Literature DB >> 28439179

Big Data Science: Opportunities and Challenges to Address Minority Health and Health Disparities in the 21st Century.

Xinzhi Zhang1, Eliseo J Pérez-Stable1, Philip E Bourne2, Emmanuel Peprah3, O Kenrik Duru4, Nancy Breen1, David Berrigan5, Fred Wood6, James S Jackson7, David W S Wong8, Joshua Denny9.   

Abstract

Addressing minority health and health disparities has been a missing piece of the puzzle in Big Data science. This article focuses on three priority opportunities that Big Data science may offer to the reduction of health and health care disparities. One opportunity is to incorporate standardized information on demographic and social determinants in electronic health records in order to target ways to improve quality of care for the most disadvantaged populations over time. A second opportunity is to enhance public health surveillance by linking geographical variables and social determinants of health for geographically defined populations to clinical data and health outcomes. Third and most importantly, Big Data science may lead to a better understanding of the etiology of health disparities and understanding of minority health in order to guide intervention development. However, the promise of Big Data needs to be considered in light of significant challenges that threaten to widen health disparities. Care must be taken to incorporate diverse populations to realize the potential benefits. Specific recommendations include investing in data collection on small sample populations, building a diverse workforce pipeline for data science, actively seeking to reduce digital divides, developing novel ways to assure digital data privacy for small populations, and promoting widespread data sharing to benefit under-resourced minority-serving institutions and minority researchers. With deliberate efforts, Big Data presents a dramatic opportunity for reducing health disparities but without active engagement, it risks further widening them.

Keywords:  Big Data; Health Disparities; Health Inequities

Mesh:

Year:  2017        PMID: 28439179      PMCID: PMC5398183          DOI: 10.18865/ed.27.2.95

Source DB:  PubMed          Journal:  Ethn Dis        ISSN: 1049-510X            Impact factor:   1.847


  65 in total

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2.  The FDA's sentinel initiative--A comprehensive approach to medical product surveillance.

Authors:  R Ball; M Robb; S A Anderson; G Dal Pan
Journal:  Clin Pharmacol Ther       Date:  2016-01-12       Impact factor: 6.875

Review 3.  Big Data and Health Economics: Strengths, Weaknesses, Opportunities and Threats.

Authors:  Brendan Collins
Journal:  Pharmacoeconomics       Date:  2016-02       Impact factor: 4.981

4.  The Hawaii clopidogrel lawsuit: the possible effect on clinical laboratory testing.

Authors:  Alan Hb Wu; Marquitta J White; Sam Oh; Esteban Burchard
Journal:  Per Med       Date:  2015-06       Impact factor: 2.512

5.  Relational machine learning for electronic health record-driven phenotyping.

Authors:  Peggy L Peissig; Vitor Santos Costa; Michael D Caldwell; Carla Rottscheit; Richard L Berg; Eneida A Mendonca; David Page
Journal:  J Biomed Inform       Date:  2014-07-15       Impact factor: 6.317

6.  Opinion: Big data biomedicine offers big higher education opportunities.

Authors:  John Darrell Van Horn
Journal:  Proc Natl Acad Sci U S A       Date:  2016-06-07       Impact factor: 11.205

7.  Naïve Electronic Health Record phenotype identification for Rheumatoid arthritis.

Authors:  Robert J Carroll; Anne E Eyler; Joshua C Denny
Journal:  AMIA Annu Symp Proc       Date:  2011-10-22

8.  Comorbidity clusters in autism spectrum disorders: an electronic health record time-series analysis.

Authors:  Finale Doshi-Velez; Yaorong Ge; Isaac Kohane
Journal:  Pediatrics       Date:  2013-12-09       Impact factor: 7.124

9.  Adoption Factors of the Electronic Health Record: A Systematic Review.

Authors:  Clemens Scott Kruse; Krysta Kothman; Keshia Anerobi; Lillian Abanaka
Journal:  JMIR Med Inform       Date:  2016-06-01

Review 10.  Big Data Application in Biomedical Research and Health Care: A Literature Review.

Authors:  Jake Luo; Min Wu; Deepika Gopukumar; Yiqing Zhao
Journal:  Biomed Inform Insights       Date:  2016-01-19
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  35 in total

1.  The Research Centers in Minority Institutions (RCMI) Translational Research Network: Building and Sustaining Capacity for Multi-Site Basic Biomedical, Clinical and Behavioral Research.

Authors:  Elizabeth O Ofili; Paul B Tchounwou; Emma Fernandez-Repollet; Richard Yanagihara; Tabia H Akintobi; Jae E Lee; Mohamad Malouhi; Solomon T Garner; Traci T Hayes; Almelida R Baker; Andrew L Dent; Muna Abdelrahim; Latrice Rollins; Sandra P Chang; Angela Sy; Brenda Y Hernandez; Pamela L Bullard; Richard J Noel; Bruce Shiramizu; Jerris R Hedges; Marla J Berry; Vincent C Bond; Maria F Lima; Noreen Mokuau; Robert A Kirken; Marcia Cruz-Correa; Daniel F Sarpong; Jaydutt Vadgama; Clayton Yates; Shafiq A Kahn; Karam F Soliman; George Perry; Mark Pezzano; Carlos A Luciano; M Edwina Barnett; Adebayo Oyekan; Deepak Kumar; Keith C Norris
Journal:  Ethn Dis       Date:  2019-02-21       Impact factor: 1.847

2.  Life Course Approaches to the Causes of Health Disparities.

Authors:  Nancy L Jones; Stephen E Gilman; Tina L Cheng; Stacy S Drury; Carl V Hill; Arline T Geronimus
Journal:  Am J Public Health       Date:  2019-01       Impact factor: 9.308

3.  Translational Health Disparities Research in a Data-Rich World.

Authors:  Nancy Breen; James S Jackson; Frederick Wood; David W S Wong; Xinzhi Zhang
Journal:  Am J Public Health       Date:  2019-01       Impact factor: 9.308

4.  Precision Medicine Approaches to Health Disparities Research.

Authors:  Derek M Griffith
Journal:  Ethn Dis       Date:  2020-04-02       Impact factor: 1.847

5.  Role of Health Information Technology in Addressing Health Disparities: Patient, Clinician, and System Perspectives.

Authors:  Xinzhi Zhang; Benyam Hailu; Derrick C Tabor; Rachel Gold; Michael H Sayre; Ida Sim; Beda Jean-Francois; Cheryl A Casnoff; Theresa Cullen; Vincent A Thomas; Ligia Artiles; Kesi Williams; Phuong-Tu Le; Courtney F Aklin; Regina James
Journal:  Med Care       Date:  2019-06       Impact factor: 2.983

6.  Patient generated health data use in clinical practice: A systematic review.

Authors:  George Demiris; Sarah J Iribarren; Katherine Sward; Solim Lee; Rumei Yang
Journal:  Nurs Outlook       Date:  2019-04-26       Impact factor: 3.250

Review 7.  Disparities in Cardio-oncology: Effects On Outcomes and Opportunities for Improvement.

Authors:  Javaria Ahmad; Anjani Muthyala; Ashish Kumar; Sourbha S Dani; Sarju Ganatra
Journal:  Curr Cardiol Rep       Date:  2022-06-27       Impact factor: 3.955

8.  Enhancing diversity to reduce health information disparities and build an evidence base for genomic medicine.

Authors:  Lucia A Hindorff; Vence L Bonham; Lucila Ohno-Machado
Journal:  Per Med       Date:  2018-09-13       Impact factor: 2.512

Review 9.  Best Practices in Large Database Clinical Epidemiology Research in Hepatology: Barriers and Opportunities.

Authors:  Nadim Mahmud; David S Goldberg; Therese Bittermann
Journal:  Liver Transpl       Date:  2021-08-07       Impact factor: 5.799

Review 10.  Routine Health Information Systems in the European Context: A Systematic Review of Systematic Reviews.

Authors:  Francesc Saigí-Rubió; José Juan Pereyra-Rodríguez; Joan Torrent-Sellens; Hans Eguia; Natasha Azzopardi-Muscat; David Novillo-Ortiz
Journal:  Int J Environ Res Public Health       Date:  2021-04-27       Impact factor: 3.390

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