Literature DB >> 19489664

Parents' perceptions of postschool years for young adults with developmental disabilities.

Margarita Bianco1, Dorothy F Garrison-Wade, Romie Tobin, Jean P Lehmann.   

Abstract

This qualitative study investigated parents' perceptions of the various roles they played in their adult children's lives during the post-high school years. Individual face-to-face interviews were conducted with 9 families of young adults with developmental disabilities. Findings indicated that families perceived the complexity of their roles as balancing between advocating for their adult children's needs while promoting independence and self-determination. The roles parents assumed as their children entered into adult life were those of collaborators, decision makers, and program evaluators, role models, trainers, mentors and instructors, and systems change agents. Parents often felt they were the safety net for their children and the back-up plan for service agencies. Parents' quotes illustrated the complexity of the roles they played as their young adult children with developmental disabilities entered adulthood.

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Year:  2009        PMID: 19489664     DOI: 10.1352/1934-9556-47.3.186

Source DB:  PubMed          Journal:  Intellect Dev Disabil        ISSN: 1934-9491


  5 in total

1.  Brief Report: What Happens When I Can No Longer Support My Autistic Relative? Worries About the Future for Family Members of Autistic Adults.

Authors:  Renske Herrema; Deborah Garland; Malcolm Osborne; Mark Freeston; Emma Honey; Jacqui Rodgers
Journal:  J Autism Dev Disord       Date:  2017-11

2.  Pulling back the curtain: Issues in conducting an intervention study with transition-aged youth with autism spectrum disorder and their families.

Authors:  Meghan M Burke; Sydney N Waitz-Kudla; Carol Rabideau; Julie Lounds Taylor; Robert M Hodapp
Journal:  Autism       Date:  2018-02-13

3.  Perceived burden and neuropsychiatric morbidities in adults with 22q11.2 deletion syndrome.

Authors:  D J Karas; G Costain; E W C Chow; A S Bassett
Journal:  J Intellect Disabil Res       Date:  2012-10-29

Review 4.  Stress and Anxiety Among Parents of Transition-Aged Children with Autism Spectrum Disorder: a Systematic Review of Interventions and Scales.

Authors:  Rumi Agarwal; Gabriella Wuyke; Utsav Sharma; Shanna L Burke; Melissa Howard; Tan Li; Mariana Sanchez; Elena Bastida
Journal:  Rev J Autism Dev Disord       Date:  2022-09-01

5.  Evaluating a Postsecondary Education Program for Students with Intellectual Disabilities: Leveraging the Parent Perspective.

Authors:  Rumi Agarwal; Laura Heron; Shanna L Burke
Journal:  J Autism Dev Disord       Date:  2021-07
  5 in total

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