Literature DB >> 29922844

The challenge of local consent requirements for global critical care databases.

Stuart McLennan1, David Shaw2, Leo Anthony Celi3,4.   

Abstract

Mesh:

Year:  2018        PMID: 29922844     DOI: 10.1007/s00134-018-5257-y

Source DB:  PubMed          Journal:  Intensive Care Med        ISSN: 0342-4642            Impact factor:   17.440


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  8 in total

1.  "Big data" in the intensive care unit. Closing the data loop.

Authors:  Leo Anthony Celi; Roger G Mark; David J Stone; Robert A Montgomery
Journal:  Am J Respir Crit Care Med       Date:  2013-06-01       Impact factor: 21.405

2.  Towards an ethics safe harbor for global biomedical research.

Authors:  Edward S Dove; Bartha M Knoppers; Ma'n H Zawati
Journal:  J Law Biosci       Date:  2014-02-14

3.  An ethics framework for a learning health care system: a departure from traditional research ethics and clinical ethics.

Authors:  Ruth R Faden; Nancy E Kass; Steven N Goodman; Peter Pronovost; Sean Tunis; Tom L Beauchamp
Journal:  Hastings Cent Rep       Date:  2013 Jan-Feb       Impact factor: 2.683

Review 4.  Rules for processing genetic data for research purposes in view of the new EU General Data Protection Regulation.

Authors:  Mahsa Shabani; Pascal Borry
Journal:  Eur J Hum Genet       Date:  2017-11-29       Impact factor: 4.246

5.  Impracticability of informed consent in the Registry of the Canadian Stroke Network.

Authors:  Jack V Tu; Donald J Willison; Frank L Silver; Jiming Fang; Janice A Richards; Andreas Laupacis; Moira K Kapral
Journal:  N Engl J Med       Date:  2004-04-01       Impact factor: 91.245

6.  The Effect of the General Data Protection Regulation on Medical Research.

Authors:  John Mark Michael Rumbold; Barbara Pierscionek
Journal:  J Med Internet Res       Date:  2017-02-24       Impact factor: 5.428

7.  The European Parliament proposal for the new EU General Data Protection Regulation may severely restrict European epidemiological research.

Authors:  Olof Nyrén; Magnus Stenbeck; Henrik Grönberg
Journal:  Eur J Epidemiol       Date:  2014-05-07       Impact factor: 8.082

8.  MIMIC-III, a freely accessible critical care database.

Authors:  Alistair E W Johnson; Tom J Pollard; Lu Shen; Li-Wei H Lehman; Mengling Feng; Mohammad Ghassemi; Benjamin Moody; Peter Szolovits; Leo Anthony Celi; Roger G Mark
Journal:  Sci Data       Date:  2016-05-24       Impact factor: 6.444

  8 in total
  5 in total

1.  You Can't Have AI Both Ways: Balancing Health Data Privacy and Access Fairly.

Authors:  Marieke Bak; Vince Istvan Madai; Marie-Christine Fritzsche; Michaela Th Mayrhofer; Stuart McLennan
Journal:  Front Genet       Date:  2022-06-13       Impact factor: 4.772

2.  COVID-19: Putting the General Data Protection Regulation to the Test.

Authors:  Stuart McLennan; Leo Anthony Celi; Alena Buyx
Journal:  JMIR Public Health Surveill       Date:  2020-05-29

3.  Practices and Attitudes of Bavarian Stakeholders Regarding the Secondary Use of Health Data for Research Purposes During the COVID-19 Pandemic: Qualitative Interview Study.

Authors:  Stuart McLennan; Sarah Rachut; Johannes Lange; Amelia Fiske; Dirk Heckmann; Alena Buyx
Journal:  J Med Internet Res       Date:  2022-06-27       Impact factor: 7.076

4.  Sharing ICU Patient Data Responsibly Under the Society of Critical Care Medicine/European Society of Intensive Care Medicine Joint Data Science Collaboration: The Amsterdam University Medical Centers Database (AmsterdamUMCdb) Example.

Authors:  Patrick J Thoral; Jan M Peppink; Ronald H Driessen; Eric J G Sijbrands; Erwin J O Kompanje; Lewis Kaplan; Heatherlee Bailey; Jozef Kesecioglu; Maurizio Cecconi; Matthew Churpek; Gilles Clermont; Mihaela van der Schaar; Ari Ercole; Armand R J Girbes; Paul W G Elbers
Journal:  Crit Care Med       Date:  2021-06-01       Impact factor: 9.296

Review 5.  The PLOS ONE collection on machine learning in health and biomedicine: Towards open code and open data.

Authors:  Leo A Celi; Luca Citi; Marzyeh Ghassemi; Tom J Pollard
Journal:  PLoS One       Date:  2019-01-15       Impact factor: 3.240

  5 in total

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