Literature DB >> 29461996

Caregivers' Priorities and Observed Outcomes of Attention-Deficit Hyperactivity Disorder Medication for Their Children.

Melissa Ross1, Vy Nguyen1, John F P Bridges2, Xinyi Ng1, Gloria Reeves3, Emily Frosch4, Susan dosReis1.   

Abstract

OBJECTIVE: To document variability among caregivers' priorities when considering medication to treat their Children's attention-deficit hyperactivity disorder (ADHD) and explore associations between these priorities and medication-related improvements.
METHODS: Caregivers of children, ages 4 to 14 years, diagnosed with ADHD were recruited from outpatient clinics and support groups across Maryland. A survey gathered data on caregiver-reported concerns when considering ADHD medication, demographic characteristics, and observed and desired improvements in their child's ADHD. A validated Best-Worst Scaling instrument assessed priorities among 16 concerns when considering ADHD medication. Latent class analysis identified subgroups with similar ADHD medication concerns. Differences in self-reported medication-related improvements were examined across subgroups.
RESULTS: The 184 participants (mean = 42 yrs) were primarily the biological mother, 68% white and 25% black. Their children were mostly male (73%) and using medication (81%). Overall, the most important ADHD medication concerns were the child becoming a successful adult (p < 0.0001), school behavior improvements (p < 0.0001), and better grades (p < 0.0001). Others thinking badly of the child was a significantly less important concern (p < 0.0001). Three subgroups were identified: short-term outcomes-oriented group (39%), long-term outcomes-oriented group (37%), and side effects/safety-oriented group (27%). Relative to the other 2 groups, a smaller proportion of the side effects/safety-oriented group desired these improvements (p < 0.2618).
CONCLUSION: Most caregivers prioritize short- and long-term outcomes when considering ADHD medication. However, those most concerned with long- or short-term outcomes tended to desire additional improvements in their child's ADHD.

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Mesh:

Year:  2018        PMID: 29461996      PMCID: PMC5863279          DOI: 10.1097/DBP.0000000000000530

Source DB:  PubMed          Journal:  J Dev Behav Pediatr        ISSN: 0196-206X            Impact factor:   2.225


  32 in total

1.  ADHD: clinical practice guideline for the diagnosis, evaluation, and treatment of attention-deficit/hyperactivity disorder in children and adolescents.

Authors:  Mark Wolraich; Lawrence Brown; Ronald T Brown; George DuPaul; Marian Earls; Heidi M Feldman; Theodore G Ganiats; Beth Kaplanek; Bruce Meyer; James Perrin; Karen Pierce; Michael Reiff; Martin T Stein; Susanna Visser
Journal:  Pediatrics       Date:  2011-10-16       Impact factor: 7.124

2.  Parent perspectives on the decision to initiate medication treatment of attention-deficit/hyperactivity disorder.

Authors:  Daniel J Coletti; Elizabeth Pappadopulos; Nikki J Katsiotas; Alison Berest; Peter S Jensen; Vivian Kafantaris
Journal:  J Child Adolesc Psychopharmacol       Date:  2012-04-26       Impact factor: 2.576

Review 3.  Systematic Review of Patients' and Parents' Preferences for ADHD Treatment Options and Processes of Care.

Authors:  Nicole K Schatz; Gregory A Fabiano; Charles E Cunningham; Susan dosReis; Daniel A Waschbusch; Stephanie Jerome; Kellina Lupas; Karen L Morris
Journal:  Patient       Date:  2015-12       Impact factor: 3.883

4.  Caregiver depression and medication use by youths with ADHD who receive services in the public sector.

Authors:  Laurel K Leslie; Gregory A Aarons; Rachel A Haine; Richard L Hough
Journal:  Psychiatr Serv       Date:  2007-01       Impact factor: 3.084

5.  Contrasting parents' and pediatricians' perspectives on shared decision-making in ADHD.

Authors:  Alexander G Fiks; Cayce C Hughes; Angela Gafen; James P Guevara; Frances K Barg
Journal:  Pediatrics       Date:  2010-12-20       Impact factor: 7.124

6.  A discrete choice conjoint experiment to evaluate parent preferences for treatment of young, medication naive children with ADHD.

Authors:  Daniel A Waschbusch; Charles E Cunningham; William E Pelham; Heather L Rimas; Andrew R Greiner; Elizabeth M Gnagy; James Waxmonsky; Gregory A Fabiano; Jessica A Robb; Lisa Burrows-Maclean; Mindy Scime; Martin T Hoffman
Journal:  J Clin Child Adolesc Psychol       Date:  2011

7.  Putting families in the center: family perspectives on decision making and ADHD and implications for ADHD care.

Authors:  Catherine C Davis; Milena Claudius; Lawrence A Palinkas; John B Wong; Laurel K Leslie
Journal:  J Atten Disord       Date:  2011-10-05       Impact factor: 3.256

8.  National Institute of Mental Health Multimodal Treatment Study of ADHD follow-up: changes in effectiveness and growth after the end of treatment.

Authors: 
Journal:  Pediatrics       Date:  2004-04       Impact factor: 7.124

9.  The importance of patient preferences in the measurement of health care satisfaction.

Authors:  C K Ross; C A Steward; J M Sinacore
Journal:  Med Care       Date:  1993-12       Impact factor: 2.983

Review 10.  Using Best-Worst Scaling to Investigate Preferences in Health Care.

Authors:  Kei Long Cheung; Ben F M Wijnen; Ilene L Hollin; Ellen M Janssen; John F Bridges; Silvia M A A Evers; Mickael Hiligsmann
Journal:  Pharmacoeconomics       Date:  2016-12       Impact factor: 4.981

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  2 in total

1.  To relieve pain or avoid opioid-related risk? A comparison of parents' analgesic trade-off preferences and decision-making in 2019 versus 2013 in a single U.S. pediatric hospital.

Authors:  Rachel Lenko; Terri Voepel-Lewis
Journal:  Paediatr Anaesth       Date:  2021-06-04       Impact factor: 2.129

2.  Deciphering the Diversity of Mental Models in Neurodevelopmental Disorders: Knowledge Graph Representation of Public Data Using Natural Language Processing.

Authors:  Manpreet Kaur; Jeremy Costello; Elyse Willis; Karen Kelm; Marek Z Reformat; Francois V Bolduc
Journal:  J Med Internet Res       Date:  2022-08-05       Impact factor: 7.076

  2 in total

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