Literature DB >> 29313299

Websites on Bladder Cancer: an Appropriate Source of Patient Information?

Johannes Salem1, Pia Paffenholz2, Christian Bolenz3, Melanie von Brandenstein2, Angelika Cebulla3, Axel Haferkamp4, Timur Kuru2, Cheryl T Lee5, David Pfister2, Igor Tsaur4, Hendrik Borgmann4, Axel Heidenreich2.   

Abstract

A growing number of patients search for health information online. An early investigation of websites about bladder cancer (BCa) revealed mostly incomplete and particularly inaccurate information. We analyzed the quality, readability, and popularity of the most frequented websites on BCa. An Internet search on www.google.com was performed for the term "bladder cancer." After selecting the most frequented websites for patient information, HONcode quality certification, Alexa popularity rank, and readability scores (according to US grade levels) were investigated. A 36-point checklist was used to assess the content according to the EAU guidelines on BCa, which was categorized into seven topics. The popularity of the 49 websites analyzed was average, with a median Alexa popularity rank of 41,698 (interquartile range [IQR] 7-4,671,246). The readability was rated difficult with 11 years of school education needed to understand the information. Thirteen (27%) websites were HONcode certified. Out of 343 topics (seven EAU guideline topics each on 49 websites), 79% were mentioned on the websites. Of these, 10% contained incorrect information, mostly outdated or biased, and 34% contained incomplete information. Publically provided websites mentioned more topics per website (median [IQR] 7 [5.5-7] vs. 5.5 [3.3-7]; p = 0.022) and showed less incorrect information (median [IQR] 0 [0-1] vs. 1 [0-1]; p = 0.039) than physician-provided websites. Our study revealed mostly correct but partially incomplete information on BCa websites for patients. Physicians and public organizations should strive to keep their website information up-to-date and unbiased to optimize patients' health literacy.

Entities:  

Keywords:  Bladder cancer; Guidelines; Health literacy; Internet information; New media; Patient education; Patient information; Websites

Year:  2019        PMID: 29313299     DOI: 10.1007/s13187-017-1316-2

Source DB:  PubMed          Journal:  J Cancer Educ        ISSN: 0885-8195            Impact factor:   2.037


  17 in total

1.  Testicular Cancer on the Web-an Appropriate Source of Patient Information in Concordance with the European Association of Urology Guidelines?

Authors:  Pia Paffenholz; Johannes Salem; Hendrik Borgmann; Tim Nestler; David Pfister; Christian Ruf; Igor Tsaur; Axel Haferkamp; Axel Heidenreich
Journal:  J Cancer Educ       Date:  2018-12       Impact factor: 2.037

2.  Reoperations following Robot-Assisted Radical Cystectomy: A Decade of Experience.

Authors:  Ahmed A Hussein; Zishan Hashmi; Seyedeh Dibaj; Tareq Altartir; Thomas Fiorica; Joseph Wing; Mohammad Durrani; John Binkowski; Lesley Boateng; Gregory Wilding; Khurshid A Guru
Journal:  J Urol       Date:  2015-11-06       Impact factor: 7.450

3.  EAU Guidelines on Non-Muscle-invasive Urothelial Carcinoma of the Bladder: Update 2016.

Authors:  Marko Babjuk; Andreas Böhle; Maximilian Burger; Otakar Capoun; Daniel Cohen; Eva M Compérat; Virginia Hernández; Eero Kaasinen; Joan Palou; Morgan Rouprêt; Bas W G van Rhijn; Shahrokh F Shariat; Viktor Soukup; Richard J Sylvester; Richard Zigeuner
Journal:  Eur Urol       Date:  2016-06-17       Impact factor: 20.096

4.  Readability assessment of online urology patient education materials.

Authors:  Marc Colaco; Peter F Svider; Nitin Agarwal; Jean Anderson Eloy; Imani M Jackson
Journal:  J Urol       Date:  2012-09-24       Impact factor: 7.450

5.  Readability evaluation of Internet-based patient education materials related to the anesthesiology field.

Authors:  Gildasio S De Oliveira; Michael Jung; Kirsten J Mccaffery; Robert J McCarthy; Michael S Wolf
Journal:  J Clin Anesth       Date:  2015-04-23       Impact factor: 9.452

6.  Readability assessment of internet-based consumer health information.

Authors:  Tiffany M Walsh; Teresa A Volsko
Journal:  Respir Care       Date:  2008-10       Impact factor: 2.258

Review 7.  Ethics of the Physician's Role in Health-Care Cost Control: AOA Critical Issues.

Authors:  Joseph Bosco; Richard Iorio; Thomas Barber; Chloe Barron; Arthur Caplan
Journal:  J Bone Joint Surg Am       Date:  2016-07-20       Impact factor: 5.284

8.  Prostate Cancer on the Web-Expedient Tool for Patients' Decision-Making?

Authors:  Hendrik Borgmann; Jan-Henning Wölm; Stefan Vallo; Rene Mager; Johannes Huber; Johannes Breyer; Johannes Salem; Stacy Loeb; Axel Haferkamp; Igor Tsaur
Journal:  J Cancer Educ       Date:  2017-03       Impact factor: 2.037

9.  An analysis of the readability of patient information materials for common urological conditions.

Authors:  Katie Dalziel; Michael J Leveridge; Stephen S Steele; Jason P Izard
Journal:  Can Urol Assoc J       Date:  2016 May-Jun       Impact factor: 1.862

10.  Representation of health conditions on Facebook: content analysis and evaluation of user engagement.

Authors:  Timothy M Hale; Akhilesh S Pathipati; Shiyi Zan; Kamal Jethwani
Journal:  J Med Internet Res       Date:  2014-08-04       Impact factor: 5.428

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  3 in total

1.  Non-invasive urine markers for the differentiation between RCCs and oncocytoma.

Authors:  Melanie von Brandenstein; Jan Herden; Barbara Köditz; Manuel Huerta; Tim Nestler; Axel Heidenreich; Jochen W U Fries
Journal:  J Clin Lab Anal       Date:  2021-05-07       Impact factor: 2.352

2.  A Google Trends™ Analysis of Bladder Cancer: Determining Awareness Campaign Success, and Patients' Needs in Clinical Management.

Authors:  Aykut Demirci; Berat Cem Özgür
Journal:  Asian Pac J Cancer Prev       Date:  2021-10-01

3.  Which criteria characterize a health literate health care organization? - a scoping review on organizational health literacy.

Authors:  Daniel Bremer; Izumi Klockmann; Leonie Jaß; Martin Härter; Olaf von dem Knesebeck; Daniel Lüdecke
Journal:  BMC Health Serv Res       Date:  2021-07-06       Impact factor: 2.655

  3 in total

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