Alaina M Davis1, Rebekah F Brown2, Julie Lounds Taylor3, Richard A Epstein4, Melissa L McPheeters5. 1. Division of General Pediatrics, and Evidence-Based Practice Center, Institute for Medicine and Public Health, Vanderbilt University Medical Center, Nashville, Tennessee; and. 2. Evidence-Based Practice Center, Institute for Medicine and Public Health, Vanderbilt University Medical Center, Nashville, Tennessee; and Division of Allergy, Immunology and Pulmonary Medicine, Department of Pediatrics; 3. Division of General Pediatrics, and Evidence-Based Practice Center, Institute for Medicine and Public Health, Vanderbilt University Medical Center, Nashville, Tennessee; and Vanderbilt University Kennedy Center for Research on Education and Human Development, Nashville, Tennessee. 4. Evidence-Based Practice Center, Institute for Medicine and Public Health, Vanderbilt University Medical Center, Nashville, Tennessee; and Division of Child and Adolescent Psychiatry, Department of Psychiatry; and. 5. Evidence-Based Practice Center, Institute for Medicine and Public Health, Vanderbilt University Medical Center, Nashville, Tennessee; and Department of Health Policy, Vanderbilt University School of Medicine, Nashville, Tennessee; melissa.mcpheeters@vanderbilt.edu.
Abstract
BACKGROUND: Approximately 750,000 children in the United States with special health care needs will transition from pediatric to adult care annually. Fewer than half receive adequate transition care. METHODS: We had conversations with key informants representing clinicians who provide transition care, pediatric and adult providers of services for individuals with special health care needs, policy experts, and researchers; searched online sources for information about currently available programs and resources; and conducted a literature search to identify research on the effectiveness of transition programs. RESULTS: We identified 25 studies evaluating transition care programs. Most (n = 8) were conducted in populations with diabetes, with a smaller literature (n = 5) on transplant patients. We identified an additional 12 studies on a range of conditions, with no more than 2 studies on the same condition. Common components of care included use of a transition coordinator, a special clinic for young adults in transition, and provision of educational materials. CONCLUSIONS: The issue of how to provide transition care for children with special health care needs warrants further attention. Research needs are wide ranging, including both substantive and methodologic concerns. Although there is widespread agreement on the need for adequate transition programs, there is no accepted way to measure transition success. It will be essential to establish consistent goals to build an adequate body of literature to affect practice.
BACKGROUND: Approximately 750,000 children in the United States with special health care needs will transition from pediatric to adult care annually. Fewer than half receive adequate transition care. METHODS: We had conversations with key informants representing clinicians who provide transition care, pediatric and adult providers of services for individuals with special health care needs, policy experts, and researchers; searched online sources for information about currently available programs and resources; and conducted a literature search to identify research on the effectiveness of transition programs. RESULTS: We identified 25 studies evaluating transition care programs. Most (n = 8) were conducted in populations with diabetes, with a smaller literature (n = 5) on transplant patients. We identified an additional 12 studies on a range of conditions, with no more than 2 studies on the same condition. Common components of care included use of a transition coordinator, a special clinic for young adults in transition, and provision of educational materials. CONCLUSIONS: The issue of how to provide transition care for children with special health care needs warrants further attention. Research needs are wide ranging, including both substantive and methodologic concerns. Although there is widespread agreement on the need for adequate transition programs, there is no accepted way to measure transition success. It will be essential to establish consistent goals to build an adequate body of literature to affect practice.
Authors: S Kipps; T Bahu; K Ong; F M Ackland; R S Brown; C T Fox; N K Griffin; A H Knight; N P Mann; H A W Neil; H Simpson; J A Edge; D B Dunger Journal: Diabet Med Date: 2002-08 Impact factor: 4.359
Authors: Lisa A Schwartz; Jessica L Hamilton; Lauren D Brumley; Lamia P Barakat; Janet A Deatrick; Dava E Szalda; Katherine B Bevans; Carole A Tucker; Lauren C Daniel; Eliana Butler; Anne E Kazak; Wendy L Hobbie; Jill P Ginsberg; Alexandra M Psihogios; Elizabeth Ver Hoeve; Lisa K Tuchman Journal: J Pediatr Psychol Date: 2017-10-01
Authors: Emily M Fredericks; John C Magee; Sally J Eder; Jessica R Sevecke; Dawn Dore-Stites; Victoria Shieck; M James Lopez Journal: J Clin Psychol Med Settings Date: 2015-09
Authors: Yana Vaks; Rachel Bensen; Dana Steidtmann; Thomas D Wang; Terry S Platchek; Donna M Zulman; Elizabeth Malcolm; Arnold Milstein Journal: Healthc (Amst) Date: 2015-10-21