Lee Ellington1, Kristin G Cloyes1, Jiayun Xu1, Lanell Bellury2, Patricia H Berry3, Maija Reblin4, Margaret F Clayton1. 1. College of Nursing,University of Utah,Salt Lake City,Utah,USA. 2. Georgia Baptist College of Nursing,Mercer University,Atlanta,Georgia,USA. 3. Hartford Center of Gerontological Excellence,Oregon Health and Science University,Portland,Oregon,USA. 4. Department of Health Outcomes and Behavior,Moffitt Cancer Center,Tampa,Florida,USA.
Abstract
ABSTRACTObjective:Our intention was to describe and compare the perspectives of national hospice thought leaders, hospice nurses, and former family caregivers on factors that promote or threaten family caregiver perceptions of support. METHOD: Nationally recognized hospice thought leaders (n = 11), hospice nurses (n = 13), and former family caregivers (n = 14) participated. Interviews and focus groups were audiotaped and transcribed. Data were coded inductively, and codes were hierarchically grouped by topic. Emergent categories were summarized descriptively and compared across groups. RESULTS: Four categories linked responses from the three participant groups (95%, 366/384 codes): (1) essentials of skilled communication (30.6%), (2) importance of building authentic relationships (28%), (3) value of expert teaching (22.4%), and (4) critical role of teamwork (18.3%). The thought leaders emphasized communication (44.6%), caregivers stressed expert teaching (51%), and nurses highlighted teamwork (35.8%). Nurses discussed teamwork significantly more than caregivers (z = 2.2786), thought leaders discussed communication more than caregivers (z = 2.8551), and caregivers discussed expert teaching more than thought leaders (z = 2.1693) and nurses (z = 2.4718; all values of p < 0.05). SIGNIFICANCE OF RESULTS: Our findings suggest differences in priorities for caregiver support across family caregivers, hospice nurses, and thought leaders. Hospice teams may benefit from further education and training to help cross the schism of family-centered hospice care as a clinical ideal to one where hospice team members can fully support and empower family caregivers as a hospice team member.
ABSTRACTObjective:Our intention was to describe and compare the perspectives of national hospice thought leaders, hospice nurses, and former family caregivers on factors that promote or threaten family caregiver perceptions of support. METHOD: Nationally recognized hospice thought leaders (n = 11), hospice nurses (n = 13), and former family caregivers (n = 14) participated. Interviews and focus groups were audiotaped and transcribed. Data were coded inductively, and codes were hierarchically grouped by topic. Emergent categories were summarized descriptively and compared across groups. RESULTS: Four categories linked responses from the three participant groups (95%, 366/384 codes): (1) essentials of skilled communication (30.6%), (2) importance of building authentic relationships (28%), (3) value of expert teaching (22.4%), and (4) critical role of teamwork (18.3%). The thought leaders emphasized communication (44.6%), caregivers stressed expert teaching (51%), and nurses highlighted teamwork (35.8%). Nurses discussed teamwork significantly more than caregivers (z = 2.2786), thought leaders discussed communication more than caregivers (z = 2.8551), and caregivers discussed expert teaching more than thought leaders (z = 2.1693) and nurses (z = 2.4718; all values of p < 0.05). SIGNIFICANCE OF RESULTS: Our findings suggest differences in priorities for caregiver support across family caregivers, hospice nurses, and thought leaders. Hospice teams may benefit from further education and training to help cross the schism of family-centered hospice care as a clinical ideal to one where hospice team members can fully support and empower family caregivers as a hospice team member.
Authors: Stephen H Taplin; Sallie Weaver; Eduardo Salas; Veronica Chollette; Heather M Edwards; Suanna S Bruinooge; Michael P Kosty Journal: J Oncol Pract Date: 2015-04-14 Impact factor: 3.840
Authors: Jean Kutner; Kristin M Kilbourn; Allison Costenaro; Courtney A Lee; Carolyn Nowels; Jenny L Vancura; Derek Anderson; Tarah Ellis Keech Journal: J Palliat Med Date: 2009-12 Impact factor: 2.947
Authors: David L Albright; Karla Washington; Debra Parker-Oliver; Alexandria Lewis; Robin L Kruse; George Demiris Journal: J Pain Symptom Manage Date: 2015-11-03 Impact factor: 3.612
Authors: Sang Min Park; Young Jin Kim; Samyong Kim; Jong Soo Choi; Ho-Yeong Lim; Youn Seon Choi; Young Seon Hong; Si-Young Kim; Dae Seog Heo; Ki Moon Kang; Hyun Sik Jeong; Chang Geol Lee; Do Ho Moon; Jin-Young Choi; In Sik Kong; Young Ho Yun Journal: Support Care Cancer Date: 2009-05-31 Impact factor: 3.603
Authors: Debra Parker Oliver; Karla Washington; George Demiris; Audrey Wallace; Marc R Propst; Aisha M Uraizee; Kevin Craig; Margaret F Clayton; Maija Reblin; Lee Ellington Journal: J Pain Symptom Manage Date: 2017-11-09 Impact factor: 3.612
Authors: Veerawat Phongtankuel; Ariel Shalev; Ronald D Adelman; Richard Dewald; Ritchell Dignam; Rosemary Baughn; Holly G Prigerson; Jeanne Teresi; Sara J Czaja; M Carrington Reid Journal: Am J Hosp Palliat Care Date: 2018-06-03 Impact factor: 2.500
Authors: Jennifer M Reckrey; Katherine A Ornstein; Karen McKendrick; Emma K Tsui; R Sean Morrison; Melissa Aldridge Journal: J Pain Symptom Manage Date: 2021-12-23 Impact factor: 3.612
Authors: Ru-Yu Huang; Ting-Ting Lee; Yi-Hsien Lin; Chieh-Yu Liu; Hsiu-Chun Wu; Shu-He Huang Journal: Int J Environ Res Public Health Date: 2022-07-01 Impact factor: 4.614