Literature DB >> 29525898

Transition of Children with Neurological Disorders.

Ann H Tilton1,2.   

Abstract

PURPOSE OF THE REVIEW: The goal of the article is to describe a systematic approach through core principles and steps for the transition of the patient with a neurological disorder to the adult model of care, to provide steps and principles to help receiving providers successfully integrate the patient into their practice, and to discuss cultural, systemic, and discipline-based barriers to transition. RECENT FINDING: The literature has expanded rapidly. The recent publications help define the barriers to the process and are currently exploring the best methods to evaluate readiness, needs, barriers, and develop solutions for best practices. There is a consensus that there is a need for a systematic approach to transition and integration of the patient with a neurological disorder. The transition of the child and youth with special health care needs (CYSHCN) is complex with multiple barriers. An important concept is that these patients, their families, and medical care providers all benefit from a coordinated and collaborative methodology.

Entities:  

Keywords:  Barriers; Core elements; Models of care; Tools; Transfer; Transition

Mesh:

Year:  2018        PMID: 29525898     DOI: 10.1007/s11910-018-0822-x

Source DB:  PubMed          Journal:  Curr Neurol Neurosci Rep        ISSN: 1528-4042            Impact factor:   5.081


  24 in total

1.  The capacity of people with a 'mental disability' to make a health care decision.

Authors:  J G Wong; C H Clare; A J Holland; P C Watson; M Gunn
Journal:  Psychol Med       Date:  2000-03       Impact factor: 7.723

2.  Gaps in transitional care: what are the perceptions of adolescents, parents and providers?

Authors:  H M Sonneveld; M M H Strating; A L van Staa; A P Nieboer
Journal:  Child Care Health Dev       Date:  2012-02-13       Impact factor: 2.508

3.  Pediatric to adult-care transitions in childhood-onset chronic disease: hospitalist perspectives.

Authors:  Susan Hunt; Niraj Sharma
Journal:  J Hosp Med       Date:  2013-10-12       Impact factor: 2.960

Review 4.  Health care transition for youth with special health care needs.

Authors:  Sheila R Bloom; Karen Kuhlthau; Jeanne Van Cleave; Alixandra A Knapp; Paul Newacheck; James M Perrin
Journal:  J Adolesc Health       Date:  2012-03-22       Impact factor: 5.012

5.  Resident preferences for a curriculum in healthcare transitions for young adults.

Authors:  Sarah Mennito
Journal:  South Med J       Date:  2012-09       Impact factor: 0.954

6.  Current status of transition preparation among youth with special needs in the United States.

Authors:  Margaret A McManus; Lauren R Pollack; W Carl Cooley; Jeanne W McAllister; Debra Lotstein; Bonnie Strickland; Marie Y Mann
Journal:  Pediatrics       Date:  2013-05-13       Impact factor: 7.124

7.  Accuracy of the MacArthur competence assessment tool for clinical research (MacCAT-CR) for measuring children's competence to consent to clinical research.

Authors:  Irma M Hein; Pieter W Troost; Robert Lindeboom; Marc A Benninga; C Michel Zwaan; Johannes B van Goudoever; Ramón J L Lindauer
Journal:  JAMA Pediatr       Date:  2014-12       Impact factor: 16.193

8.  The neurologist's role in supporting transition to adult health care: A consensus statement.

Authors:  Lawrence W Brown; Peter Camfield; Melissa Capers; Greg Cascino; Mary Ciccarelli; Claudio M de Gusmao; Stephen M Downs; Annette Majnemer; Amy Brin Miller; Christina SanInocencio; Rebecca Schultz; Anne Tilton; Annick Winokur; Mary Zupanc
Journal:  Neurology       Date:  2016-07-27       Impact factor: 9.910

Review 9.  Transition care for children with special health care needs.

Authors:  Alaina M Davis; Rebekah F Brown; Julie Lounds Taylor; Richard A Epstein; Melissa L McPheeters
Journal:  Pediatrics       Date:  2014-10-06       Impact factor: 7.124

10.  Health care providers' attitudes towards transfer and transition in young persons with long term illness- a web-based survey.

Authors:  Carina Sparud-Lundin; Malin Berghammer; Philip Moons; Ewa-Lena Bratt
Journal:  BMC Health Serv Res       Date:  2017-04-11       Impact factor: 2.655

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  3 in total

1.  [Interdisciplinary challenges in neuromedicine].

Authors:  M Dieterich; A Zwergal
Journal:  Nervenarzt       Date:  2018-10       Impact factor: 1.214

2.  Caring for Individuals With Intellectual and Developmental Disabilities in the COVID-19 Crisis.

Authors:  Jessica Solomon Sanders; Seth Keller; Bhooma R Aravamuthan
Journal:  Neurol Clin Pract       Date:  2021-04

3.  Prevalence and barriers to health care transition for adolescent patients with childhood-onset chronic diseases across Japan: A nation-wide cross-sectional survey.

Authors:  Ikuho Sakurai; Mitsue Maru; Takako Miyamae; Masataka Honda
Journal:  Front Pediatr       Date:  2022-09-01       Impact factor: 3.569

  3 in total

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