Literature DB >> 34141305

'We want to be parents like everybody else': stories of parents with learning disabilities.

Kate Theodore1, Daniel Foulds2, Paul Wilshaw2, Alison Colborne2, Joyce Nga Yu Lee2, Lisa Mallaghan2, Mary Cooper2, Julia Skelton2.   

Abstract

OBJECTIVES: This project represents a unique collaboration between creative and research processes using an inclusive qualitative methodology.
METHOD: Semi-structured interviews with five mothers and three fathers with learning disabilities were led by learning disabled researchers, and thematic analysis conducted with input from people with learning disabilities.
RESULTS: Five main themes are presented; (1) subjective experiences of becoming parents, (2) perceptions that other people assume people with learning disabilities are incompetent parents, resulting in a need to prove worthiness, (3) experiences of services, (4) overcoming 'knock-backs' and (5) support for the rights of other parents. An additional subgroup analysis is presented: fathers feel 'left out'.
CONCLUSION: Parents felt criticized by others, who they felt questioned their competence as parents unfairly by comparison to those without learning disabilities. The collaboration between academic research and an inclusive theater group allowed dissemination of parents' stories to wider public, and professional, audiences through creative performances. © The British Society of Developmental Disabilities 2018.

Entities:  

Keywords:  inclusive research; parents with intellectual disabilities; parents with learning disabilities; qualitative research; thematic analysis

Year:  2018        PMID: 34141305      PMCID: PMC8115499          DOI: 10.1080/20473869.2018.1448233

Source DB:  PubMed          Journal:  Int J Dev Disabil        ISSN: 2047-3869


  12 in total

Review 1.  Qualitative research in health care. Assessing quality in qualitative research.

Authors:  N Mays; C Pope
Journal:  BMJ       Date:  2000-01-01

2.  The health of parents with and without intellectual impairment in the UK.

Authors:  E Emerson; G Llewellyn; C Hatton; G Hindmarsh; J Robertson; W Y N Man; S Baines
Journal:  J Intellect Disabil Res       Date:  2015-09-14

3.  Attitudes to Sexuality Questionnaire (Individuals with an Intellectual Disability): scale development and community norms.

Authors:  Monica Cuskelly; Linda Gilmore
Journal:  J Intellect Dev Disabil       Date:  2007-09

4.  Health status and health risks of the "hidden majority" of adults with intellectual disability.

Authors:  Eric Emerson
Journal:  Intellect Dev Disabil       Date:  2011-06

Review 5.  Public awareness, attitudes and beliefs regarding intellectual disability: a systematic review.

Authors:  Katrina Scior
Journal:  Res Dev Disabil       Date:  2011-07-28

6.  Peer-reviewed articles on inclusive research: Do co-researchers with intellectual disabilities have a voice?

Authors:  Iva Strnadová; Jan Walmsley
Journal:  J Appl Res Intellect Disabil       Date:  2017-06-22

7.  Prevalence, Trends and Custody Among Children of Parents with Intellectual Disabilities in Norway.

Authors:  Jan Tøssebro; Turid Midjo; Veronika Paulsen; Berit Berg
Journal:  J Appl Res Intellect Disabil       Date:  2016-11-23

8.  Becoming a mother: Supported decision-making in context.

Authors:  Rhiann Jamieson; Kate Theodore; Roman Raczka
Journal:  J Intellect Disabil       Date:  2015-09-10

9.  Mothering differently: narratives of mothers with intellectual disability whose children have been compulsorily removed.

Authors:  Rachel Mayes; Gwynnyth Llewellyn
Journal:  J Intellect Dev Disabil       Date:  2012-05-01

10.  Researcher-researched relationship in qualitative research: Shifts in positions and researcher vulnerability.

Authors:  Målfrid Råheim; Liv Heide Magnussen; Ragnhild Johanne Tveit Sekse; Åshild Lunde; Torild Jacobsen; Astrid Blystad
Journal:  Int J Qual Stud Health Well-being       Date:  2016-06-14
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