Literature DB >> 29652215

Stigma of Sickle Cell Disease: A Systematic Review.

Dominique Bulgin1, Paula Tanabe1, Coretta Jenerette2.   

Abstract

The aim of this systematic review was to synthesize the literature regarding health-related stigma in adolescents and adults living with sickle cell disease (SCD). Four domains were identified from 27 studies: (1) social consequences of stigma; (2) the effect of stigma on psychological well-being; (3) the effect of stigma on physiological well-being; and (4) the impact of stigma on patient-provider relationships and care-seeking behaviors. Current literature revealed that SCD stigma has detrimental consequences. Methodological issues as well as research and practice implications were identified. Future research should further examine the impact of health-related stigma on self-management of SCD.

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Mesh：

Year:  2018        PMID： 29652215      PMCID： PMC6186193          DOI： 10.1080/01612840.2018.1443530

Source DB:  PubMed          Journal:  Issues Ment Health Nurs        ISSN： 0161-2840            Impact factor:   1.835


  40 in total

1.  Exploring Transition to Self-Management Within the Culture of Sickle Cell Disease.

Authors:  Nancy Labore; Barbara Mawn; Jane Dixon; Biree Andemariam
Journal:  J Transcult Nurs       Date:  2015-10-07       Impact factor: 1.959

2.  How stigma interferes with mental health care.

Authors:  Patrick Corrigan
Journal:  Am Psychol       Date:  2004-10

3.  Measuring stigma in people with HIV: psychometric assessment of the HIV stigma scale.

Authors:  B E Berger; C E Ferrans; F R Lashley
Journal:  Res Nurs Health       Date:  2001-12       Impact factor: 2.228

4.  Role of self-care in sickle cell disease.

Authors:  Nadine Matthie; Coretta Jenerette; Susan McMillan
Journal:  Pain Manag Nurs       Date:  2014-10-31       Impact factor: 1.929

5.  Aversive Racism and Medical Interactions with Black Patients: A Field Study.

Authors:  Louis A Penner; John F Dovidio; Tessa V West; Samuel L Gaertner; Terrance L Albrecht; Rhonda K Dailey; Tsveti Markova
Journal:  J Exp Soc Psychol       Date:  2010-03-01

6.  Perceived Racial Bias and Health-Related Stigma Among Youth with Sickle Cell Disease.

Authors:  Emily O Wakefield; Jill M Popp; Lourdes P Dale; James P Santanelli; Ashley Pantaleao; William T Zempsky
Journal:  J Dev Behav Pediatr       Date:  2017 Feb/Mar       Impact factor: 2.225

7.  Perceived discrimination in health care is associated with a greater burden of pain in sickle cell disease.

Authors:  Carlton Haywood; Marie Diener-West; John Strouse; C Patrick Carroll; Shawn Bediako; Sophie Lanzkron; Jennifer Haythornthwaite; Gladys Onojobi; Mary Catherine Beach
Journal:  J Pain Symptom Manage       Date:  2014-04-15       Impact factor: 3.612

8.  Perceived discrimination, patient trust, and adherence to medical recommendations among persons with sickle cell disease.

Authors:  Carlton Haywood; Sophie Lanzkron; Shawn Bediako; John J Strouse; Jennifer Haythornthwaite; C Patrick Carroll; Marie Diener-West; Gladys Onojobi; Mary Catherine Beach
Journal:  J Gen Intern Med       Date:  2014-09-10       Impact factor: 5.128

9.  Experiences of hospital care and treatment-seeking behavior for pain from sickle cell disease: qualitative study.

Authors:  K Maxwell; A Streetly; D Bevan
Journal:  West J Med       Date:  1999-11

10.  Stigma and illness uncertainty: adding to the burden of sickle cell disease.

Authors:  Alphanso Blake; Vikram Asnani; Robin R Leger; June Harris; Victoria Odesina; Daileann L Hemmings; Denise A Morris; Jennifer Knight-Madden; Linda Wagner; Monika Rani Asnani
Journal:  Hematology       Date:  2017-08-02       Impact factor: 2.269
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  18 in total

1.  Impact of hereditary pancreatitis on patients and their families.

Authors:  Celeste A Shelton; Robin E Grubs; Chandraprakash Umapathy; Dhiraj Yadav; David C Whitcomb
Journal:  J Genet Couns       Date:  2020-02-05       Impact factor: 2.537

Review 2.  Reducing Health Care Disparities in Sickle Cell Disease: A Review.

Authors:  LaTasha Lee; Kim Smith-Whitley; Sonja Banks; Gary Puckrein
Journal:  Public Health Rep       Date:  2019-10-10       Impact factor: 2.792

Review 3.  What is the future of patient-reported outcomes in sickle-cell disease?

Authors:  Sharon A Singh; Nitya Bakshi; Prashant Mahajan; Claudia R Morris
Journal:  Expert Rev Hematol       Date:  2020-10-15       Impact factor: 2.929

4.  Transition for Adolescents and Young Adults With Sickle Cell Disease in a US Midwest Urban Center: A Multilevel Perspective on Barriers, Facilitators, and Future Directions.

Authors:  Cecelia Calhoun; Lingzi Luo; Ana A Baumann; Anna Bauer; Evelyn Shen; Virginia McKay; Cole Hooley; Aimee James; Allison A King
Journal:  J Pediatr Hematol Oncol       Date:  2021-09-22       Impact factor: 1.170

5.  Preliminary Study of Coping, Perceived Control, and Depressive Symptoms in Youth with Sickle Cell Anemia.

Authors:  Kemar V Prussien; Rachel E Siciliano; Abagail E Ciriegio; Chelsea A Lee; Michael R DeBaun; Lori C Jordan; Bruce E Compas
Journal:  J Dev Behav Pediatr       Date:  2021-08-01       Impact factor: 2.988

6.  Opioid Use in Adults With Sickle Cell Disease Hospitalized During Vaso-Occlusive Crisis: A Systematic Review.

Authors:  Jennel C Osborne; Zainab Osakwe; Michelle Odlum
Journal:  J Hematol       Date:  2021-04-27

7.  Patient Perspectives of Sickle Cell Management in the Emergency Department.

Authors:  Nancy Crego; Rita Masese; Emily Bonnabeau; Christian Douglas; Gary Rains; Nirmish Shah; Paula Tanabe
Journal:  Crit Care Nurs Q       Date:  2021 Apr-Jun 01

8.  Caregiver Perception of Sickle Cell Disease Stigma in Ghana: An Ecological Approach.

Authors:  Julie M Buser; Ashura Bakari; Abdul-Aziz Seidu; Alex Osei-Akoto; Vivian Paintsil; Rexford Amoah; Benjamin Otoo; Cheryl A Moyer
Journal:  J Pediatr Health Care       Date:  2020-09-01       Impact factor: 1.812

9.  Psychosocial and Clinical Risk Factors Associated with Substance Use in Observational Cohort of Patients with Sickle Cell Disease.

Authors:  J Deanna Wilson; Sophie Lanzkron; Lydia H Pecker; Shawn M Bediako; Dingfen Han; Mary Catherine Beach
Journal:  Subst Use Misuse       Date:  2020-08-07       Impact factor: 2.164

10.  The influence of perceived racial bias and health-related stigma on quality of life among children with sickle cell disease.

Authors:  Anna M Hood; Lori E Crosby; Eva Hanson; Lisa M Shook; Jeffrey D Lebensburger; Avi Madan-Swain; Megan M Miller; Zina Trost
Journal:  Ethn Health       Date:  2020-09-08       Impact factor: 2.732
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