Literature DB >> 28480480

Autism in Southeast Europe: A Survey of Caregivers of Children with Autism Spectrum Disorders.

Amy M Daniels1, Ariel Como2, Sabri Hergüner3, Krasimira Kostadinova4, Jasmina Stosic5, Andy Shih6.   

Abstract

The aim of this study was to understand the diagnostic, service and lived experiences of families affected by ASD in Southeast Europe. A total of 758 caregivers from Albania, Bulgaria, Croatia and Turkey were surveyed from 2013 to 2015 about characteristics of the child with ASD; service encounters; and caregiver perceptions. The average age at first concern was 24.4 months (SD 11.8) and at diagnosis, 40.0 months (SD 19.0). Psychiatrists were the most common diagnostician; most children received some ASD-related service, most frequently speech and language therapy. Caregivers endorsed challenges in access to care and perceived stigma. Despite country differences, findings relative to age at first concern, disparities in access and service utilization, and stigma speak to common regional needs.

Entities:  

Keywords:  Caregivers; Diagnosis; Services; Southeast Europe; Stigma

Mesh：

Year:  2017        PMID： 28480480     DOI： 10.1007/s10803-017-3145-x

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN： 0162-3257


  19 in total

1.  Age at diagnosis of autism spectrum disorders.

Authors:  Maria Valicenti-McDermott; Kathryn Hottinger; Rosa Seijo; Lisa Shulman
Journal:  J Pediatr       Date:  2012-06-09       Impact factor: 4.406

2.  A comparison study of depression and quality of life in Turkish mothers of children with Down syndrome, cerebral palsy, and autism spectrum disorder.

Authors:  Ilknur Cifci Tekinarslan
Journal:  Psychol Rep       Date:  2013-02

3.  Opinions of Turkish Parents and Teachers About Safety Skills Instruction to Children with Autism Spectrum Disorders: A Preliminary Investigation.

Authors:  Nursinem Sirin; Elif Tekin-Iftar
Journal:  J Autism Dev Disord       Date:  2016-08

4.  Use of the Modified Checklist for Autism, Revised with Follow Up-Albanian to Screen for ASD in Albania.

Authors:  Laura Brennan; Deborah Fein; Ariel Como; Iris Carcani Rathwell; Chi-Ming Chen
Journal:  J Autism Dev Disord       Date:  2016-11

5.  Child's verbal ability and gender are associated with age at diagnosis in a sample of young children with ASD in Europe.

Authors:  E Salomone; T Charman; H McConachie; P Warreyn
Journal:  Child Care Health Dev       Date:  2015-05-28       Impact factor: 2.508

6.  Parents' first concerns about toddlers with autism spectrum disorder: effect of sibling status.

Authors:  Lauren Herlihy; Kelley Knoch; Bethany Vibert; Deborah Fein
Journal:  Autism       Date:  2013-11-11

7.  Use of early intervention for young children with autism spectrum disorder across Europe.

Authors:  Erica Salomone; Štěpánka Beranová; Frédérique Bonnet-Brilhault; Marlene Briciet Lauritsen; Magdalena Budisteanu; Jan Buitelaar; Ricardo Canal-Bedia; Gabriella Felhosi; Sue Fletcher-Watson; Christine Freitag; Joaquin Fuentes; Louise Gallagher; Patricia Garcia Primo; Fotinica Gliga; Marie Gomot; Jonathan Green; Mikael Heimann; Sigridur Loa Jónsdóttir; Anett Kaale; Rafal Kawa; Anneli Kylliainen; Sanne Lemcke; Silvana Markovska-Simoska; Peter B Marschik; Helen McConachie; Irma Moilanen; Filippo Muratori; Antonio Narzisi; Michele Noterdaeme; Guiomar Oliveira; Iris Oosterling; Mirjam Pijl; Nada Pop-Jordanova; Luise Poustka; Herbert Roeyers; Bernadette Rogé; Judith Sinzig; Astrid Vicente; Petra Warreyn; Tony Charman
Journal:  Autism       Date:  2015-04-27

8.  Understanding the Experience of Stigma for Parents of Children with Autism Spectrum Disorder and the Role Stigma Plays in Families' Lives.

Authors:  Sydney H Kinnear; Bruce G Link; Michelle S Ballan; Ruth L Fischbach
Journal:  J Autism Dev Disord       Date:  2016-03

9.  Timing of identification among children with an autism spectrum disorder: findings from a population-based surveillance study.

Authors:  Paul T Shattuck; Maureen Durkin; Matthew Maenner; Craig Newschaffer; David S Mandell; Lisa Wiggins; Li-Ching Lee; Catherine Rice; Ellen Giarelli; Russell Kirby; Jon Baio; Jennifer Pinto-Martin; Christopher Cuniff
Journal:  J Am Acad Child Adolesc Psychiatry       Date:  2009-05       Impact factor: 8.829

Review 10.  Global prevalence of autism and other pervasive developmental disorders.

Authors:  Mayada Elsabbagh; Gauri Divan; Yun-Joo Koh; Young Shin Kim; Shuaib Kauchali; Carlos Marcín; Cecilia Montiel-Nava; Vikram Patel; Cristiane S Paula; Chongying Wang; Mohammad Taghi Yasamy; Eric Fombonne
Journal:  Autism Res       Date:  2012-04-11       Impact factor: 5.216
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  9 in total

1.  High Depression Symptoms and Burnout Levels Among Parents of Children with Autism Spectrum Disorders: A Multi-Center, Cross-Sectional, Case-Control Study.

Authors:  Meryem Özlem Kütük; Ali Evren Tufan; Fethiye Kılıçaslan; Gülen Güler; Fatma Çelik; Ebru Altıntaş; Cem Gökçen; Mehmet Karadağ; Çiğdem Yektaş; Tuba Mutluer; Hasan Kandemir; Ahmet Büber; Zehra Topal; Ufuk Acikbas; Aslı Giray; Özgür Kütük
Journal:  J Autism Dev Disord       Date:  2021-01-18

2.  Practice Patterns for Early Screening and Evaluation for Autism Spectrum Disorder Diagnosis in Bulgaria.

Authors:  Georgi Iskrov; Georgi Vasilev; Martin Mitev; Ralitsa Nikolova; Mariya Stoykova; Rumen Stefanov
Journal:  J Autism Dev Disord       Date:  2021-03

3.  Systematic Review of Disparities and Differences in the Access and Use of Allied Health Services Amongst Children with Autism Spectrum Disorders.

Authors:  Aaron R Dallman; Jonet Artis; Linda Watson; Sarah Wright
Journal:  J Autism Dev Disord       Date:  2021-04

Review 4.  Parental experiences raising children with autism spectrum disorder in Eastern Europe: a scoping review.

Authors:  Marija Čolić; Sarah Dababnah; Nicole Garbarino; Gail Betz
Journal:  Int J Dev Disabil       Date:  2019-11-12

5.  A Video Parent-Training Program for Families of Children with Autism Spectrum Disorder in Albania.

Authors:  Yael G Dai; Lynn Brennan; Ariel Como; Jamie Hughes-Lika; Thyde Dumont-Mathieu; Iris Carcani Rathwell; Ola Minxhozi; Blerina Aliaj; Deborah A Fein
Journal:  Res Autism Spectr Disord       Date:  2018-09-10

6.  Translation and Validation of the Malay Version of the Parents' Satisfaction Scale (PSS-M) for Assessment of Caregivers' Satisfaction with Health Care Services for Children with Autism Spectrum Disorder.

Authors:  Nik Aida Nik Adib; Mohd Ismail Ibrahim; Azriani Ab Rahman; Raishan Shafini Bakar; Nor Azni Yahaya; Suria Hussin; Wan Nor Arifin
Journal:  Int J Environ Res Public Health       Date:  2018-11-04       Impact factor: 3.390

7.  Predictors of Caregivers' Satisfaction with the Management of Children with Autism Spectrum Disorder: A Study at Multiple Levels of Health Care.

Authors:  Nik Aida Nik Adib; Mohd Ismail Ibrahim; Azriani Ab Rahman; Raishan Shafini Bakar; Nor Azni Yahaya; Suria Hussin; Wan Nor Arifin Wan Mansor
Journal:  Int J Environ Res Public Health       Date:  2019-05-14       Impact factor: 3.390

8.  Service use, unmet needs, and barriers to services among adolescents and young adults with autism spectrum disorder in Poland.

Authors:  Mateusz Płatos; Ewa Pisula
Journal:  BMC Health Serv Res       Date:  2019-08-20       Impact factor: 2.655

9.  Age of diagnosis, service access, and rights of autistic individuals in Argentina: Caregivers reports of changes and similarities across time.

Authors:  Maria Cecilia Montenegro; Estefani Bernal; Sebastian Cukier; Daniel Valdez; Alexia Rattazzi; Gabriela Garrido; Analia Rosoli; Cristiane Silvestre Paula; Ricardo Garcia; Cecilia Montiel-Nava
Journal:  Front Psychiatry       Date:  2022-08-16       Impact factor: 5.435
  9 in total

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