Literature DB >> 29650743

Improving transition to adulthood for adolescents with intellectual and developmental disabilities: Proactive developmental and systems perspective.

Shara Ally1, Kerry Boyd2, Dara Abells3, Khush Amaria4, Yani Hamdani5, Alvin Loh6, Ullanda Niel7, Samantha Sacks8, Sarah Shea9, William F Sullivan10, Brian Hennen11.   

Abstract

OBJECTIVE: To demonstrate how family physicians can contribute to a piece of the journey of improving quality-of-life outcomes for people with intellectual and developmental disabilities (IDD) when they undergo the transition from adolescence to adulthood. SOURCES OF INFORMATION: The "Primary care of adults with intellectual and developmental disabilities. 2018 Canadian consensus guidelines" literature review and interdisciplinary input. MAIN MESSAGE: Family physicians should be proactive in anticipating and supporting the transition of people with IDD from adolescence to adulthood. Interventions should be guided by a developmental perspective regarding the person with IDD and a life-cycle approach to supporting families. Family physicians also have a role in helping people with IDD and their families to navigate successfully through changing community-based support systems in their province, especially health care and social services systems. Therefore, family physicians should be aware of current services available in their regions.
CONCLUSION: Community and team-based family physicians can optimize the quality of life of people with IDD and their families by adopting a proactive developmental and systems approach to preparing youth with IDD for adulthood. In doing so, they exemplify the 4 principles of family medicine. Copyright© the College of Family Physicians of Canada.

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Mesh:

Year:  2018        PMID: 29650743      PMCID: PMC5906781     

Source DB:  PubMed          Journal:  Can Fam Physician        ISSN: 0008-350X            Impact factor:   3.275


  12 in total

Review 1.  Helping adolescents who have disabilities negotiate transitions to adulthood.

Authors:  A W Schultz; G S Liptak
Journal:  Issues Compr Pediatr Nurs       Date:  1998 Oct-Dec

2.  A consensus statement on health care transitions for young adults with special health care needs.

Authors: 
Journal:  Pediatrics       Date:  2002-12       Impact factor: 7.124

3.  Transition to adult health care for adolescents and young adults with chronic conditions: position paper of the Society for Adolescent Medicine.

Authors:  David S Rosen; Robert W Blum; Maria Britto; Susan M Sawyer; David M Siegel
Journal:  J Adolesc Health       Date:  2003-10       Impact factor: 5.012

4.  Sustaining the 4 principles of family medicine in Canada.

Authors:  Walter Rosser
Journal:  Can Fam Physician       Date:  2006-10       Impact factor: 3.275

5.  Transition to adult care for youth with special health care needs.

Authors: 
Journal:  Paediatr Child Health       Date:  2007-11       Impact factor: 2.253

6.  Primary care of adults with intellectual and developmental disabilities: 2018 Canadian consensus guidelines.

Authors:  William F Sullivan; Heidi Diepstra; John Heng; Shara Ally; Elspeth Bradley; Ian Casson; Brian Hennen; Maureen Kelly; Marika Korossy; Karen McNeil; Dara Abells; Khush Amaria; Kerry Boyd; Meg Gemmill; Elizabeth Grier; Natalie Kennie-Kaulbach; Mackenzie Ketchell; Jessica Ladouceur; Amanda Lepp; Yona Lunsky; Shirley McMillan; Ullanda Niel; Samantha Sacks; Sarah Shea; Katherine Stringer; Kyle Sue; Sandra Witherbee
Journal:  Can Fam Physician       Date:  2018-04       Impact factor: 3.275

7.  Leaving school: a comparison of the worries held by adolescents with and without intellectual disabilities.

Authors:  R Young; D Dagnan; A Jahoda
Journal:  J Intellect Disabil Res       Date:  2015-09-30

8.  Variation over time in medical conditions and health service utilization of children with Down syndrome.

Authors:  Kelly Thomas; Jenny Bourke; Sonya Girdler; Ami Bebbington; Peter Jacoby; Helen Leonard
Journal:  J Pediatr       Date:  2011-02       Impact factor: 4.406

9.  Health care transition: youth, family, and provider perspectives.

Authors:  John G Reiss; Robert W Gibson; Leslie R Walker
Journal:  Pediatrics       Date:  2005-01       Impact factor: 7.124

10.  Discrimination and other barriers to accessing health care: perspectives of patients with mild and moderate intellectual disability and their carers.

Authors:  Afia Ali; Katrina Scior; Victoria Ratti; Andre Strydom; Michael King; Angela Hassiotis
Journal:  PLoS One       Date:  2013-08-12       Impact factor: 3.240

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  7 in total

1.  Supporting adults with intellectual and developmental disabilities to cope and thrive through transitions to later-life phases.

Authors:  William F Sullivan; John Heng; Dara Abells; Andrea Perry; Megan Henze
Journal:  Can Fam Physician       Date:  2019-04       Impact factor: 3.275

2. 

Authors:  Nicholas Pimlott
Journal:  Can Fam Physician       Date:  2018-04       Impact factor: 3.275

3.  A greater understanding.

Authors:  Nicholas Pimlott
Journal:  Can Fam Physician       Date:  2018-04       Impact factor: 3.275

4.  Transition to adulthood: prospective content in joint parent-youth conversations for young people with intellectual or developmental disabilities (IDD).

Authors:  Richard A Young; Sheila K Marshall; Tim Stainton; Eugene Chi
Journal:  Int J Dev Disabil       Date:  2020-10-07

5.  Nurses' perceived role in healthcare transition of adolescents with intellectual disabilities.

Authors:  Grace R Malapela; Gloria Thupayagale-Tshweneagae; Olabisi F Ibitoye
Journal:  Afr J Disabil       Date:  2020-12-14

Review 6.  Advances in Managing Transition to Adulthood for Adolescents With Congenital Heart Disease: A Practical Approach to Transition Program Design: A Scientific Statement From the American Heart Association.

Authors:  Anitha S John; Jamie L Jackson; Philip Moons; Karen Uzark; Andrew S Mackie; Susan Timmins; Keila N Lopez; Adrienne H Kovacs; Michelle Gurvitz
Journal:  J Am Heart Assoc       Date:  2022-03-17       Impact factor: 6.106

7.  Pre-Transition Readiness in Adolescents and Young Adults with Four Chronic Medical Conditions in South East Nigeria - An African Perspective to Adolescent Transition.

Authors:  Adaeze C Ayuk; Vivian O Onukwuli; Ijeoma N Obumneme-Anyim; Joy N Eze; Uzoamaka C Akubuilo; Ngozi R Mbanefo; Kenechukwu K Iloh; Osita U Ezenwosu; Israel O Odetunde; Henrietta U Okafor; Ifeoma J Emodi; Tagbo Oguonu
Journal:  Adolesc Health Med Ther       Date:  2020-03-11
  7 in total

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