; L R Stanford; Peter Bandettini; Mildred K Cho; Paul J Ford; Gary H Glover; Jennifer Kulynych; Ruth Macklin; Daniel B Michael; Susan M Wolf
Journal:  Science       Date:  2006-02-10       Impact factor: 47.728

2.  A validation study of Fitbit Charge 2™ compared with polysomnography in adults.

Authors:  Massimiliano de Zambotti; Aimee Goldstone; Stephanie Claudatos; Ian M Colrain; Fiona C Baker
Journal:  Chronobiol Int       Date:  2017-12-13       Impact factor: 2.877

3.  Study of Independent Living Residents of a Continuing Care Senior Housing Community: Sociodemographic and Clinical Associations of Cognitive, Physical, and Mental Health.

Authors:  Dilip V Jeste; Danielle Glorioso; Ellen E Lee; Rebecca Daly; Sarah Graham; Jinyuan Liu; Alejandra Morlett Paredes; Camille Nebeker; Xin M Tu; Elizabeth W Twamley; Ryan Van Patten; Yasunori Yamada; Colin Depp; Ho-Cheol Kim
Journal:  Am J Geriatr Psychiatry       Date:  2019-04-11       Impact factor: 4.105

4.  Point-counterpoint. Ethics and genomic incidental findings.

Authors:  Amy L McGuire; Steven Joffe; Barbara A Koenig; Barbara B Biesecker; Laurence B McCullough; Jennifer S Blumenthal-Barby; Timothy Caulfield; Sharon F Terry; Robert C Green
Journal:  Science       Date:  2013-05-16       Impact factor: 47.728

5.  Return of Value in the New Era of Biomedical Research-One Size Will Not Fit All.

Authors:  Dmitry Khodyakov; Alexandra Mendoza-Graf; Sandra Berry; Camille Nebeker; Elizabeth Bromley
Journal:  AJOB Empir Bioeth       Date:  2019-10-03

6.  International normative perspectives on the return of individual research results and incidental findings in genomic biobanks.

Authors:  Ma'n H Zawati; Bartha Maria Knoppers
Journal:  Genet Med       Date:  2012-02-16       Impact factor: 8.822

7.  The "All of Us" Research Program.

Authors:  Joshua C Denny; Joni L Rutter; David B Goldstein; Anthony Philippakis; Jordan W Smoller; Gwynne Jenkins; Eric Dishman
Journal:  N Engl J Med       Date:  2019-08-15       Impact factor: 176.079

8.  Ethical framework for the detection, management and communication of incidental findings in imaging studies, building on an interview study of researchers' practices and perspectives.

Authors:  Eline M Bunnik; Lisa van Bodegom; Wim Pinxten; Inez D de Beaufort; Meike W Vernooij
Journal:  BMC Med Ethics       Date:  2017-02-06       Impact factor: 2.652

Review 9.  Designing, Implementing, and Evaluating Mobile Health Technologies for Managing Chronic Conditions in Older Adults: A Scoping Review.

Authors:  Nancy Matthew-Maich; Lauren Harris; Jenny Ploeg; Maureen Markle-Reid; Ruta Valaitis; Sarah Ibrahim; Amiram Gafni; Sandra Isaacs
Journal:  JMIR Mhealth Uhealth       Date:  2016-06-09       Impact factor: 4.773

10.  Fitbit Charge HR Wireless Heart Rate Monitor: Validation Study Conducted Under Free-Living Conditions.

Authors:  Alexander Wilhelm Gorny; Seaw Jia Liew; Chuen Seng Tan; Falk Müller-Riemenschneider
Journal:  JMIR Mhealth Uhealth       Date:  2017-10-20       Impact factor: 4.773

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