Literature DB >> 34541585

Supporting Remote Survey Data Analysis by Co-researchers with Learning Disabilities through Inclusive and Creative Practices and Data Science Approaches.

Dorota Chapko1, Pedro Rothstein1, Lizzie Emeh, Pino Frumiento, Donald Kennedy, David Mcnicholas, Ifeoma Orjiekwe, Michaela Overton, Mark Snead, Robyn Steward, Jenny Sutton, Melissa Bradshaw, Evie Jeffreys, Will Gallia, Sarah Ewans, Mark Williams2, Mick Grierson1.   

Abstract

Through a process of robust co-design, we created a bespoke accessible survey platform to explore the role of co-researchers with learning disabilities (LDs) in research design and analysis. A team of co-researchers used this system to create an online survey to challenge public understanding of LDs [3]. Here, we describe and evaluate the process of remotely co-analyzing the survey data across 30 meetings in a research team consisting of academics and non-academics with diverse abilities amid new COVID-19 lockdown challenges. Based on survey data with >1,500 responses, we first co-analyzed demographics using graphs and art & design approaches. Next, co-researchers co-analyzed the output of machine learning-based structural topic modelling (STM) applied to open-ended text responses. We derived an efficient five-steps STM co-analysis process for creative, inclusive, and critical engagement of data by co-researchers. Co-researchers observed that by trying to understand and impact public opinion, their own perspectives also changed.

Entities:  

Keywords:  Human-centered computing → Human computer interaction (HCI); Learning disability; co-design; survey; topic model

Year:  2021        PMID: 34541585      PMCID: PMC7611679          DOI: 10.1145/3461778.3462010

Source DB:  PubMed          Journal:  DIS (Des Interact Syst Conf)


  14 in total

Review 1.  Conceptualizing inclusive research with people with intellectual disability.

Authors:  Christine Bigby; Patsie Frawley; Paul Ramcharan
Journal:  J Appl Res Intellect Disabil       Date:  2013-12-04

Review 2.  The added value of inclusive research.

Authors:  Jan Walmsley; Iva Strnadová; Kelley Johnson
Journal:  J Appl Res Intellect Disabil       Date:  2017-12-12

3.  Citizen science beyond invited participation: nineteenth century amateur naturalists, epistemic autonomy, and big data approaches avant la lettre.

Authors:  Dana Mahr; Sascha Dickel
Journal:  Hist Philos Life Sci       Date:  2019-10-07       Impact factor: 1.205

4.  Understanding, attitudes and dehumanisation towards autistic people.

Authors:  Eilidh Cage; Jessica Di Monaco; Victoria Newell
Journal:  Autism       Date:  2018-11-21

5.  "We have been magnified for years - Now you are under the microscope!": Co-researchers with Learning Disabilities Created an Online Survey to Challenge Public Understanding of Learning Disabilities.

Authors:  Dorota Chapko; Pino Frumiento; Nalini Edwards; Lizzie Emeh; Donald Kennedy; David McNicholas; Michaela Overton; Mark Snead; Robyn Steward; Jenny M Sutton; Evie Jeffreys; Catherine Long; Jess Croll-Knight; Ben Connors; Sam Castell-Ward; David Coke; Bethany McPeake; William Renel; Chris McGinley; Anna Remington; Dora Whittuck; John Kieffer; Sarah Ewans; Mark Williams; Mick Grierson
Journal:  Proc SIGCHI Conf Hum Factor Comput Syst       Date:  2020-04-21

6.  Co-researching with people with learning disabilities: an experience of involvement in qualitative data analysis.

Authors:  Irene Tuffrey-Wijne; Gary Butler
Journal:  Health Expect       Date:  2009-09-08       Impact factor: 3.377

7.  Attitudes of health care professionals toward people with intellectual disability: a comparison with the general population.

Authors:  D Morin; P Valois; A G Crocker; C Robitaille; T Lopes
Journal:  J Intellect Disabil Res       Date:  2018-07-02

8.  Exploring public discourses about emerging technologies through statistical clustering of open-ended survey questions.

Authors:  Paul Stoneman; Patrick Sturgis; Nick Allum
Journal:  Public Underst Sci       Date:  2012-04-26

9.  In pursuit of rigour and accountability in participatory design.

Authors:  Christopher Frauenberger; Judith Good; Geraldine Fitzpatrick; Ole Sejer Iversen
Journal:  Int J Hum Comput Stud       Date:  2015-02       Impact factor: 3.632

10.  Making the future together: Shaping autism research through meaningful participation.

Authors:  Sue Fletcher-Watson; Jon Adams; Kabie Brook; Tony Charman; Laura Crane; James Cusack; Susan Leekam; Damian Milton; Jeremy R Parr; Elizabeth Pellicano
Journal:  Autism       Date:  2018-08-10
View more

北京卡尤迪生物科技股份有限公司 © 2022-2023.