JiYeon Choi1, Jennifer H Lingler2, Michael P Donahoe3, Mary Beth Happ4, Leslie A Hoffman5, Judith A Tate6. 1. Department of Acute and Tertiary Care, University of Pittsburgh, School of Nursing, Pittsburgh, PA, USA; Yonsei University College of Nursing, Seoul, Republic of Korea. Electronic address: jiyeon92@gmail.com. 2. Department of Health and Community Systems, University of Pittsburg, School of Nursing, Pittsburgh, PA, USA. 3. Division of Pulmonary, Allergy, and Critical Care Medicine, Department of Medicine, University of Pittsburgh, School of Medicine, Pittsburgh, PA, USA. 4. Center of Excellence in Critical and Complex Care, The Ohio State University College of Nursing, Columbus, OH, USA. 5. Department of Acute and Tertiary Care, University of Pittsburgh School of Nursing, Pittsburgh, PA, USA. 6. The Ohio State University College of Nursing, Columbus, OH, USA.
Abstract
BACKGROUND: Few studies have longitudinally explored the experience and needs of family caregivers of ICU survivors after patients' home discharge. METHODS: Qualitative content analysis of interviews drawn from a parent study that followed family caregivers of adults ICU survivors for 4 months post-ICU discharge. RESULTS: Family caregivers (n = 20, all white, 80% woman) viewed home discharge as positive progress, but reported having insufficient time to transition from family visitor to the active caregiver role. Caregivers expressed feelings of relief during the steady recovery of family members' physical and cognitive function. However, the slow pace of improvement conflicted with their expectations. Even after patients achieved independent physical function, emotional needs persisted and these issues contributed to caregivers' anxiety, worry, and view that recovery was incomplete. CONCLUSION: Family caregivers of ICU survivors need information and skills to help managing patients' care needs, pacing expectations with actual patients' progress, and caregivers' health needs.
BACKGROUND: Few studies have longitudinally explored the experience and needs of family caregivers of ICU survivors after patients' home discharge. METHODS: Qualitative content analysis of interviews drawn from a parent study that followed family caregivers of adults ICU survivors for 4 months post-ICU discharge. RESULTS: Family caregivers (n = 20, all white, 80% woman) viewed home discharge as positive progress, but reported having insufficient time to transition from family visitor to the active caregiver role. Caregivers expressed feelings of relief during the steady recovery of family members' physical and cognitive function. However, the slow pace of improvement conflicted with their expectations. Even after patients achieved independent physical function, emotional needs persisted and these issues contributed to caregivers' anxiety, worry, and view that recovery was incomplete. CONCLUSION: Family caregivers of ICU survivors need information and skills to help managing patients' care needs, pacing expectations with actual patients' progress, and caregivers' health needs.
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