Literature DB >> 28477670

Personalized Decision Making: Practical Recommendations for Antenatal Counseling for Fragile Neonates.

Marlyse F Haward1, Nathalie Gaucher2, Antoine Payot3, Kate Robson4, Annie Janvier5.   

Abstract

Emphasis has been placed on engaging parents in processes of shared decision making for delivery room management decisions of critically ill neonates whose outcomes are uncertain and unpredictable. The goal of antenatal consultation should rather be to adapt to parental needs and empower them through a personalized decision-making process. This can be done by acknowledging individuality and diversity while respecting the best interests of neonates. The goal is for parents to feel like they have agency and ability and are good parents, before birth, at birth, and after, either in the NICU or until the death of their child.
Copyright © 2017 Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Antenatal consultation; Ethics; NICU; Personalized decision making limit of viability; Prematurity; Shared decision making palliative care

Mesh:

Year:  2017        PMID: 28477670     DOI: 10.1016/j.clp.2017.01.006

Source DB:  PubMed          Journal:  Clin Perinatol        ISSN: 0095-5108            Impact factor:   3.430


  10 in total

1.  Communication between neonatologists and parents when prognosis is uncertain.

Authors:  Laura L Drach; Debra A Hansen; Tracy M King; Erica M S Sibinga
Journal:  J Perinatol       Date:  2020-05-07       Impact factor: 2.521

2.  Evaluating the Use of a Decision Aid for Parents Facing Extremely Premature Delivery: A Randomized Trial.

Authors:  Úrsula Guillén; Amy Mackley; Naomi Laventhal; Stephanie Kukora; Lori Christ; Matthew Derrick; Jennifer Batza; Sarvin Ghavam; Haresh Kirpalani
Journal:  J Pediatr       Date:  2019-04-02       Impact factor: 4.406

3.  Decision making at extreme prematurity: Innovation in clinician education.

Authors:  Anne Sullivan; Christy L Cummings
Journal:  Semin Perinatol       Date:  2021-11-09       Impact factor: 3.311

4.  Optimism bias in understanding neonatal prognoses.

Authors:  Babina Nayak; Jee-Young Moon; Mimi Kim; Baruch Fischhoff; Marlyse F Haward
Journal:  J Perinatol       Date:  2020-08-10       Impact factor: 2.521

Review 5.  Historical Perspectives: Shared Decision Making in the NICU.

Authors:  Anne Sullivan; Christy Cummings
Journal:  Neoreviews       Date:  2020-04

6.  Exploring implicit bias in the perceived consequences of prematurity amongst health care providers in North Queensland - a constructivist grounded theory study.

Authors:  Susan Ireland; Robin Ray; Sarah Larkins; Lynn Woodward
Journal:  BMC Pregnancy Childbirth       Date:  2021-01-13       Impact factor: 3.007

7.  Digital decision aid for prenatal counseling in imminent extreme premature labor: development and pilot testing.

Authors:  Josephus F M van den Heuvel; Marije Hogeveen; Margo Lutke Holzik; Arno F J van Heijst; Mireille N Bekker; Rosa Geurtzen
Journal:  BMC Med Inform Decis Mak       Date:  2022-01-06       Impact factor: 2.796

8.  Individualised decision making: interpretation of risk for extremely preterm infants-a survey of UK neonatal professionals.

Authors:  Katherine Wood; Lydia Mietta Di Stefano; Helen Mactier; Sarah Elizabeth Bates; Dominic Wilkinson
Journal:  Arch Dis Child Fetal Neonatal Ed       Date:  2021-08-19       Impact factor: 5.747

9.  Discussing brain magnetic resonance imaging results for neonates with hypoxic-ischemic encephalopathy treated with hypothermia: A challenge for clinicians and parents.

Authors:  Ariel Cascio; Amaryllis Ferrand; Eric Racine; Marie St-Hilaire; Priscille-Nice Sanon; Andreea Gorgos; Pia Wintermark
Journal:  eNeurologicalSci       Date:  2022-09-11

Review 10.  Ethical Issues around Death and Withdrawal of Life Support in Neonatal Intensive Care.

Authors:  Stuti Pant
Journal:  Indian J Pediatr       Date:  2021-06-18       Impact factor: 1.967

  10 in total

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