Literature DB >> 29046041

Development and Content Validation of the Transition Readiness Inventory Item Pool for Adolescent and Young Adult Survivors of Childhood Cancer.

Lisa A Schwartz1,2, Jessica L Hamilton3, Lauren D Brumley2, Lamia P Barakat1,2, Janet A Deatrick2, Dava E Szalda1,2, Katherine B Bevans3, Carole A Tucker3, Lauren C Daniel1,4, Eliana Butler1, Anne E Kazak5,6, Wendy L Hobbie1, Jill P Ginsberg1,2, Alexandra M Psihogios1, Elizabeth Ver Hoeve1, Lisa K Tuchman7.   

Abstract

Objective: The development of the Transition Readiness Inventory (TRI) item pool for adolescent and young adult childhood cancer survivors is described, aiming to both advance transition research and provide an example of the application of NIH Patient Reported Outcomes Information System methods.
Methods: Using rigorous measurement development methods including mixed methods, patient and parent versions of the TRI item pool were created based on the Social-ecological Model of Adolescent and young adult Readiness for Transition (SMART).
Results: Each stage informed development and refinement of the item pool. Content validity ratings and cognitive interviews resulted in 81 content valid items for the patient version and 85 items for the parent version. Conclusions: TRI represents the first multi-informant, rigorously developed transition readiness item pool that comprehensively measures the social-ecological components of transition readiness. Discussion includes clinical implications, the application of TRI and the methods to develop the item pool to other populations, and next steps for further validation and refinement.
© The Author 2017. Published by Oxford University Press on behalf of the Society of Pediatric Psychology. All rights reserved. For permissions, please e-mail: journals.permissions@oup.com

Entities:  

Keywords:  adolescence; assessment; cancer; chronic illness; transition readiness

Mesh:

Year:  2017        PMID: 29046041      PMCID: PMC6251597          DOI: 10.1093/jpepsy/jsx095

Source DB:  PubMed          Journal:  J Pediatr Psychol        ISSN: 0146-8693


  32 in total

1.  Providers' perspectives and beliefs regarding transition to adult care for adolescents with sickle cell disease.

Authors:  Joseph Telfair; Leah R Alexander; Penny S Loosier; Patty L Alleman-Velez; Julie Simmons
Journal:  J Health Care Poor Underserved       Date:  2004-08

2.  The analysis and interpretation of cognitive interviews for instrument development.

Authors:  Kathleen Knafl; Janet Deatrick; Agatha Gallo; Gwynne Holcombe; Marie Bakitas; Jane Dixon; Margaret Grey
Journal:  Res Nurs Health       Date:  2007-04       Impact factor: 2.228

3.  Psychometric evaluation and calibration of health-related quality of life item banks: plans for the Patient-Reported Outcomes Measurement Information System (PROMIS).

Authors:  Bryce B Reeve; Ron D Hays; Jakob B Bjorner; Karon F Cook; Paul K Crane; Jeanne A Teresi; David Thissen; Dennis A Revicki; David J Weiss; Ronald K Hambleton; Honghu Liu; Richard Gershon; Steven P Reise; Jin-shei Lai; David Cella
Journal:  Med Care       Date:  2007-05       Impact factor: 2.983

Review 4.  Selection and use of content experts for instrument development.

Authors:  J S Grant; L L Davis
Journal:  Res Nurs Health       Date:  1997-06       Impact factor: 2.228

5.  Commentary: the patient-reported outcome measurement information system (PROMIS®) for children and youth: application to pediatric psychology.

Authors:  Christopher B Forrest; Katherine B Bevans; Carole Tucker; Anne W Riley; Ulrike Ravens-Sieberer; William Gardner; Kathleen Pajer
Journal:  J Pediatr Psychol       Date:  2012-02-23

6.  Aging and risk of severe, disabling, life-threatening, and fatal events in the childhood cancer survivor study.

Authors:  Gregory T Armstrong; Toana Kawashima; Wendy Leisenring; Kayla Stratton; Marilyn Stovall; Melissa M Hudson; Charles A Sklar; Leslie L Robison; Kevin C Oeffinger
Journal:  J Clin Oncol       Date:  2014-03-17       Impact factor: 44.544

Review 7.  Measures of readiness to transition to adult health care for youth with chronic physical health conditions: a systematic review and recommendations for measurement testing and development.

Authors:  Lisa A Schwartz; Lauren C Daniel; Lauren D Brumley; Lamia P Barakat; Kimberly M Wesley; Lisa K Tuchman
Journal:  J Pediatr Psychol       Date:  2014-06-01

Review 8.  Childhood cancer survivors: transition to adult-focused risk-based care.

Authors:  Tara O Henderson; Debra L Friedman; Anna T Meadows
Journal:  Pediatrics       Date:  2010-06-14       Impact factor: 7.124

Review 9.  Cancer survivorship practices, services, and delivery: a report from the Children's Oncology Group (COG) nursing discipline, adolescent/young adult, and late effects committees.

Authors:  Debra Eshelman-Kent; Karen E Kinahan; Wendy Hobbie; Wendy Landier; Steve Teal; Debra Friedman; Rajaram Nagarajan; David R Freyer
Journal:  J Cancer Surviv       Date:  2011-09-06       Impact factor: 4.442

10.  Medical care in long-term survivors of childhood cancer: a report from the childhood cancer survivor study.

Authors:  Paul C Nathan; Mark L Greenberg; Kirsten K Ness; Melissa M Hudson; Ann C Mertens; Martin C Mahoney; James G Gurney; Sarah S Donaldson; Wendy M Leisenring; Leslie L Robison; Kevin C Oeffinger
Journal:  J Clin Oncol       Date:  2008-09-20       Impact factor: 50.717

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  5 in total

Review 1.  Transition from pediatric to adult follow-up care in childhood cancer survivors-a systematic review.

Authors:  Maria Otth; Sibylle Denzler; Christa Koenig; Henrik Koehler; Katrin Scheinemann
Journal:  J Cancer Surviv       Date:  2020-07-16       Impact factor: 4.442

2.  Introduction to the Special Issue on Adolescent and Young Adult Health: Why We Care, How Far We Have Come, and Where We Are Going.

Authors:  Katie A Devine; Maureen Monaghan; Lisa A Schwartz
Journal:  J Pediatr Psychol       Date:  2017-10-01

3.  A Primer on Mixed Methods for Pediatric Researchers.

Authors:  Yelena P Wu; Janet A Deatrick; Elizabeth L McQuaid; Deborah Thompson
Journal:  J Pediatr Psychol       Date:  2019-09-01

4.  Development and content validation of the Healthcare Transition Outcomes Inventory for young adults with type 1 diabetes.

Authors:  Jessica Pierce; Karen Aroian; Elizabeth Schifano; Anthony Gannon; Tim Wysocki
Journal:  J Patient Rep Outcomes       Date:  2019-12-19

Review 5.  Late Effects After Haematopoietic Stem Cell Transplantation in ALL, Long-Term Follow-Up and Transition: A Step Into Adult Life.

Authors:  Tamara Diesch-Furlanetto; Melissa Gabriel; Olga Zajac-Spychala; Alessandro Cattoni; Bianca A W Hoeben; Adriana Balduzzi
Journal:  Front Pediatr       Date:  2021-11-24       Impact factor: 3.418

  5 in total

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