Emily O Wakefield1, Jill M Popp, Lourdes P Dale, James P Santanelli, Ashley Pantaleao, William T Zempsky. 1. *Department of Psychology, University of Hartford, West Hartford, CT; †Division of Pain and Palliative Medicine, Connecticut Children's Medical Center, Hartford, CT; ‡Department of Research, Connecticut Children's Medical Center, Hartford, CT; §Department of Psychology, University of Hartford, West Hartford, CT.
Abstract
OBJECTIVE: Little is known about the role of perceived racial bias and health-related stigma on the health of youth with sickle cell disease (SCD). The purpose of this study was to investigate the occurrence of perceived racial bias and health-related stigma among youth with SCD and its relationship with psychological and physical well-being. METHODS: Twenty-eight youth with SCD, ages 13 to 21, were recruited from outpatient and inpatient settings at an urban children's medical center. Participants completed measures of perceived racial bias, perceived health-related stigma, depression, quality of life, and pain burden. RESULTS: Most participants endorsed occurrences of racial bias and health-related stigma. The findings indicate that greater perceived racial bias was associated with greater pain burden, and greater perceived health-related stigma was related to lower quality of life. CONCLUSION: Perceived racial bias and health-related stigma may be important to consider for future research investigating the psychological and physiological features of SCD for youth.
OBJECTIVE: Little is known about the role of perceived racial bias and health-related stigma on the health of youth with sickle cell disease (SCD). The purpose of this study was to investigate the occurrence of perceived racial bias and health-related stigma among youth with SCD and its relationship with psychological and physical well-being. METHODS: Twenty-eight youth with SCD, ages 13 to 21, were recruited from outpatient and inpatient settings at an urban children's medical center. Participants completed measures of perceived racial bias, perceived health-related stigma, depression, quality of life, and pain burden. RESULTS: Most participants endorsed occurrences of racial bias and health-related stigma. The findings indicate that greater perceived racial bias was associated with greater pain burden, and greater perceived health-related stigma was related to lower quality of life. CONCLUSION: Perceived racial bias and health-related stigma may be important to consider for future research investigating the psychological and physiological features of SCD for youth.
Authors: Steven K Reader; Laura M Rockman; Katherine M Okonak; Nicole M Ruppe; Colleen N Keeler; Anne E Kazak Journal: J Clin Psychol Med Settings Date: 2020-06
Authors: Megan M Miller; Deanna D Rumble; Adam T Hirsh; Tine Vervoort; Lori E Crosby; Avi Madan-Swain; Jeffrey Lebensburger; Anna M Hood; Zina Trost Journal: Pain Med Date: 2021-10-08 Impact factor: 3.750