Teresa L Hagan1, Karen Schmidt2, Guyanna R Ackison3, Megan Murphy4, Jennifer R Jones5. 1. Massachusetts General Hospital/Harvard Medical School, 55 Fruit Street, Yawkey 10B, Boston, MA 02114. 2. University of Pittsburgh Clinical & Translational Science Institute. 3. University of Pittsburgh School of Nursing, 415 Victoria Building, 3500 Victoria Street, Pittsburgh, PA 15261. 4. National Ovarian Cancer Coalition, 6507 Wilkins Avenue, Suite 100, Pittsburgh, PA 15217. 5. Community PARTners Core, University of Pittsburgh Clinical & Translational Science Institute, 4200 Forbes Avenue, Forbes Tower Suite 7057, Pittsburgh, PA 15260.
Abstract
INTRODUCTION: Research results hold value for many stakeholders including researchers, patient populations, advocacy organizations, and community groups. The aim of this study is to describe our research team's systematic process to designing a dissemination strategy for a completed research study. METHODOLOGY: We organized a dissemination event to feed the results of our study to participants and stakeholders and collect feedback regarding our study. We applied the Agency for Healthcare Research and Quality's dissemination framework to guide the development of the event and collected participant feedback during the event. RESULTS: We describe our dissemination strategy along with attendees' feedback and suggestions for our research as an example of a way to design a patient- and community-focused dissemination. We explain the details of our dissemination strategy including (a) our process of reporting a large research study into a stakeholder event, (b) stakeholder feedback collected at the event, and (c) the translation of feedback into our research team's research. We also describe challenges encountered during the dissemination process and ways to handle issues such as logistics, funding, and staff. CONCLUSIONS: This analysis provides key insights and practical advice for researchers looking for innovative ways to disseminate their findings within the lay and scientific communities.
INTRODUCTION: Research results hold value for many stakeholders including researchers, patient populations, advocacy organizations, and community groups. The aim of this study is to describe our research team's systematic process to designing a dissemination strategy for a completed research study. METHODOLOGY: We organized a dissemination event to feed the results of our study to participants and stakeholders and collect feedback regarding our study. We applied the Agency for Healthcare Research and Quality's dissemination framework to guide the development of the event and collected participant feedback during the event. RESULTS: We describe our dissemination strategy along with attendees' feedback and suggestions for our research as an example of a way to design a patient- and community-focused dissemination. We explain the details of our dissemination strategy including (a) our process of reporting a large research study into a stakeholder event, (b) stakeholder feedback collected at the event, and (c) the translation of feedback into our research team's research. We also describe challenges encountered during the dissemination process and ways to handle issues such as logistics, funding, and staff. CONCLUSIONS: This analysis provides key insights and practical advice for researchers looking for innovative ways to disseminate their findings within the lay and scientific communities.
Entities:
Keywords:
Community-based participatory research; Information dissemination; Neoplasms; Quality of life; Surveys and questionnaires
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