Literature DB >> 29466341

Coming of Age With Cancer: Physical, Social, and Financial Barriers to Independence Among Emerging Adult Survivors

Eden Brauer1, Huibrie C Pieters2, Patricia A Ganz3, Wendy Landier4, Carol Pavlish1, MarySue V Heilemann1.   

Abstract

PURPOSE: To explore the transition to self-care among a sample of emerging adult cancer survivors after hematopoietic cell transplantation (HCT). 
. PARTICIPANTS &
SETTING: 18 HCT survivors who were aged 18-29 years at the time of HCT for a primary hematologic malignancy and were 8-60 months post-HCT participated in the study. The study took place in the hematology outpatient setting at City of Hope National Medical Center.
. METHODOLOGIC APPROACH: The authors conducted in-depth semistructured interviews and analyzed interview transcripts using grounded theory methodology.
.
FINDINGS: Health-related setbacks following HCT disrupted not only participants' journey toward self-care, but also their overarching developmental trajectory toward adulthood. Physically, participants struggled with lack of personal space around caregivers, but felt unready to live on their own. Socially, they relied on multiple caregivers to avoid relying too much on any one person. Financially, participants worried about prolonged dependence and increased needs in the future.
. IMPLICATIONS FOR NURSING: Nurses can support the transition to self-care among emerging adults after HCT by recognizing the broader developmental impact of their cancer experience.

Entities:  

Keywords:  adolescent; emerging adult; hematopoietic cell transplantation; self-care
; young adult

Mesh:

Year:  2018        PMID: 29466341      PMCID: PMC6162052          DOI: 10.1188/18.ONF.148-158

Source DB:  PubMed          Journal:  Oncol Nurs Forum        ISSN: 0190-535X            Impact factor:   2.172


  36 in total

1.  "You're too young for this": adolescent and young adults' perspectives on cancer survivorship.

Authors:  Erin E Kent; Carla Parry; Michael J Montoya; Leonard S Sender; Rebecca A Morris; Hoda Anton-Culver
Journal:  J Psychosoc Oncol       Date:  2012

2.  Prevalence and predictors of chronic health conditions after hematopoietic cell transplantation: a report from the Bone Marrow Transplant Survivor Study.

Authors:  Can-Lan Sun; Liton Francisco; Toana Kawashima; Wendy Leisenring; Leslie L Robison; K Scott Baker; Daniel J Weisdorf; Stephen J Forman; Smita Bhatia
Journal:  Blood       Date:  2010-07-23       Impact factor: 22.113

3.  Adverse psychological outcomes in long-term survivors of hematopoietic cell transplantation: a report from the Bone Marrow Transplant Survivor Study (BMTSS).

Authors:  Can-Lan Sun; Liton Francisco; K Scott Baker; Daniel J Weisdorf; Stephen J Forman; Smita Bhatia
Journal:  Blood       Date:  2011-08-05       Impact factor: 22.113

Review 4.  Identifying and addressing the needs of adolescents and young adults with cancer: summary of an Institute of Medicine workshop.

Authors:  Sharyl J Nass; Lynda K Beaupin; Wendy Demark-Wahnefried; Karen Fasciano; Patricia A Ganz; Brandon Hayes-Lattin; Melissa M Hudson; Brenda Nevidjon; Kevin C Oeffinger; Ruth Rechis; Lisa C Richardson; Nita L Seibel; Ashley W Smith
Journal:  Oncologist       Date:  2015-01-07

5.  Forgoing medical care because of cost: assessing disparities in healthcare access among cancer survivors living in the United States.

Authors:  Kathryn E Weaver; Julia H Rowland; Keith M Bellizzi; Noreen M Aziz
Journal:  Cancer       Date:  2010-07-15       Impact factor: 6.860

6.  The experience of caring for a spouse undergoing hematopoietic stem cell transplantation: opening Pandora's box.

Authors:  Brenda Sabo; Deborah McLeod; Stephen Couban
Journal:  Cancer Nurs       Date:  2013 Jan-Feb       Impact factor: 2.592

Review 7.  A Pound of Cure Requires An Ounce (or More) of Prevention: Survivorship and Complications of Therapy for Hematologic Malignancies.

Authors:  Marlise R Luskin; Rahul Banerjee; Sarah Del Percio; Alison W Loren
Journal:  Curr Hematol Malig Rep       Date:  2015-09       Impact factor: 3.952

8.  Marital adjustment, satisfaction and dissolution among hematopoietic stem cell transplant patients and spouses: a prospective, five-year longitudinal investigation.

Authors:  Shelby L Langer; Jean C Yi; Barry E Storer; Karen L Syrjala
Journal:  Psychooncology       Date:  2010-02       Impact factor: 3.894

9.  Psychological distress and psychiatric diagnoses among primary caregivers of children undergoing hematopoietic stem cell transplant: an examination of prevalence, correlates, and racial/ethnic differences.

Authors:  Shannon Myers Virtue; Sharon L Manne; Laura Mee; Abraham Bartell; Stephen Sands; Tina Marie Gajda; Kathleen Darabos
Journal:  Gen Hosp Psychiatry       Date:  2014-09-03       Impact factor: 3.238

10.  Exploring the Content of Post-Traumatic Stress Symptoms among Parents after Paediatric Stem Cell Transplant.

Authors:  Ulla Forinder; Lovisa Claesson; Katharina Szybek; Annika Lindahl Norberg
Journal:  PLoS One       Date:  2015-05-12       Impact factor: 3.240

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  5 in total

1.  Factors associated with social functioning among long-term cancer survivors treated with hematopoietic stem cell transplantation as adolescents or young adults.

Authors:  Casey A Walsh; Jean C Yi; Abby R Rosenberg; Marie-Laure V Crouch; Wendy M Leisenring; Karen L Syrjala
Journal:  Psychooncology       Date:  2020-08-13       Impact factor: 3.894

2.  Psychosocial and financial issues after hematopoietic cell transplantation.

Authors:  David Buchbinder; Nandita Khera
Journal:  Hematology Am Soc Hematol Educ Program       Date:  2021-12-10

3.  Impact of cancer on school, work, and financial independence among adolescents and young adults.

Authors:  Bryan A Sisk; Karen Fasciano; Susan D Block; Jennifer W Mack
Journal:  Cancer       Date:  2020-07-13       Impact factor: 6.860

Review 4.  Haematopoietic Stem Cell Transplantation in Adolescents and Young Adults With Acute Lymphoblastic Leukaemia: Special Considerations and Challenges.

Authors:  Charlotte Calvo; Leila Ronceray; Nathalie Dhédin; Jochen Buechner; Anja Troeger; Jean-Hugues Dalle
Journal:  Front Pediatr       Date:  2022-01-11       Impact factor: 3.418

5.  Financial burden for caregivers of adolescents and young adults with cancer.

Authors:  Chandylen L Nightingale; Mollie R Canzona; Suzanne C Danhauer; Bryce B Reeve; Dianna S Howard; Reginald D Tucker-Seeley; Shannon L S Golden; Denisha Little-Greene; Michael E Roth; David E Victorson; John M Salsman
Journal:  Psychooncology       Date:  2022-04-20       Impact factor: 3.955

  5 in total

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