Paul T Shattuck1, Maureen Durkin2, Matthew Maenner2, Craig Newschaffer2, David S Mandell2, Lisa Wiggins2, Li-Ching Lee2, Catherine Rice2, Ellen Giarelli2, Russell Kirby2, Jon Baio2, Jennifer Pinto-Martin2, Christopher Cuniff2. 1. Dr. Shattuck is with the Brown School of Social Work, Washington University in St. Louis; Dr. Durkin and Mr. Maenner are with the Department of Population Health Sciences, University of Wisconsin-Madison; Dr. Newschaffer is with the Department of Epidemiology and Biostatistics, Drexel University; Dr. Mandell is with the Department of Psychiatry, University of Pennsylvania School of Medicine; Drs. Giarelli and Pinto-Martin are with the School of Nursing, University of Pennsylvania; Ms. Wiggins, Dr. Rice, and Mr. Baio are with the National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention; Dr. Kirby is with the Department of Community and Family Health, University of South Florida; Dr. Lee is with the Department of Epidemiology, Johns Hopkins University. Dr. Cuniff is with the University of Arizona College of Medicine. Electronic address: pshattuck@wustl.edu. 2. Dr. Shattuck is with the Brown School of Social Work, Washington University in St. Louis; Dr. Durkin and Mr. Maenner are with the Department of Population Health Sciences, University of Wisconsin-Madison; Dr. Newschaffer is with the Department of Epidemiology and Biostatistics, Drexel University; Dr. Mandell is with the Department of Psychiatry, University of Pennsylvania School of Medicine; Drs. Giarelli and Pinto-Martin are with the School of Nursing, University of Pennsylvania; Ms. Wiggins, Dr. Rice, and Mr. Baio are with the National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention; Dr. Kirby is with the Department of Community and Family Health, University of South Florida; Dr. Lee is with the Department of Epidemiology, Johns Hopkins University. Dr. Cuniff is with the University of Arizona College of Medicine.
Abstract
OBJECTIVE: At what age are children with an autism spectrum disorder (ASD) identified by community providers? What factors influence the timing of when children are identified with ASDs? This study examined the timing of when children with ASDs are identified. METHOD: Data came from 13 sites participating in the Centers for Disease Control and Prevention's 2002 multisite ongoing autism surveillance program, the Autism and Developmental Disabilities Monitoring Network. Survival analysis was used to examine factors that influence the timing of community-based identification and diagnosis. RESULT: Data from health and education records reveal that the median age of identification was 5.7 years (SE 0.08 years). Parametric survival models revealed that several factors were associated with a younger age of identification: being male, having an IQ of 70 or lower, and having experienced developmental regression. Significant differences in the age of identification among the 13 sites were also discovered. CONCLUSIONS: The large gap between the age at which children can be identified and when they actually are identified suggests a critical need for further research, innovation, and improvement in this area of clinical practice.
OBJECTIVE: At what age are children with an autism spectrum disorder (ASD) identified by community providers? What factors influence the timing of when children are identified with ASDs? This study examined the timing of when children with ASDs are identified. METHOD: Data came from 13 sites participating in the Centers for Disease Control and Prevention's 2002 multisite ongoing autism surveillance program, the Autism and Developmental Disabilities Monitoring Network. Survival analysis was used to examine factors that influence the timing of community-based identification and diagnosis. RESULT: Data from health and education records reveal that the median age of identification was 5.7 years (SE 0.08 years). Parametric survival models revealed that several factors were associated with a younger age of identification: being male, having an IQ of 70 or lower, and having experienced developmental regression. Significant differences in the age of identification among the 13 sites were also discovered. CONCLUSIONS: The large gap between the age at which children can be identified and when they actually are identified suggests a critical need for further research, innovation, and improvement in this area of clinical practice.
Authors: Alice S Carter; David O Black; Sonia Tewani; Christine E Connolly; Mary Beth Kadlec; Helen Tager-Flusberg Journal: J Autism Dev Disord Date: 2007-01-10
Authors: David S Mandell; John Listerud; Susan E Levy; Jennifer A Pinto-Martin Journal: J Am Acad Child Adolesc Psychiatry Date: 2002-12 Impact factor: 8.829
Authors: Laura A Schieve; Catherine Rice; Owen Devine; Matthew J Maenner; Li-Ching Lee; Robert Fitzgerald; Martha S Wingate; Diana Schendel; Sydney Pettygrove; Kim van Naarden Braun; Maureen Durkin Journal: Ann Epidemiol Date: 2011-10-13 Impact factor: 3.797
Authors: Sarah L Logan; Laura Carpenter; R Scott Leslie; Elizabeth Garrett-Mayer; Kelly J Hunt; Jane Charles; Joyce S Nicholas Journal: J Child Adolesc Psychopharmacol Date: 2015-04-28 Impact factor: 2.576
Authors: Matthew J Maenner; Laura A Schieve; Catherine E Rice; Christopher Cunniff; Ellen Giarelli; Russell S Kirby; Li-Ching Lee; Joyce S Nicholas; Martha S Wingate; Maureen S Durkin Journal: J Am Acad Child Adolesc Psychiatry Date: 2013-04 Impact factor: 8.829