Literature DB >> 29089801

The experience of patients with cancer during diagnosis and treatment planning: a descriptive study of Canadian survey results.

A C Coronado1, K Tran1, J Chadder1, J Niu1, S Fung1, C Louzado1, R Rahal1.   

Abstract

BACKGROUND: Communication with health care providers during diagnosis and treatment planning is of special importance because it can influence a patient's emotional state, attitude, and decisions about their care. Qualitative evidence suggests that some patients experience poor communication with health care providers and have negative experiences when receiving their cancer diagnosis. Here, we use survey data from 8 provinces to present findings about the experiences of Canadian patients, specifically with respect to patient-provider communication, during the diagnosis and treatment planning phases of their cancer care.
METHODS: Data from the Ambulatory Oncology Patient Satisfaction Survey, representing 17,809 survey respondents, were obtained for the study.
RESULTS: Most respondents (92%) felt that their care provider told them of their cancer diagnosis in a sensitive manner. Most respondents (95%) also felt that they were provided with enough information about their planned cancer treatment. In contrast, more than half the respondents who had emotional concerns upon diagnosis (56%) were not referred to services that could help with their anxieties and fears. Also, 18% of respondents reported that they were not given the opportunity to discuss treatment options with a care provider, and 17% reported that their care providers did not consider their travel concerns while planning for treatment.
CONCLUSIONS: Measuring the patient experience allows for an understanding of how well the cancer control system is addressing the physical, emotional, and practical needs of patients during diagnosis and treatment planning. Although results suggest high levels of patient satisfaction with some aspects of care, quality improvement efforts are still needed to provide person-centred care.

Entities:  

Keywords:  Canadian health system; Cancer diagnosis; communication; patient experiences; treatment planning

Year:  2017        PMID: 29089801      PMCID: PMC5659155          DOI: 10.3747/co.24.3782

Source DB:  PubMed          Journal:  Curr Oncol        ISSN: 1198-0052            Impact factor:   3.677


  14 in total

Review 1.  The impact of travel on cancer patients' experiences of treatment: a literature review.

Authors:  S Payne; N Jarrett; D Jeffs
Journal:  Eur J Cancer Care (Engl)       Date:  2000-12       Impact factor: 2.520

2.  Psychological responses of patients receiving a diagnosis of cancer.

Authors:  P E Schofield; P N Butow; J F Thompson; M H N Tattersall; L J Beeney; S M Dunn
Journal:  Ann Oncol       Date:  2003-01       Impact factor: 32.976

3.  Cancer patients' views and experiences of participation in care and decision making.

Authors:  C Sainio; S Lauri; E Eriksson
Journal:  Nurs Ethics       Date:  2001-03       Impact factor: 2.874

Review 4.  Information giving and decision-making in patients with advanced cancer: a systematic review.

Authors:  Christine M Gaston; Geoffrey Mitchell
Journal:  Soc Sci Med       Date:  2005-11       Impact factor: 4.634

Review 5.  Measuring patient-centered communication in cancer care: a literature review and the development of a systematic approach.

Authors:  Lauren A McCormack; Katherine Treiman; Douglas Rupert; Pamela Williams-Piehota; Eric Nadler; Neeraj K Arora; William Lawrence; Richard L Street
Journal:  Soc Sci Med       Date:  2011-03-04       Impact factor: 4.634

6.  Travelling all over the countryside: travel-related burden and financial difficulties reported by cancer patients in New South Wales and Victoria.

Authors:  Alison Zucca; Allison Boyes; Graham Newling; Alix Hall; Afaf Girgis
Journal:  Aust J Rural Health       Date:  2011-12       Impact factor: 1.662

7.  Helpful communications during the diagnostic period: an interpretive description of patient preferences.

Authors:  S Thorne; J Oliffe; C Kim-Sing; T G Hislop; K Stajduhar; S R Harris; E-A Armstrong; V Oglov
Journal:  Eur J Cancer Care (Engl)       Date:  2010-11       Impact factor: 2.520

Review 8.  Preferred and actual participation roles during health care decision making in persons with cancer: a systematic review.

Authors:  J D Tariman; D L Berry; B Cochrane; A Doorenbos; K Schepp
Journal:  Ann Oncol       Date:  2009-11-25       Impact factor: 32.976

9.  Patient real-time and 12-month retrospective perceptions of difficult communications in the cancer diagnostic period.

Authors:  Sally Thorne; Elizabeth-Anne Armstrong; Susan R Harris; T Gregory Hislop; Charmaine Kim-Sing; Valerie Oglov; John L Oliffe; Kelli I Stajduhar
Journal:  Qual Health Res       Date:  2009-10

Review 10.  Knowledge is not power for patients: a systematic review and thematic synthesis of patient-reported barriers and facilitators to shared decision making.

Authors:  Natalie Joseph-Williams; Glyn Elwyn; Adrian Edwards
Journal:  Patient Educ Couns       Date:  2013-11-09
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  6 in total

1.  Exploring the perspectives of patients about their care experience: identifying what patients perceive are important qualities in cancer care.

Authors:  Margaret I Fitch; Andrea C Coronado; Julia C Schippke; Jennifer Chadder; Esther Green
Journal:  Support Care Cancer       Date:  2019-09-02       Impact factor: 3.603

2.  Factors influencing cancer survivors' experiences with follow-up cancer care: results from the pan-Canadian Experiences of Cancer Patients in Transition Study survey.

Authors:  Megan Delisle; Margaret Fitch; Kalki Nagaratnam; Ying Wang; Amirrtha Srikanthan
Journal:  Support Care Cancer       Date:  2022-09-20       Impact factor: 3.359

3.  The patient experience of ambulatory cancer treatment: a descriptive study.

Authors:  E Bridge; L Gotlib Conn; S Dhanju; S Singh; L Moody
Journal:  Curr Oncol       Date:  2019-08-01       Impact factor: 3.677

Review 4.  Factors influencing cancer patients' experiences of care in the USA, United Kingdom, and Canada: A systematic review.

Authors:  Saleh A Alessy; Mohammed Alhajji; Janette Rawlinson; Matthew Baker; Elizabeth A Davies
Journal:  EClinicalMedicine       Date:  2022-04-21

5.  Croatian National Cancer Patient Experience Survey.

Authors:  Sandra Karabatić; Andreja Šajnić; Sanja Pleština; Marko Jakopović; Biljana Kurtović
Journal:  Int J Environ Res Public Health       Date:  2022-07-07       Impact factor: 4.614

6.  Experiences of cancer survivors in Europe: Has anything changed? Can artificial intelligence offer a solution?

Authors:  Iman Hesso; Reem Kayyali; Andreas Charalambous; Maria Lavdaniti; Evangelia Stalika; Maria Lelegianni; Shereen Nabhani-Gebara
Journal:  Front Oncol       Date:  2022-09-14       Impact factor: 5.738

  6 in total

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