Literature DB >> 29124502

Facilitators and Barriers for Advance Care Planning Among Ethnic and Racial Minorities in the U.S.: A Systematic Review of the Current Literature.

Michin Hong1, Eun-Hye Yi2, Kimberly J Johnson2, Margaret E Adamek2.   

Abstract

Growing evidence suggests a low engagement in advance care planning (ACP) among ethnic minorities in the U.S. The purpose of this study was to synthesize findings from prior research about ACP among ethnic minorities. An extensive literature search was conducted using multiple electronic databases. After applying inclusion criteria, 26 studies were included. Four categories of facilitators and barriers to ACP were identified: (1) Socio-demographic factors, (2) health status, literacy and experiences, (3) cultural values, and (4) spirituality. Socio-demographic factors showed inconsistent findings regarding their association with ACP engagement. Worse health status and knowledge about ACP are common facilitators across ethnic minority groups, whereas mistrust toward the health care system was a barrier only for Blacks. Collectivistic cultural values influenced ACP engagement among Latinos and Asian Americans; however, spirituality/religion played an important role among Blacks. The implications for culturally competent approaches to promote ACP and future research directions are discussed.

Keywords:  Advance care planning; Advance directives; Cultural competence; End-of-life care; Ethnic minorities; Racial minorities

Mesh:

Year:  2018        PMID: 29124502     DOI: 10.1007/s10903-017-0670-9

Source DB:  PubMed          Journal:  J Immigr Minor Health        ISSN: 1557-1912


  32 in total

1.  Glossary of terms relating to ethnicity and race: for reflection and debate.

Authors:  R Bhopal
Journal:  J Epidemiol Community Health       Date:  2004-06       Impact factor: 3.710

2.  Promoting advance directives among African Americans: a faith-based model.

Authors:  Karen Bullock
Journal:  J Palliat Med       Date:  2006-02       Impact factor: 2.947

3.  Efficacy of a Church-Based, Culturally Tailored Program to Promote Completion of Advance Directives Among Asian Americans.

Authors:  Angela Sun; Quynh Bui; Janice Y Tsoh; Ginny Gildengorin; Joanne Chan; Joyce Cheng; Ky Lai; Stephen McPhee; Tung Nguyen
Journal:  J Immigr Minor Health       Date:  2017-04

4.  Engaging Chinese American Adults in Advance Care Planning: A Community-Based, Culturally Sensitive Seminar.

Authors:  Mei Ching Lee; Katherine A Hinderer; Erika Friedmann
Journal:  J Gerontol Nurs       Date:  2015-04-17       Impact factor: 1.254

5.  Completion of advance directives among U.S. consumers.

Authors:  Jaya K Rao; Lynda A Anderson; Feng-Chang Lin; Jeffrey P Laux
Journal:  Am J Prev Med       Date:  2014-01       Impact factor: 5.043

6.  "They don't want to hear us": Hispanic elders and adult children speak about end-of-life planning.

Authors:  Irene A Gutheil; Janna C Heyman
Journal:  J Soc Work End Life Palliat Care       Date:  2006

7.  Advance care planning among Asian Americans and Native Hawaiians receiving haemodialysis.

Authors:  Merle R Kataoka-Yahiro; Francisco A Conde; Rachael S Wong; Victoria Page; Bernice Peller
Journal:  Int J Palliat Nurs       Date:  2010-01

8.  Preferences for psychiatric advance directives among Latinos: views on advance care planning for mental health.

Authors:  Richard A Van Dorn; Jeffrey W Swanson; Marvin S Swartz
Journal:  Psychiatr Serv       Date:  2009-10       Impact factor: 3.084

Review 9.  Shared decision-making for cancer care among racial and ethnic minorities: a systematic review.

Authors:  Erin L Mead; Ardith Z Doorenbos; Sara H Javid; Emily A Haozous; Lori Arviso Alvord; David R Flum; Arden M Morris
Journal:  Am J Public Health       Date:  2013-10-17       Impact factor: 9.308

10.  Racial and ethnic disparities in the use of health services: bias, preferences, or poor communication?

Authors:  Carol M Ashton; Paul Haidet; Debora A Paterniti; Tracie C Collins; Howard S Gordon; Kimberly O'Malley; Laura A Petersen; Barbara F Sharf; Maria E Suarez-Almazor; Nelda P Wray; Richard L Street
Journal:  J Gen Intern Med       Date:  2003-02       Impact factor: 5.128

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  33 in total

1.  Health Literacy Matters More Than Experience for Advance Care Planning Knowledge Among Older Adults.

Authors:  Sarah S Nouri; Deborah E Barnes; Aiesha M Volow; Ryan D McMahan; Margot Kushel; Chengshi Jin; John Boscardin; Rebecca L Sudore
Journal:  J Am Geriatr Soc       Date:  2019-08-19       Impact factor: 5.562

2.  Predictors of Advance Care Planning in Older Women: The Nurses' Health Study.

Authors:  Jae H Kang; Julie P W Bynum; Lu Zhang; Francine Grodstein; David G Stevenson
Journal:  J Am Geriatr Soc       Date:  2018-12-10       Impact factor: 5.562

Review 3.  Exploring the Uptake of Advance Care Planning in Older Adults: An Integrative Review.

Authors:  Erica Frechman; Mary S Dietrich; Rachel Lane Walden; Cathy A Maxwell
Journal:  J Pain Symptom Manage       Date:  2020-07-06       Impact factor: 3.612

4.  Transgender and gender non-conforming adult preparedness for aging: Concerns for aging, and familiarity with and engagement in planning behaviors.

Authors:  Richard S Henry; Paul B Perrin; Bethany M Coston; Tarynn M Witten
Journal:  Int J Transgend Health       Date:  2019-11-13

5.  Patient-centered and efficacious advance care planning in cancer: Protocol and key design considerations for the PEACe-compare trial.

Authors:  Judith M Resick; Robert M Arnold; Rebecca L Sudore; David Farrell; Shane Belin; Andrew D Althouse; Betty Ferrell; Bernard J Hammes; Edward Chu; Douglas B White; Kimberly J Rak; Yael Schenker
Journal:  Contemp Clin Trials       Date:  2020-07-31       Impact factor: 2.226

6.  Empowering Older Adults to Discuss Advance Care Planning During Clinical Visits: The PREPARE Randomized Trial.

Authors:  Jennifer Freytag; Richard L Street; Deborah E Barnes; Ying Shi; Aiesha M Volow; Janet K Shim; Stewart C Alexander; Rebecca L Sudore
Journal:  J Am Geriatr Soc       Date:  2020-03-10       Impact factor: 5.562

7.  Apoyo con Cariño (support with caring): RCT protocol to improve palliative care outcomes for Latinos with advanced medical illness.

Authors:  Stacy M Fischer; Sung-Joon Min; Adam Atherly; Danielle M Kline; Wendolyn S Gozansky; John Himberger; Joseph Lopez; Kathleen Lester; Regina M Fink
Journal:  Res Nurs Health       Date:  2018-10-10       Impact factor: 2.228

8.  Engaging Diverse English- and Spanish-Speaking Older Adults in Advance Care Planning: The PREPARE Randomized Clinical Trial.

Authors:  Rebecca L Sudore; Dean Schillinger; Mary T Katen; Ying Shi; W John Boscardin; Stacy Osua; Deborah E Barnes
Journal:  JAMA Intern Med       Date:  2018-12-01       Impact factor: 21.873

9.  Attitudes toward advance care planning among persons with dementia and their caregivers.

Authors:  Corinne Pettigrew; Rostislav Brichko; Betty Black; Maureen K O'Connor; Mary Guerriero Austrom; Maisha T Robinson; Allison Lindauer; Raj C Shah; Guerry M Peavy; Kayla Meyer; Frederick A Schmitt; Jennifer H Lingler; Kimiko Domoto-Reilly; Dorothy Farrar-Edwards; Marilyn Albert
Journal:  Int Psychogeriatr       Date:  2019-07-16       Impact factor: 3.878

10.  Low Skepticism and Positive Attitudes About Advance Care Planning Among African Americans: a National, Mixed Methods Cohort Study.

Authors:  Lauren Jodi Van Scoy; Michael J Green; Pamela D Witt; Cindy Bramble; Christopher Richardson; Irene Putzig; Olubukola Toyobo; Emily Wasserman; Vernon M Chinchilli; Amy Tucci; Benjamin H Levi
Journal:  J Gen Intern Med       Date:  2020-09-18       Impact factor: 5.128

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