Literature DB >> 22416959

"You're too young for this": adolescent and young adults' perspectives on cancer survivorship.

Erin E Kent1, Carla Parry, Michael J Montoya, Leonard S Sender, Rebecca A Morris, Hoda Anton-Culver.   

Abstract

Adolescent and young adult cancer survivors face unique challenges not systematically addressed by cancer clinicians. Four focus groups and two individual interviews were conducted with 19 survivors to profile experiences and identify key concerns for future interventions. The resultant themes reflect cancer care continuum challenges (such as delays in diagnosis, problems with adherence), psychosocial concerns (such as infertility and reproductive concerns, changing social relationships, financial burden), and the paradox of being diagnosed with cancer as a young adult. Future intervention development for adolescent and young adult survivors should involve patient voices at each stage of the research process.

Entities:  

Mesh:

Year:  2012        PMID: 22416959      PMCID: PMC4560238          DOI: 10.1080/07347332.2011.644396

Source DB:  PubMed          Journal:  J Psychosoc Oncol        ISSN: 0734-7332


  30 in total

1.  No room at the inn: a snapshot of an American emergency room.

Authors:  E J Olson
Journal:  Stanford Law Rev       Date:  1994-01

Review 2.  Been there, done that, wrote the blog: the choices and challenges of supporting adolescents and young adults with cancer.

Authors:  Claire L Treadgold; Aura Kuperberg
Journal:  J Clin Oncol       Date:  2010-03-29       Impact factor: 44.544

3.  Delays in cancer diagnosis in underinsured young adults and older adolescents.

Authors:  Sean Martin; Corinne Ulrich; Mark Munsell; Sarah Taylor; Georgia Lange; Archie Bleyer
Journal:  Oncologist       Date:  2007-07

Review 4.  Cancer in 15- to 29-year-olds by primary site.

Authors:  Archie Bleyer; Aaron Viny; Ronald Barr
Journal:  Oncologist       Date:  2006-06

5.  The impact of cancer and quality of life for long-term survivors.

Authors:  Brad J Zebrack; Jaehee Yi; Laura Petersen; Patricia A Ganz
Journal:  Psychooncology       Date:  2008-09       Impact factor: 3.894

6.  Young adult cancer survivors' psychosocial well-being: a cross-sectional study assessing quality of life, unmet needs, and health behaviors.

Authors:  Alix Edna Hall; Allison Wendy Boyes; Jennifer Bowman; Raoul A Walsh; Erica L James; Afaf Girgis
Journal:  Support Care Cancer       Date:  2011-07-01       Impact factor: 3.603

Review 7.  Factors affecting cancer survivors' employment and work ability.

Authors:  T Taskila; M L Lindbohm
Journal:  Acta Oncol       Date:  2007       Impact factor: 4.089

8.  To foster healing among adolescents and young adults with cancer: what helps? What hurts?

Authors:  Brad Zebrack; Mark A Chesler; Stuart Kaplan
Journal:  Support Care Cancer       Date:  2009-08-20       Impact factor: 3.603

9.  From "invincibility" to "normalcy": coping strategies of young adults during the cancer journey.

Authors:  Baukje Miedema; Ryan Hamilton; Julie Easley
Journal:  Palliat Support Care       Date:  2007-03

10.  Socioeconomic Impacts on Survival Differ by Race/Ethnicity among Adolescents and Young Adults with Non-Hodgkin's Lymphoma.

Authors:  Erin E Kent; Rebecca A Morris; Joan A Largent; Argyrios Ziogas; Leonard S Sender; Hoda Anton-Culver
Journal:  J Cancer Epidemiol       Date:  2010-06-22
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  37 in total

1.  Impact of Health Insurance on Stage at Cancer Diagnosis Among Adolescents and Young Adults.

Authors:  Theresa H M Keegan; Helen M Parsons; Yi Chen; Frances B Maguire; Cyllene R Morris; Arti Parikh-Patel; Kenneth W Kizer; Ted Wun
Journal:  J Natl Cancer Inst       Date:  2019-11-01       Impact factor: 13.506

2.  Patterns of unmet needs in adolescent and young adult (AYA) cancer survivors: in their own words.

Authors:  Alex W K Wong; Ting-Ting Chang; Katrina Christopher; Stephen C L Lau; Lynda K Beaupin; Brad Love; Kim L Lipsey; Michael Feuerstein
Journal:  J Cancer Surviv       Date:  2017-03-29       Impact factor: 4.442

3.  Exploring the Cancer Experiences of Young Adults in the Context of Stem Cell Transplantation.

Authors:  Kelly J Brassil; Joan C Engebretson; Terri S Armstrong; Julie H Segovia; Laura L Worth; Barbara L Summers
Journal:  Cancer Nurs       Date:  2015 Jul-Aug       Impact factor: 2.592

4.  Balancing Hope and Risk Among Adolescent and Young Adult Cancer Patients with Late-Stage Cancer: A Qualitative Interview Study.

Authors:  Marlaine Figueroa Gray; Evette J Ludman; Tara Beatty; Abby R Rosenberg; Karen J Wernli
Journal:  J Adolesc Young Adult Oncol       Date:  2018-08-10       Impact factor: 2.223

5.  Motivations for cancer history disclosure among young adult cancer survivors.

Authors:  Julie Easley
Journal:  J Cancer Surviv       Date:  2019-05-17       Impact factor: 4.442

6.  A qualitative study of adolescent and young adult cancer survivors' perceptions of family and peer support.

Authors:  Glynnis A McDonnell; Elyse Shuk; Jennifer S Ford
Journal:  J Health Psychol       Date:  2018-04-24

7.  Coming of Age With Cancer: Physical, Social, and Financial Barriers to Independence Among Emerging Adult Survivors

Authors:  Eden Brauer; Huibrie C Pieters; Patricia A Ganz; Wendy Landier; Carol Pavlish; MarySue V Heilemann
Journal:  Oncol Nurs Forum       Date:  2018-03-01       Impact factor: 2.172

8.  Trying to Feel Normal Again: Early Survivorship for Adolescent Cancer Survivors.

Authors:  Amy J Walker; Frances M Lewis; Yuting Lin; Ellen Zahlis; Abby R Rosenberg
Journal:  Cancer Nurs       Date:  2019 Jul/Aug       Impact factor: 2.592

Review 9.  Fertility preservation for patients with cancer: American Society of Clinical Oncology clinical practice guideline update.

Authors:  Alison W Loren; Pamela B Mangu; Lindsay Nohr Beck; Lawrence Brennan; Anthony J Magdalinski; Ann H Partridge; Gwendolyn Quinn; W Hamish Wallace; Kutluk Oktay
Journal:  J Clin Oncol       Date:  2013-05-28       Impact factor: 44.544

10.  "Cancer sucks," and other ponderings by adolescent and young adult cancer survivors.

Authors:  Brad Zebrack; Erin E Kent; Theresa H M Keegan; Ikuko Kato; Ashley Wilder Smith
Journal:  J Psychosoc Oncol       Date:  2014
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