Kate Theodore 1 , Daniel Foulds 2 , Paul Wilshaw 2 , Alison Colborne 2 , Joyce Nga Yu Lee 2 , Lisa Mallaghan 2 , Mary Cooper 2 , Julia Skelton 2 . Show Affiliations »
Abstract
OBJECTIVES: This project represents a unique collaboration between creative and research processes using an inclusive qualitative methodology. METHOD: Semi-structured interviews with five mothers and three fathers with learning disabilities were led by learning disabled researchers, and thematic analysis conducted with input from people with learning disabilities. RESULTS: Five main themes are presented; (1) subjective experiences of becoming parents, (2) perceptions that other people assume people with learning disabilities are incompetent parents, resulting in a need to prove worthiness, (3) experiences of services, (4) overcoming 'knock-backs' and (5) support for the rights of other parents. An additional subgroup analysis is presented: fathers feel 'left out'. CONCLUSION: Parents felt criticized by others, who they felt questioned their competence as parents unfairly by comparison to those without learning disabilities. The collaboration between academic research and an inclusive theater group allowed dissemination of parents' stories to wider public, and professional, audiences through creative performances. © The British Society of Developmental Disabilities 2018.
OBJECTIVES: This project represents a unique collaboration between creative and research processes using an inclusive qualitative methodology. METHOD: Semi-structured interviews with five mothers and three fathers with learning disabilities were led by learning disabled researchers, and thematic analysis conducted with input from people with learning disabilities. RESULTS: Five main themes are presented; (1) subjective experiences of becoming parents, (2) perceptions that other people assume people with learning disabilities are incompetent parents, resulting in a need to prove worthiness, (3) experiences of services, (4) overcoming 'knock-backs' and (5) support for the rights of other parents. An additional subgroup analysis is presented: fathers feel 'left out'. CONCLUSION: Parents felt criticized by others, who they felt questioned their competence as parents unfairly by comparison to those without learning disabilities. The collaboration between academic research and an inclusive theater group allowed dissemination of parents' stories to wider public, and professional, audiences through creative performances. © The British Society of Developmental Disabilities 2018.
Entities: Chemical
Keywords:
inclusive research; parents with intellectual disabilities; parents with learning disabilities; qualitative research; thematic analysis
Year: 2018
PMID: 34141305 PMCID: PMC8115499 DOI: 10.1080/20473869.2018.1448233
Source DB: PubMed Journal: Int J Dev Disabil ISSN: 2047-3869