Ivana Nakarada-Kordic1, Niamh Patterson2, Jill Wrapson2, Stephen D Reay2. 1. Design for Health and Wellbeing (DHW) Lab, Auckland City Hospital, Auckland University of Technology, Level 5, Building 32, Park Rd., Auckland, 1023, New Zealand. ivana@dhwlab.com. 2. Design for Health and Wellbeing (DHW) Lab, Auckland City Hospital, Auckland University of Technology, Level 5, Building 32, Park Rd., Auckland, 1023, New Zealand.
Abstract
BACKGROUND: A tracheostomy is a surgically created opening through the anterior neck tissues and the trachea, into which a tube is inserted. Despite its influence on basic human needs such as respiration, communication and nutrition, little is known about the impact of tracheostomy on patients and their caregivers or what could be done to enable better care and quality of life (QoL) for these individuals. OBJECTIVE: The aim of this review was to better understand the current knowledge related to the experience and QoL of adults living with a tracheostomy and their caregivers so as to be able to improve these experiences. METHOD: A systematic review of the English-language, peer-reviewed literature was conducted in PubMed, Scopus, PsychINFO, Google Scholar, and CINAHL databases. Articles were eligible if they included adult patient or lay caregiver-reported experiences of tracheostomy. RESULTS: Overall, 1080 articles were identified and 17 eligible for inclusion. Fourteen articles reported on experiences of tracheostomy patients, while three focused on those of their caregivers. Studies were conducted in the home setting (n = 5), on a hospital ward (n = 4), in an intensive care unit (n = 3), in an outpatient clinic (n = 3), in a rehab facility (n = 1), and online (n = 1). Patients and their caregivers reported a range of mostly negative experiences related to the care, support, and management of a tracheostomy, speech and communication, wellbeing and QoL, disfigurement and body image, and stigma and social withdrawal. CONCLUSION: Few studies have published data on the patient and caregiver experiences with tracheostomy, especially in the community setting. There is a need to better understand these experiences in order to be able to formulate strategies and provide resources to improve the quality of care and overall QoL of patients with a tracheostomy and their caregivers in-hospital and in the community.
BACKGROUND: A tracheostomy is a surgically created opening through the anterior neck tissues and the trachea, into which a tube is inserted. Despite its influence on basic human needs such as respiration, communication and nutrition, little is known about the impact of tracheostomy on patients and their caregivers or what could be done to enable better care and quality of life (QoL) for these individuals. OBJECTIVE: The aim of this review was to better understand the current knowledge related to the experience and QoL of adults living with a tracheostomy and their caregivers so as to be able to improve these experiences. METHOD: A systematic review of the English-language, peer-reviewed literature was conducted in PubMed, Scopus, PsychINFO, Google Scholar, and CINAHL databases. Articles were eligible if they included adult patient or lay caregiver-reported experiences of tracheostomy. RESULTS: Overall, 1080 articles were identified and 17 eligible for inclusion. Fourteen articles reported on experiences of tracheostomy patients, while three focused on those of their caregivers. Studies were conducted in the home setting (n = 5), on a hospital ward (n = 4), in an intensive care unit (n = 3), in an outpatient clinic (n = 3), in a rehab facility (n = 1), and online (n = 1). Patients and their caregivers reported a range of mostly negative experiences related to the care, support, and management of a tracheostomy, speech and communication, wellbeing and QoL, disfigurement and body image, and stigma and social withdrawal. CONCLUSION: Few studies have published data on the patient and caregiver experiences with tracheostomy, especially in the community setting. There is a need to better understand these experiences in order to be able to formulate strategies and provide resources to improve the quality of care and overall QoL of patients with a tracheostomy and their caregivers in-hospital and in the community.
Authors: Gitanjali Madan; Michael E Stadler; Kim Uhrich; Cynthia Reilly; Amelia F Drake Journal: Int J Pediatr Otorhinolaryngol Date: 2011-03-16 Impact factor: 1.675
Authors: Christopher Ull; Christina Weckwerth; Uwe Hamsen; Oliver Jansen; Aileen Spieckermann; Thomas Armin Schildhauer; Robert Gaschler; Christian Waydhas Journal: Eur J Trauma Emerg Surg Date: 2022-10-13 Impact factor: 2.374
Authors: Erin F Carlton; John P Donnelly; Matthew K Hensley; Timothy T Cornell; Hallie C Prescott Journal: Crit Care Med Date: 2020-05 Impact factor: 7.598
Authors: Alexandra Norcott; Chiao-Li Chan; Linda Nyquist; Julie P Bynum; Lillian Min; Michael D Fetters; Melissa DeJonckheere Journal: BMJ Open Date: 2021-10-18 Impact factor: 2.692
Authors: Claire S Mills; Emilia Michou; Mark C Bellamy; Heidi J Siddle; Cathy A Brennan; Chris Bojke Journal: Arch Phys Med Rehabil Date: 2021-09-22 Impact factor: 3.966