Literature DB >> 28084180

Processing Information After a Child's Cancer Diagnosis-How Parents Learn.

Cheryl C Rodgers1, Kristin Stegenga2, Janice S Withycombe3, Karen Sachse4, Katherine Patterson Kelly5.   

Abstract

Parents of a child newly diagnosed with cancer must receive an extensive amount of information before their child's initial hospital discharge; however, little is known about best practices for providing this education. An interpretive descriptive study design was used to describe actual and preferred educational content, timing, and methods among parents of children newly diagnosed with cancer prior to their child's first hospital discharge. Twenty parents of children diagnosed with various malignancies participated in individual interviews 2 to 12 months after their child's diagnosis. Data were analyzed using constant comparative analysis. Education delivery occurred in a telling manner at diagnosis transitioning to a reciprocal process of teaching during the inpatient stay, then primarily back to telling immediately before discharge. Parents expressed a variety of preferred learning styles but noted that their preferences were rarely assessed by health care providers. Multiple factors influenced parents' ability to process educational information received during their child's initial hospitalization. Findings suggest that nursing practices should include assessing for influencing factors, providing anticipatory guidance, and incorporating parents' preferred learning style into the educational plan.

Entities:  

Keywords:  education; new diagnosis; parents; pediatric oncology

Mesh:

Year:  2016        PMID: 28084180      PMCID: PMC5245611          DOI: 10.1177/1043454216668825

Source DB:  PubMed          Journal:  J Pediatr Oncol Nurs        ISSN: 1043-4542            Impact factor:   1.636


  22 in total

1.  Grounded theory--conceptual and operational aspects: a method possible to be applied in nursing research.

Authors:  Claudia de Carvalho Dantas; Joséte Luzia Leite; Suzinara Beatriz Soares de Lima; Marluci Andrade Conceição Stipp
Journal:  Rev Lat Am Enfermagem       Date:  2009 Jul-Aug

2.  Sample size in qualitative research.

Authors:  M Sandelowski
Journal:  Res Nurs Health       Date:  1995-04       Impact factor: 2.228

3.  Improving informed consent: suggestions from parents of children with leukemia.

Authors:  Michelle L Eder; Amy D Yamokoski; Peter W Wittmann; Eric D Kodish
Journal:  Pediatrics       Date:  2007-04       Impact factor: 7.124

4.  Pediatric brain tumor patients: their parents' perceptions of the hospital experience.

Authors:  Alun C Jackson; Helen Stewart; Maree O'Toole; Nicole Tokatlian; Kate Enderby; Jane Miller; David Ashley
Journal:  J Pediatr Oncol Nurs       Date:  2007 Mar-Apr       Impact factor: 1.636

5.  A survey of pediatric oncology nurses' perceptions of parent educational needs.

Authors:  Katherine Patterson Kelly; Davina Porock
Journal:  J Pediatr Oncol Nurs       Date:  2005 Jan-Feb       Impact factor: 1.636

6.  Parenting stress in pediatric oncology populations.

Authors:  Kristen M Rabineau; P Alex Mabe; Roger A Vega
Journal:  J Pediatr Hematol Oncol       Date:  2008-05       Impact factor: 1.289

7.  Brief report: A pilot study of a web-based resource for families of children with cancer.

Authors:  Linda J Ewing; Kristin Long; Armando Rotondi; Chelsea Howe; Lauren Bill; Anna L Marsland
Journal:  J Pediatr Psychol       Date:  2008-09-10

8.  Communication with parents of children with cancer.

Authors:  O B Eden; I Black; G A MacKinlay; A E Emery
Journal:  Palliat Med       Date:  1994       Impact factor: 4.762

9.  Beginning treatment for childhood acute lymphoblastic leukemia: insights from the parents' perspective.

Authors:  Pam McGrath
Journal:  Oncol Nurs Forum       Date:  2002-07       Impact factor: 2.172

10.  Readiness for discharge in parents of hospitalized children.

Authors:  Marianne Weiss; Norah Louise Johnson; Shelly Malin; Teresa Jerofke; Cecilia Lang; Eileen Sherburne
Journal:  J Pediatr Nurs       Date:  2008-08       Impact factor: 2.145

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  6 in total

1.  A Standardized Education Checklist for Parents of Children Newly Diagnosed With Cancer: A Report From the Children's Oncology Group.

Authors:  Cheryl Rodgers; Vanessa Bertini; Mary Ashe Conway; Ashley Crosty; Angela Filice; Ruth Anne Herring; Julie Isbell; E Anne Lown DrPH; Kristina Miller; Margaret Perry; Paula Sanborn; Nicole Spreen; Nancy Tena; Cindi Winkle; Joan Darling; Abigail Slaven; Jeneane Sullivan; Kathryn M Tomlinson; Kate Windt; Marilyn Hockenberry; Wendy Landier
Journal:  J Pediatr Oncol Nurs       Date:  2018-03-28       Impact factor: 1.636

2.  Supporting Family Decision-making for a Child Who Is Seriously Ill: Creating Synchrony and Connection.

Authors:  Vanessa N Madrigal; Katherine Patterson Kelly
Journal:  Pediatrics       Date:  2018-11       Impact factor: 7.124

3.  Implementing and Evaluating a Standardized New Diagnosis Education Checklist: A Report From the Children's Oncology Group.

Authors:  Elizabeth A Duffy; Teresa Herriage; Lori Ranney; Nancy Tena
Journal:  J Pediatr Oncol Nurs       Date:  2021-05-24       Impact factor: 1.966

4.  Commonly Reported Adverse Events Associated With Pediatric Immunotherapy: A Systematic Review From the Children's Oncology Group

Authors:  Janice S Withycombe; Aimee Carlson; Carly Coleman; Sharon L Leslie; Micah Skeens; Hanna Tseitlin; Elizabeth A Duffy
Journal:  J Pediatr Oncol Nurs       Date:  2020-10-28       Impact factor: 1.636

5.  Exploring Perceptions of Education for Central Venous Catheter Care at Home.

Authors:  Kiera Bailie; Lisa Jacques; Angele Phillips; Paula Mahon
Journal:  J Pediatr Oncol Nurs       Date:  2021-02-22       Impact factor: 1.636

6.  Identifying and Prioritizing Family Education Needs at Pediatric Oncology Centers in Central America and Mexico.

Authors:  Erin McCann; Soad Fuentes-Alabí; Federico Antillón; Lourdes Vega-Vega; Maria Sabina Sanchez; Irini Albanti
Journal:  J Glob Oncol       Date:  2019-11
  6 in total

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