Nancy Labore1, Barbara Mawn2, Jane Dixon3, Biree Andemariam4. 1. University of Massachusetts Lowell, MA, USA nlabore@comcast.net. 2. University of Massachusetts Lowell, MA, USA. 3. Yale University, New Haven, CT, USA. 4. University of Connecticut Health Center, Farmington, CT, USA.
Abstract
PURPOSE: The aim of this study was to explore the meaning of transition to self-management in sickle cell disease. DESIGN/ METHOD: Twelve audio-recorded semistructured interviews were conducted with a sample of 21- to 25-year-olds recruited from a comprehensive sickle cell center in the northeast region of the United States. Data were analyzed using an existential framework according to van Manen's phenomenological method. FINDINGS: The meaning of transition to self-management was found in lived time, space, body, and human relationship. The emerging themes highlighted in this article include: Best Mother Ever, Growing up in the Hospital, I'm Not Trying that Again, Doing it on My Own, Living Day-by-Day, and Not a Kid any Longer. The themes reflected meaning and insight into this unique experience. CONCLUSION/PRACTICE IMPLICATIONS: Study results emphasize the culturally constructed meaning of transition to sickle cell disease self-management and need to integrate transcultural perspectives into nursing practice to support this emerging phenomenon.
PURPOSE: The aim of this study was to explore the meaning of transition to self-management in sickle cell disease. DESIGN/ METHOD: Twelve audio-recorded semistructured interviews were conducted with a sample of 21- to 25-year-olds recruited from a comprehensive sickle cell center in the northeast region of the United States. Data were analyzed using an existential framework according to van Manen's phenomenological method. FINDINGS: The meaning of transition to self-management was found in lived time, space, body, and human relationship. The emerging themes highlighted in this article include: Best Mother Ever, Growing up in the Hospital, I'm Not Trying that Again, Doing it on My Own, Living Day-by-Day, and Not a Kid any Longer. The themes reflected meaning and insight into this unique experience. CONCLUSION/PRACTICE IMPLICATIONS: Study results emphasize the culturally constructed meaning of transition to sickle cell disease self-management and need to integrate transcultural perspectives into nursing practice to support this emerging phenomenon.
Authors: Donna K McClish; Wally R Smith; James L Levenson; Imoigele P Aisiku; John D Roberts; Susan D Roseff; Viktor E Bovbjerg Journal: Biomed Res Int Date: 2017-03-28 Impact factor: 3.411