Literature DB >> 29589818

A Standardized Education Checklist for Parents of Children Newly Diagnosed With Cancer: A Report From the Children's Oncology Group.

Cheryl Rodgers1, Vanessa Bertini2, Mary Ashe Conway3, Ashley Crosty4, Angela Filice5, Ruth Anne Herring6, Julie Isbell7, E Anne Lown DrPH8, Kristina Miller9, Margaret Perry10, Paula Sanborn11, Nicole Spreen4, Nancy Tena12, Cindi Winkle6, Joan Darling13, Abigail Slaven14, Jeneane Sullivan15, Kathryn M Tomlinson16, Kate Windt17, Marilyn Hockenberry1, Wendy Landier18.   

Abstract

Parents of children newly diagnosed with cancer must acquire new knowledge and skills in order to safely care for their child at home. Institutional variation exists in the methods and content used by nurses in providing the initial education. The goal of this project was to develop a checklist, standardized across institutions, to guide nursing education provided to parents of children newly diagnosed with cancer. A team of 21 members (19 nurses and 2 parent advocates) used current hospital educational checklists, expert consensus recommendations, and a series of iterative activities and discussions to develop one standardized checklist. The final checklist specifies primary topics that are essential to teach prior to the initial hospital discharge, secondary topics that should be discussed within the first month after the cancer diagnosis, and tertiary topics that should be discussed prior to completion of therapy. This checklist is designed to guide education and will set the stage for future studies to identify effective teaching strategies that optimize the educational process for parents of children newly diagnosed with cancer.

Entities:  

Keywords:  Children’s Oncology Group; childhood cancer; hospital discharge; new diagnosis; patient/family education

Mesh:

Year:  2018        PMID: 29589818      PMCID: PMC5988945          DOI: 10.1177/1043454218764889

Source DB:  PubMed          Journal:  J Pediatr Oncol Nurs        ISSN: 1043-4542            Impact factor:   1.636


  14 in total

1.  Processing Information After a Child's Cancer Diagnosis-How Parents Learn.

Authors:  Cheryl C Rodgers; Kristin Stegenga; Janice S Withycombe; Karen Sachse; Katherine Patterson Kelly
Journal:  J Pediatr Oncol Nurs       Date:  2016 Nov/Dec       Impact factor: 1.636

2.  Education given to parents of children newly diagnosed with acute lymphoblastic leukemia: the parent's perspective.

Authors:  Gemma Aburn; Meryn Gott
Journal:  Pediatr Nurs       Date:  2014 Sep-Oct

Review 3.  Development and pilot testing of a parent education intervention for type 1 diabetes: parent education through simulation-diabetes.

Authors:  Susan Sullivan-Bolyai; Carol Bova; Mary Lee; Kimberly Johnson
Journal:  Diabetes Educ       Date:  2012-01-05       Impact factor: 2.140

4.  Pediatric brain tumor patients: their parents' perceptions of the hospital experience.

Authors:  Alun C Jackson; Helen Stewart; Maree O'Toole; Nicole Tokatlian; Kate Enderby; Jane Miller; David Ashley
Journal:  J Pediatr Oncol Nurs       Date:  2007 Mar-Apr       Impact factor: 1.636

Review 5.  Children's Oncology Group's 2013 blueprint for research: nursing discipline.

Authors:  Wendy Landier; Marcia Leonard; Kathleen S Ruccione
Journal:  Pediatr Blood Cancer       Date:  2012-12-19       Impact factor: 3.167

6.  Parenting stress in pediatric oncology populations.

Authors:  Kristen M Rabineau; P Alex Mabe; Roger A Vega
Journal:  J Pediatr Hematol Oncol       Date:  2008-05       Impact factor: 1.289

7.  Communication with parents of children with cancer.

Authors:  O B Eden; I Black; G A MacKinlay; A E Emery
Journal:  Palliat Med       Date:  1994       Impact factor: 4.762

8.  Parents' perceptions regarding readiness for their infant's discharge from the NICU.

Authors:  Natasha Burnham; Nancy Feeley; Kathyrn Sherrard
Journal:  Neonatal Netw       Date:  2013 Sep-Oct

9.  Patient/Family Education for Newly Diagnosed Pediatric Oncology Patients.

Authors:  Wendy Landier; JoAnn Ahern; Lamia P Barakat; Smita Bhatia; Kristin M Bingen; Patricia G Bondurant; Susan L Cohn; Sarah K Dobrozsi; Maureen Haugen; Ruth Anne Herring; Mary C Hooke; Melissa Martin; Kathryn Murphy; Amy R Newman; Cheryl C Rodgers; Kathleen S Ruccione; Jeneane Sullivan; Marianne Weiss; Janice Withycombe; Lise Yasui; Marilyn Hockenberry
Journal:  J Pediatr Oncol Nurs       Date:  2016-07-09       Impact factor: 1.636

Review 10.  Surgical checklists: a systematic review of impacts and implementation.

Authors:  Jonathan R Treadwell; Scott Lucas; Amy Y Tsou
Journal:  BMJ Qual Saf       Date:  2013-08-06       Impact factor: 7.035

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  3 in total

1.  Information needs of Malaysian parents of children with cancer: A qualitative study.

Authors:  Chai-Eng Tan; Sie Chong Doris Lau; Zarina Abdul Latiff; Chee Chan Lee; Kok Hoi Teh; Sherina Mohd Sidik
Journal:  Asia Pac J Oncol Nurs       Date:  2021-12-25

Review 2.  How nurses and other health professionals use learning principles in parent education practice: A scoping review of the literature.

Authors:  Deryn Thompson; Matthew Leach; Colleen Smith; Jennifer Fereday; Esther May
Journal:  Heliyon       Date:  2020-03-18

3.  Identifying and Prioritizing Family Education Needs at Pediatric Oncology Centers in Central America and Mexico.

Authors:  Erin McCann; Soad Fuentes-Alabí; Federico Antillón; Lourdes Vega-Vega; Maria Sabina Sanchez; Irini Albanti
Journal:  J Glob Oncol       Date:  2019-11
  3 in total

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