Literature DB >> 31583622

Working with Children with Autism Spectrum Disorder in a Medical Setting: Insights from Certified Child Life Specialists.

Emily J Jensen1, Cheryl Geisthardt2,3, Pamela A Sarigiani1.   

Abstract

This study aimed to gain an understanding of Certified Child Life Specialists' (CCLS) experiences with and suggestions for working with children with autism spectrum disorder (ASD) in a medical setting. Using a mixed-method design, 118 CCLS completed an online survey and 16 participated in follow-up interviews. Participants believed many medical professionals, including CCLS, are not adequately prepared to work with children with ASD, negatively impacting quality of care. Participants emphasized that outcomes are best for children with ASD when parents and medical staff collaborate to meet the unique needs of each child. CCLS reported working with children with ASD can provide insights for enhancing the quality of care for all children. Participants' suggestions for training and resource development are discussed.

Entities:  

Keywords:  Autism spectrum disorder; Child life specialists; Mixed-methods; Pediatric medical care

Mesh:

Year:  2020        PMID: 31583622     DOI: 10.1007/s10803-019-04245-0

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN: 0162-3257


  19 in total

1.  Hospitalizations of children with autism increased from 1999 to 2009.

Authors:  Aaron M Nayfack; Lynne C Huffman; Heidi M Feldman; Jia Chan; Olga Saynina; Paul H Wise
Journal:  J Autism Dev Disord       Date:  2014-05

Review 2.  Managing the health care needs of adolescents with autism spectrum disorder: the parents' experience.

Authors:  Julie A Strunk; Rita Pickler; Nancy L McCain; Suzanne Ameringer; Barbara J Myers
Journal:  Fam Syst Health       Date:  2014-06-09       Impact factor: 1.950

3.  A Profile on Emergency Department Utilization in Adolescents and Young Adults with Autism Spectrum Disorders.

Authors:  Guodong Liu; Amanda M Pearl; Lan Kong; Douglas L Leslie; Michael J Murray
Journal:  J Autism Dev Disord       Date:  2017-02

4.  Children with developmental disabilities at a pediatric hospital: staff education to prevent and manage challenging behaviors.

Authors:  Norah L Johnson; Joel Lashley; Alice V Stonek; Annette Bonjour
Journal:  J Pediatr Nurs       Date:  2012-03-27       Impact factor: 2.145

5.  Autism comes to the hospital: the experiences of patients with autism spectrum disorder, their parents and health-care providers at two Canadian paediatric hospitals.

Authors:  Barbara Muskat; Priscilla Burnham Riosa; David B Nicholas; Wendy Roberts; Kevin P Stoddart; Lonnie Zwaigenbaum
Journal:  Autism       Date:  2014-05-08

6.  The health care experiences of the preschool child with autism.

Authors:  Margaret W Bultas
Journal:  J Pediatr Nurs       Date:  2011-07-08       Impact factor: 2.145

Review 7.  The medical home for children with autism spectrum disorder: an essential element whose time has come.

Authors:  Carlyn Todorow; James Connell; Renee M Turchi
Journal:  Curr Opin Pediatr       Date:  2018-04       Impact factor: 2.856

8.  Reducing Barriers to Care in the Office-Based Health Care Setting for Children With Autism.

Authors:  Margaret W Bultas; Stephen Edward McMillin; Debra H Zand
Journal:  J Pediatr Health Care       Date:  2015-10-09       Impact factor: 1.812

9.  Health Services Utilization Among Children With and Without Autism Spectrum Disorders.

Authors:  Janet R Cummings; Frances L Lynch; Kristal C Rust; Karen J Coleman; Jeanne M Madden; Ashli A Owen-Smith; Vincent M Yau; Yinge Qian; Kathryn A Pearson; Phillip M Crawford; Maria L Massolo; Virginia P Quinn; Lisa A Croen
Journal:  J Autism Dev Disord       Date:  2016-03

Review 10.  Medical Encounters for Youth With Autism Spectrum Disorder: A Comprehensive Review of Environmental Considerations and Interventions.

Authors:  Jolie Straus; Sarah Coburn; Stephanie Maskell; Jessica Pappagianopoulos; Kathryn Cantrell
Journal:  Clin Med Insights Pediatr       Date:  2019-04-29
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