Literature DB >> 28664346

Success of referral to genetic counseling after positive lynch syndrome screening test.

Robin F Irons1, Krysta M Contino2, Janice J Horte3, Brooke Levin4, Kristin D Mattie4, Margaret Wight5, Michael E Kwiatt6, Kathryn C Behling7,8, Tina B Edmonston8, Steven J McClane9.   

Abstract

PURPOSE: Lynch syndrome (LS) is a hereditary condition that increases one's risk of developing colorectal, endometrial, and other extracolonic cancers. MD Anderson Cancer Center at Cooper implemented a reflex screening protocol for DNA mismatch repair (dMMR) deficiency. Those with findings suspicious for LS were referred for genetic counseling (GC). Our goal was to assess compliance with GC and factors associated with successful follow-up.
METHODS: Immunohistochemistry (IHC) for the MMR proteins MSH2, MLH1, MSH6, and PMS2 was performed on all colorectal tumor resections from patients ≤70 years old and all stage II cancers. Tumors with loss of MLH1/PMS2 were subsequently tested for BRAF mutation or MLH1 promoter methylation to identify tumors with likely epigenetic inactivation of MLH1. Patients with loss of MLH1/PMS2 without BRAF mutations or with absence of MLH1 promoter methylation and those with loss of MSH2/MSH6 were referred to GC. Compliance with GC was assessed.
RESULTS: Between March 2014 and August 2016, 203 tumors were tested by IHC. Fifteen (7.4%) patients had abnormal MMR protein expression patterns in the absence of BRAF mutation or MLH1 promoter methylation suggestive of possible LS. GC compliance was 35.7% overall and 85.7% in those with family history of LS-associated cancers.
CONCLUSIONS: Overall, GC compliance was relatively low in our study. Interestingly, patients with a strong family history of LS-associated neoplasms were more likely to pursue GC. In the future, assessing and addressing barriers to seeking GC will provide opportunities to improve patient care through increased identification of patients with cancer predisposition syndromes.

Entities:  

Keywords:  Genetic counseling compliance; HNPCC; Lynch syndrome; Screening

Mesh:

Substances:

Year:  2017        PMID: 28664346     DOI: 10.1007/s00384-017-2849-x

Source DB:  PubMed          Journal:  Int J Colorectal Dis        ISSN: 0179-1958            Impact factor:   2.571


  9 in total

1.  Why patients do not attend for their appointments at a genetics clinic.

Authors:  L Humphreys; A G Hunter; A Zimak; A O'Brien; Y Korneluk; M Cappelli
Journal:  J Med Genet       Date:  2000-10       Impact factor: 6.318

2.  Methylation of the hMLH1 promoter correlates with lack of expression of hMLH1 in sporadic colon tumors and mismatch repair-defective human tumor cell lines.

Authors:  M F Kane; M Loda; G M Gaida; J Lipman; R Mishra; H Goldman; J M Jessup; R Kolodner
Journal:  Cancer Res       Date:  1997-03-01       Impact factor: 12.701

3.  Relevance, pathogenesis, and testing algorithm for mismatch repair-defective colorectal carcinomas: a report of the association for molecular pathology.

Authors:  William K Funkhouser; Ira M Lubin; Federico A Monzon; Barbara A Zehnbauer; James P Evans; Shuji Ogino; Jan A Nowak
Journal:  J Mol Diagn       Date:  2012-01-17       Impact factor: 5.568

4.  Screening for the Lynch syndrome (hereditary nonpolyposis colorectal cancer).

Authors:  Heather Hampel; Wendy L Frankel; Edward Martin; Mark Arnold; Karamjit Khanduja; Philip Kuebler; Hidewaki Nakagawa; Kaisa Sotamaa; Thomas W Prior; Judith Westman; Jenny Panescu; Dan Fix; Janet Lockman; Ilene Comeras; Albert de la Chapelle
Journal:  N Engl J Med       Date:  2005-05-05       Impact factor: 91.245

5.  Factors influencing patients' decisions to decline cancer genetic counseling services.

Authors:  K P Geer; M E Ropka; W F Cohn; S M Jones; S Miesfeldt
Journal:  J Genet Couns       Date:  2001-02       Impact factor: 2.537

6.  Implementation of universal microsatellite instability and immunohistochemistry screening for diagnosing lynch syndrome in a large academic medical center.

Authors:  Brandie Heald; Thomas Plesec; Xiuli Liu; Rish Pai; Deepa Patil; Jessica Moline; Richard R Sharp; Carol A Burke; Matthew F Kalady; James Church; Charis Eng
Journal:  J Clin Oncol       Date:  2013-02-11       Impact factor: 44.544

7.  ACMG technical standards and guidelines for genetic testing for inherited colorectal cancer (Lynch syndrome, familial adenomatous polyposis, and MYH-associated polyposis).

Authors:  Madhuri Hegde; Mathew Ferber; Rong Mao; Wade Samowitz; Arupa Ganguly
Journal:  Genet Med       Date:  2013-12-05       Impact factor: 8.822

Review 8.  Clinical Significance and Prognostic Relevance of Microsatellite Instability in Sporadic Colorectal Cancer Patients.

Authors:  Angelika Copija; Dariusz Waniczek; Andrzej Witkoś; Katarzyna Walkiewicz; Ewa Nowakowska-Zajdel
Journal:  Int J Mol Sci       Date:  2017-01-06       Impact factor: 5.923

9.  Revised guidelines for the clinical management of Lynch syndrome (HNPCC): recommendations by a group of European experts.

Authors:  Hans F A Vasen; Ignacio Blanco; Katja Aktan-Collan; Jessica P Gopie; Angel Alonso; Stefan Aretz; Inge Bernstein; Lucio Bertario; John Burn; Gabriel Capella; Chrystelle Colas; Christoph Engel; Ian M Frayling; Maurizio Genuardi; Karl Heinimann; Frederik J Hes; Shirley V Hodgson; John A Karagiannis; Fiona Lalloo; Annika Lindblom; Jukka-Pekka Mecklin; Pal Møller; Torben Myrhoj; Fokko M Nagengast; Yann Parc; Maurizio Ponz de Leon; Laura Renkonen-Sinisalo; Julian R Sampson; Astrid Stormorken; Rolf H Sijmons; Sabine Tejpar; Huw J W Thomas; Nils Rahner; Juul T Wijnen; Heikki Juhani Järvinen; Gabriela Möslein
Journal:  Gut       Date:  2013-02-13       Impact factor: 23.059

  9 in total
  1 in total

1.  Creation and Implementation of an Environmental Scan to Assess Cancer Genetics Services at Three Oncology Care Settings.

Authors:  Erica M Bednar; Michael T Walsh; Ellen Baker; Kimberly I Muse; Holly D Oakley; Rebekah C Krukenberg; Cara S Dresbold; Sandra B Jenkinson; Amanda L Eppolito; Kelly B Teed; Molly H Klein; Nichole A Morman; Elizabeth C Bowdish; Pauline Russ; Emaline E Wise; Julia N Cooper; Michael W Method; John W Henson; Andrew V Grainger; Banu K Arun; Karen H Lu
Journal:  J Genet Couns       Date:  2018-05-16       Impact factor: 2.537

  1 in total

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