Literature DB >> 28643371

Peer-reviewed articles on inclusive research: Do co-researchers with intellectual disabilities have a voice?

Iva Strnadová1, Jan Walmsley2.   

Abstract

BACKGROUND: Inclusive research is increasingly common in intellectual disabilities research, but ways in which voice of co-researchers with intellectual disabilities is presented remain underexplored in the literature. MATERIALS AND
METHOD: The authors conducted a literature review and analysis of peer-reviewed journal articles reporting on inclusive research. The aim was to explore the ways the voices of co-researchers with intellectual disabilities are represented in published peer-reviewed journal articles.
RESULTS: The findings indicate that there are a wide range of ways in which inclusive research projects are reported in peer-reviewed journals. However, the experiences, views and opinions of co-researchers are often either absent or very selectively reported.
CONCLUSIONS: The article concludes that although inclusive research has proliferated in the 21st century, more attention needs to be paid to the ways in which the voices of co-researchers with intellectual disabilities are heard in formal academic contexts. Guidelines for future practice are offered.
© 2017 John Wiley & Sons Ltd.

Entities:  

Keywords:  authorship; inclusive research; intellectual disabilities; voice

Mesh:

Year:  2017        PMID: 28643371     DOI: 10.1111/jar.12378

Source DB:  PubMed          Journal:  J Appl Res Intellect Disabil        ISSN: 1360-2322


  10 in total

1.  "We have been magnified for years - Now you are under the microscope!": Co-researchers with Learning Disabilities Created an Online Survey to Challenge Public Understanding of Learning Disabilities.

Authors:  Dorota Chapko; Pino Frumiento; Nalini Edwards; Lizzie Emeh; Donald Kennedy; David McNicholas; Michaela Overton; Mark Snead; Robyn Steward; Jenny M Sutton; Evie Jeffreys; Catherine Long; Jess Croll-Knight; Ben Connors; Sam Castell-Ward; David Coke; Bethany McPeake; William Renel; Chris McGinley; Anna Remington; Dora Whittuck; John Kieffer; Sarah Ewans; Mark Williams; Mick Grierson
Journal:  Proc SIGCHI Conf Hum Factor Comput Syst       Date:  2020-04-21

2.  Supporting Remote Survey Data Analysis by Co-researchers with Learning Disabilities through Inclusive and Creative Practices and Data Science Approaches.

Authors:  Dorota Chapko; Pedro Rothstein; Lizzie Emeh; Pino Frumiento; Donald Kennedy; David Mcnicholas; Ifeoma Orjiekwe; Michaela Overton; Mark Snead; Robyn Steward; Jenny Sutton; Melissa Bradshaw; Evie Jeffreys; Will Gallia; Sarah Ewans; Mark Williams; Mick Grierson
Journal:  DIS (Des Interact Syst Conf)       Date:  2021-06-28

3.  In the physical to digital transition with friends - a story of performing inclusive research together no matter what life throws at you.

Authors:  Lilly Cook; Pedro Rothstein; Lizzie Emeh; Pino Frumiento; Donald Kennedy; David McNicholas; Ifeoma Orjiekwe; Michaela Overton; Mark Snead; Robyn Steward; Jenny M Sutton; Melissa Bradshaw; Evie Jeffreys; Sue Charteris; Sarah Ewans; Mark Williams; Mick Grierson; Dorota Chapko
Journal:  Br J Learn Disabil       Date:  2021-08-02

4.  'We want to be parents like everybody else': stories of parents with learning disabilities.

Authors:  Kate Theodore; Daniel Foulds; Paul Wilshaw; Alison Colborne; Joyce Nga Yu Lee; Lisa Mallaghan; Mary Cooper; Julia Skelton
Journal:  Int J Dev Disabil       Date:  2018-06-08

5.  Inclusive approaches to developing content valid patient-reported outcome measure response scales for youth with intellectual/developmental disabilities.

Authors:  Ariel E Schwartz; Jessica M Kramer
Journal:  Br J Learn Disabil       Date:  2020-10-06

Review 6.  A review of reviews on principles, strategies, outcomes and impacts of research partnerships approaches: a first step in synthesising the research partnership literature.

Authors:  F Hoekstra; K J Mrklas; M Khan; R C McKay; M Vis-Dunbar; K M Sibley; T Nguyen; I D Graham; H L Gainforth
Journal:  Health Res Policy Syst       Date:  2020-05-25

Review 7.  Reconsidering frameworks of Alzheimer's dementia when assessing psychosocial outcomes.

Authors:  Joseph E Gaugler; Lisa J Bain; Lauren Mitchell; Jessica Finlay; Sam Fazio; Eric Jutkowitz
Journal:  Alzheimers Dement (N Y)       Date:  2019-08-17

8.  Photovoice-Towards Engaging and Empowering People with Intellectual Disabilities in Innovation.

Authors:  Sofie Wass; Mugula Chris Safari
Journal:  Life (Basel)       Date:  2020-11-05

9.  Lessons learned from participatory research to enhance client participation in long-term care research: a multiple case study.

Authors:  Aukelien Scheffelaar; Nanne Bos; Marjan de Jong; Mattanja Triemstra; Sandra van Dulmen; Katrien Luijkx
Journal:  Res Involv Engagem       Date:  2020-06-01

10.  Codesigning patient experience measures for and with children and young people with intellectual disability: a study protocol.

Authors:  Laurel Mimmo; Susan Woolfenden; Joanne Travaglia; Iva Strnadová; Maya Tokutake And Karen Phillips; Matthew And Debbie van Hoek; Reema Harrison
Journal:  BMJ Open       Date:  2021-12-06       Impact factor: 2.692

  10 in total

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