Lisa A Schwartz1, Lauren C Daniel2, Lauren D Brumley2, Lamia P Barakat3, Kimberly M Wesley2, Lisa K Tuchman3. 1. Division of Oncology, The Children's Hospital of Philadelphia, Department of Pediatrics, University of Pennsylvania School of Medicine, Department of Psychology, LaSalle University, Division of Adolescent and Young Adult Medicine and Center for Translational Science, Children's National Medical Center, and Department of Pediatrics, George Washington University School of Medicine and Health SciencesDivision of Oncology, The Children's Hospital of Philadelphia, Department of Pediatrics, University of Pennsylvania School of Medicine, Department of Psychology, LaSalle University, Division of Adolescent and Young Adult Medicine and Center for Translational Science, Children's National Medical Center, and Department of Pediatrics, George Washington University School of Medicine and Health Sciences Schwartzl@email.chop.edu. 2. Division of Oncology, The Children's Hospital of Philadelphia, Department of Pediatrics, University of Pennsylvania School of Medicine, Department of Psychology, LaSalle University, Division of Adolescent and Young Adult Medicine and Center for Translational Science, Children's National Medical Center, and Department of Pediatrics, George Washington University School of Medicine and Health Sciences. 3. Division of Oncology, The Children's Hospital of Philadelphia, Department of Pediatrics, University of Pennsylvania School of Medicine, Department of Psychology, LaSalle University, Division of Adolescent and Young Adult Medicine and Center for Translational Science, Children's National Medical Center, and Department of Pediatrics, George Washington University School of Medicine and Health SciencesDivision of Oncology, The Children's Hospital of Philadelphia, Department of Pediatrics, University of Pennsylvania School of Medicine, Department of Psychology, LaSalle University, Division of Adolescent and Young Adult Medicine and Center for Translational Science, Children's National Medical Center, and Department of Pediatrics, George Washington University School of Medicine and Health Sciences.
Abstract
OBJECTIVE: Review measures of readiness to transition to adult-oriented care for youth with chronic physical health conditions. METHODS: Identified measures via online searches and reference lists and reviewed methods of development, theoretical underpinnings, characteristics, and psychometrics. Measures were classified according to American Psychological Association Division 54 Evidence-Based Assessment (EBA) Task Force criteria. Strengths and weaknesses of reviewed measures were described. RESULTS: 56 measures were identified, of which 10 met inclusion criteria for this review. 6 were disease specific and 4 were generic. Some psychometric properties were reported for each; none reported predictive validity for transition outcomes. According to EBA criteria, the 10 measures met criteria for "promising" assessment. CONCLUSIONS: Measurement development in transition readiness is still an underdeveloped area. Measures require further testing and new measures are needed. Recommendations include testing measures with larger and diverse samples, ground measures in theory, test psychometrics, and involve multiple stakeholders in measure development.
OBJECTIVE: Review measures of readiness to transition to adult-oriented care for youth with chronic physical health conditions. METHODS: Identified measures via online searches and reference lists and reviewed methods of development, theoretical underpinnings, characteristics, and psychometrics. Measures were classified according to American Psychological Association Division 54 Evidence-Based Assessment (EBA) Task Force criteria. Strengths and weaknesses of reviewed measures were described. RESULTS: 56 measures were identified, of which 10 met inclusion criteria for this review. 6 were disease specific and 4 were generic. Some psychometric properties were reported for each; none reported predictive validity for transition outcomes. According to EBA criteria, the 10 measures met criteria for "promising" assessment. CONCLUSIONS: Measurement development in transition readiness is still an underdeveloped area. Measures require further testing and new measures are needed. Recommendations include testing measures with larger and diverse samples, ground measures in theory, test psychometrics, and involve multiple stakeholders in measure development.
Authors: Lisa A Schwartz; Lauren D Brumley; Lisa K Tuchman; Lamia P Barakat; Wendy L Hobbie; Jill P Ginsberg; Lauren C Daniel; Anne E Kazak; Katherine Bevans; Janet A Deatrick Journal: JAMA Pediatr Date: 2013-10 Impact factor: 16.193
Authors: Sarah D Corathers; Joyce P Yi-Frazier; Jessica C Kichler; Lisa K Gilliam; Gail Watts; Andrea Houchen; Sarah Beal Journal: Diabetes Spectr Date: 2020-02
Authors: Beeshman S Nandakumar; Joanna E Fardell; Claire E Wakefield; Christina Signorelli; Jordana K McLoone; Jane Skeen; Ann M Maguire; Richard J Cohn Journal: Support Care Cancer Date: 2018-03-02 Impact factor: 3.603
Authors: Lisa A Schwartz; Jessica L Hamilton; Lauren D Brumley; Lamia P Barakat; Janet A Deatrick; Dava E Szalda; Katherine B Bevans; Carole A Tucker; Lauren C Daniel; Eliana Butler; Anne E Kazak; Wendy L Hobbie; Jill P Ginsberg; Alexandra M Psihogios; Elizabeth Ver Hoeve; Lisa K Tuchman Journal: J Pediatr Psychol Date: 2017-10-01
Authors: Dava Szalda; Lisa Piece; Lauren Brumley; Yimei Li; Marilyn M Schapira; Monika Wasik; Wendy L Hobbie; Jill P Ginsberg; Lisa A Schwartz Journal: J Adolesc Health Date: 2016-10-27 Impact factor: 5.012