Literature DB >> 28776306

Testicular Cancer on the Web-an Appropriate Source of Patient Information in Concordance with the European Association of Urology Guidelines?

Pia Paffenholz1, Johannes Salem1, Hendrik Borgmann2,3, Tim Nestler4, David Pfister1, Christian Ruf4, Igor Tsaur2, Axel Haferkamp2, Axel Heidenreich5.   

Abstract

Despite the continuous growth of the internet, little is known about the quality of online information on testicular cancer, the most common solid malignancy in young men. In our study, we analysed the quality, readability and popularity of the most popular websites on testicular cancer. Therefore, we performed a web search for the term "testicular cancer" using www.google.com . Fifty-one websites were evaluated for HONcode quality certification, Alexa Popularity Rank and readability levels. Furthermore, the websites' content on eight major topics of the current European Association of Urology Guidelines on testicular cancer was assessed. Fourteen (28%) had a HONcode quality certificate and the mean Alexa Popularity Rank of all 51 websites was 54,040 (interquartile range 6648-282,797). Websites were difficult to read requiring 9 years of US school education to properly understand the information. The websites mentioned 80% of the guideline topics on average, revealing "prognosis" (59%) and "follow-up" (57%) as underrepresented subtopics. Furthermore, 12% of all topics were displayed incorrectly, particularly due to wrong information concerning "aetiology" (42%). Sixty percent of the topics were mentioned in an incomplete fashion, with less than half of the websites displaying complete information on "staging" (47%), "diagnostic evaluation" (49%) or "disease management" (45%). In general, online health information concerning testicular cancer is mentioned correctly on most websites. However, improvement regarding readability and completeness of the given information is needed. Nevertheless, highly selected websites on testicular cancer can serve as an appropriate source of patient information.

Entities:  

Keywords:  Germ cell tumour; Health literacy; Internet; New media; Patient education; Websites

Mesh:

Year:  2018        PMID: 28776306     DOI: 10.1007/s13187-017-1249-9

Source DB:  PubMed          Journal:  J Cancer Educ        ISSN: 0885-8195            Impact factor:   2.037


  18 in total

1.  Robotic Prostatectomy on the Web: A Cross-Sectional Qualitative Assessment.

Authors:  Hendrik Borgmann; René Mager; Johannes Salem; Johannes Bründl; Frank Kunath; Christian Thomas; Axel Haferkamp; Igor Tsaur
Journal:  Clin Genitourin Cancer       Date:  2015-12-23       Impact factor: 2.872

2.  Health information quality on the internet in urological oncology: a multilingual longitudinal evaluation.

Authors:  Nathan Lawrentschuk; Robert Abouassaly; Nadia Hackett; Ryan Groll; Neil E Fleshner
Journal:  Urology       Date:  2009-09-16       Impact factor: 2.649

3.  Surveys of physicians and electronic health information.

Authors:  Bradford W Hesse; Richard P Moser; Lila J Rutten
Journal:  N Engl J Med       Date:  2010-03-04       Impact factor: 91.245

4.  Virtually he@lthy: the impact of internet use on disease experience and the doctor-patient relationship.

Authors:  Alex Broom
Journal:  Qual Health Res       Date:  2005-03

Review 5.  Which anticholinergic drug for overactive bladder symptoms in adults.

Authors:  Priya Madhuvrata; June D Cody; Gaye Ellis; G Peter Herbison; E Jean C Hay-Smith
Journal:  Cochrane Database Syst Rev       Date:  2012-01-18

6.  Readability assessment of internet-based consumer health information.

Authors:  Tiffany M Walsh; Teresa A Volsko
Journal:  Respir Care       Date:  2008-10       Impact factor: 2.258

7.  Patients' use of the Internet for pain-related medical information.

Authors:  Maaike J de Boer; Gerbrig J Versteegen; Marten van Wijhe
Journal:  Patient Educ Couns       Date:  2007-06-27

8.  Activity, content, contributors, and influencers of the twitter discussion on urologic oncology.

Authors:  Hendrik Borgmann; Stacy Loeb; Johannes Salem; Christian Thomas; Axel Haferkamp; Declan G Murphy; Igor Tsaur
Journal:  Urol Oncol       Date:  2016-03-29       Impact factor: 3.498

9.  An analysis of the readability of patient information materials for common urological conditions.

Authors:  Katie Dalziel; Michael J Leveridge; Stephen S Steele; Jason P Izard
Journal:  Can Urol Assoc J       Date:  2016 May-Jun       Impact factor: 1.862

10.  Representation of health conditions on Facebook: content analysis and evaluation of user engagement.

Authors:  Timothy M Hale; Akhilesh S Pathipati; Shiyi Zan; Kamal Jethwani
Journal:  J Med Internet Res       Date:  2014-08-04       Impact factor: 5.428

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  2 in total

1.  Websites on Bladder Cancer: an Appropriate Source of Patient Information?

Authors:  Johannes Salem; Pia Paffenholz; Christian Bolenz; Melanie von Brandenstein; Angelika Cebulla; Axel Haferkamp; Timur Kuru; Cheryl T Lee; David Pfister; Igor Tsaur; Hendrik Borgmann; Axel Heidenreich
Journal:  J Cancer Educ       Date:  2019-04       Impact factor: 2.037

2.  A reliability and content analysis of Italian language anorexia nervosa-related websites.

Authors:  Nicola Luigi Bragazzi; Giulia Prasso; Tania Simona Re; Riccardo Zerbetto; Giovanni Del Puente
Journal:  Risk Manag Healthc Policy       Date:  2019-08-01
  2 in total

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