Literature DB >> 24355673

Completion of advance directives among U.S. consumers.

Jaya K Rao1, Lynda A Anderson2, Feng-Chang Lin3, Jeffrey P Laux3.   

Abstract

BACKGROUND: Current, ongoing national surveys do not include questions about end-of-life (EOL) issues. In particular, population-based data are lacking regarding the factors associated with advance directive completion.
PURPOSE: To characterize U.S. adults who did and did not have an advance directive and examine factors associated with their completion, such as the presence of a chronic condition and regular source of health care.
METHODS: Data were analyzed in 2013 from adults aged 18 years and older who participated in the 2009 or 2010 HealthStyles Survey, a mail panel survey designed to be representative of the U.S. population. Likelihood ratio tests were used to examine the associations between advance directive completion and demographic and socioeconomic variables (education, income, employment status); presence of a chronic condition; regular source of health care; and self-reported EOL concerns or discussions. Multiple logistic regression analyses identified independent predictors related to advance directive completion.
RESULTS: Of the 7946 respondents, 26.3% had an advance directive. The most frequently reported reason for not having one was lack of awareness. Advance directive completion was associated with older age, more education, and higher income and was less frequent among non-white respondents. Respondents with advance directives also were more likely to report having a chronic disease and a regular source of care. Advance directives were less frequent among those who reported not knowing if they had an EOL concern.
CONCLUSIONS: These data indicate racial and educational disparities in advance directive completion and highlight the need for education about their role in facilitating EOL decisions. Published by American Journal of Preventive Medicine on behalf of American Journal of Preventive Medicine.

Entities:  

Mesh:

Year:  2014        PMID: 24355673      PMCID: PMC4540332          DOI: 10.1016/j.amepre.2013.09.008

Source DB:  PubMed          Journal:  Am J Prev Med        ISSN: 0749-3797            Impact factor:   5.043


  25 in total

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Journal:  N Engl J Med       Date:  2004-01-01       Impact factor: 91.245

2.  The retreat from advanced care planning.

Authors:  Mary E Tinetti
Journal:  JAMA       Date:  2012-03-07       Impact factor: 56.272

Review 3.  Enhancing patient-professional communication about end-of-life issues in life-limiting conditions: a critical review of the literature.

Authors:  Sarah Barnes; Clare Gardiner; Merryn Gott; Sheila Payne; Becky Chady; Neil Small; David Seamark; David Halpin
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4.  Deciding life and death in the courtroom. From Quinlan to Cruzan, Glucksberg, and Vacco--a brief history and analysis of constitutional protection of the 'right to die'.

Authors:  L O Gostin
Journal:  JAMA       Date:  1997-11-12       Impact factor: 56.272

5.  Persistent problems in end-of-life planning among young- and middle-aged American couples.

Authors:  Sara M Moorman; Megumi Inoue
Journal:  J Gerontol B Psychol Sci Soc Sci       Date:  2012-11-12       Impact factor: 4.077

6.  Why don't patients and physicians talk about end-of-life care? Barriers to communication for patients with acquired immunodeficiency syndrome and their primary care clinicians.

Authors:  J R Curtis; D L Patrick; E S Caldwell; A C Collier
Journal:  Arch Intern Med       Date:  2000-06-12

7.  Preferences for surrogate decision makers, informal communication, and advance directives among community-dwelling elders: results from a national study.

Authors:  F P Hopp
Journal:  Gerontologist       Date:  2000-08

8.  "South Dakota's Dying to Know": a statewide survey about end of life.

Authors:  Susan L Schrader; Margot L Nelson; Luann M Eidsness
Journal:  J Palliat Med       Date:  2009-08       Impact factor: 2.947

9.  Improving completion of advance directives in the primary care setting: a randomized controlled trial.

Authors:  Heather Heiman; David W Bates; David Fairchild; Shimon Shaykevich; Lisa Soleymani Lehmann
Journal:  Am J Med       Date:  2004-09-01       Impact factor: 4.965

10.  Using a Values Discussion Guide to facilitate communication in advance care planning.

Authors:  Michele J Karel; Jean Powell; Michael D Cantor
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  80 in total

1.  Racial and Ethnic Differences in Advance Directive Possession: Role of Demographic Factors, Religious Affiliation, and Personal Health Values in a National Survey of Older Adults.

Authors:  Ivy A Huang; John M Neuhaus; Winston Chiong
Journal:  J Palliat Med       Date:  2016-02       Impact factor: 2.947

2.  Failure of the Current Advance Care Planning Paradigm: Advocating for a Communications-Based Approach.

Authors:  Laura Vearrier
Journal:  HEC Forum       Date:  2016-12

Review 3.  Advance Care Planning and HIV Infection in the Era of Antiretroviral Therapy: A Review.

Authors:  Aroonsiri Sangarlangkarn; Jessica S Merlin; Rodney O Tucker; Amy S Kelley
Journal:  Top Antivir Med       Date:  2016 Dec-2017 Jan

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Authors:  Benjamin H Levi; Zachary Simmons; Courtney Hanna; Allyson Brothers; Erik Lehman; Elana Farace; Megan Bain; Renee Stewart; Michael J Green
Journal:  Amyotroph Lateral Scler Frontotemporal Degener       Date:  2017-03-05       Impact factor: 4.092

Review 5.  Engaging Patients With Advance Directives Using an Information Visualization Approach.

Authors:  Janet Woollen; Suzanne Bakken
Journal:  J Gerontol Nurs       Date:  2015-06-23       Impact factor: 1.254

6.  Reversing Racial Inequities at the End of Life: A Call for Health Systems to Create Culturally Competent Advance Care Planning Programs Within African American Communities.

Authors:  Randi Belisomo
Journal:  J Racial Ethn Health Disparities       Date:  2017-04-13

7.  Who Decides When a Patient Can't? Statutes on Alternate Decision Makers.

Authors:  Erin S DeMartino; David M Dudzinski; Cavan K Doyle; Beau P Sperry; Sarah E Gregory; Mark Siegler; Daniel P Sulmasy; Paul S Mueller; Daniel B Kramer
Journal:  N Engl J Med       Date:  2017-04-13       Impact factor: 91.245

8.  Health Literacy Matters More Than Experience for Advance Care Planning Knowledge Among Older Adults.

Authors:  Sarah S Nouri; Deborah E Barnes; Aiesha M Volow; Ryan D McMahan; Margot Kushel; Chengshi Jin; John Boscardin; Rebecca L Sudore
Journal:  J Am Geriatr Soc       Date:  2019-08-19       Impact factor: 5.562

9.  Prevalence of Advance Directives Among Older Adults Admitted to Intensive Care Units and Requiring Mechanical Ventilation.

Authors:  Elise M Gamertsfelder; Jennifer Burgher Seaman; Judith Tate; Praewpannarai Buddadhumaruk; Mary Beth Happ
Journal:  J Gerontol Nurs       Date:  2015-12-09       Impact factor: 1.254

10.  The Influence of Race/Ethnicity and Education on Family Ratings of the Quality of Dying in the ICU.

Authors:  Janet J Lee; Ann C Long; J Randall Curtis; Ruth A Engelberg
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