Clifton O Bingham1, Vanessa K Noonan2, Claudine Auger3, Debbie E Feldman4, Sara Ahmed5, Susan J Bartlett6. 1. Johns Hopkins Division of Rheumatology, 5200 Eastern Avenue, Mason F. Lord Bldg, Suite 4100, Baltimore, MD 21224, USA. Electronic address: clifton.bingham@jhmi.edu. 2. Rick Hansen Institute, Blusson Spinal Cord Centre, 818 West 10th Avenue, Vancouver, British Columbia, Canada V5Z 1M9. 3. Center for Interdisciplinary Research in Rehabilitation of Greater Montreal, CRLB, 2275 Laurier East, Montréal, Québec, Canada H2H 2N8. 4. Direction de la Santé Publique, Montréal, 1301 Sherbrooke East, Montreal, Québec, Canada H2L 1M3. 5. Department of Medicine, McGill University/McGill University Health Center (RVH), 687 Pine Avenue West, Ross Pavilion R4.29, Montreal, Québec, Canada H3A 1A1; School of Physical and Occupational Therapy, McGill University, 3654 Prom Sir-William-Osler, Montreal, Québec, Canada H3G 1Y5; Centre de recherche interdisciplinaire en réadaptation (CRIR), 2275 Laurier Ave E, Montreal, Quebec, Canada H2H 2N8. 6. Johns Hopkins Division of Rheumatology, 5200 Eastern Avenue, Mason F. Lord Bldg, Suite 4100, Baltimore, MD 21224, USA; Department of Medicine, McGill University/McGill University Health Center (RVH), 687 Pine Avenue West, Ross Pavilion R4.29, Montreal, Québec, Canada H3A 1A1.
Abstract
BACKGROUND: Providing patient-centered health care requires that patient needs, preferences, and valued outcomes are more fully integrated into all decisions. Patient-reported outcome (PRO) measures provide unique information from the patient perspective on overall health, symptoms, burden, and treatment response. OBJECTIVE: We sought to describe applications of PROs in clinical settings and considerations for implementation from the perspectives of PRO researchers, clinicians, administrators, policy makers, and patients attending a multidisciplinary meeting. DISCUSSION: Clinical applications of PROs include individual level use for medical decision making and aggregate use for comparative effectiveness research, program evaluation, quality improvement, and performance assessments. Considerations of feasibility on workflow impact and patient burden, display of results, and administration frequency are important. PROs with strong psychometric properties, actionable thresholds, and interpretable results should be selected. We provide current exemplars of PRO use in various clinical applications, initial lessons learned, and highlight conceptual, logistical, and consequential considerations of PRO data collection. A research agenda is proposed to address critical knowledge gaps. In conclusion, PROs can be used in clinical settings to support patient-centered care. This requires an assessment of feasibility in the intended setting of use, measurement considerations, and process measures to optimize integration and use.
BACKGROUND: Providing patient-centered health care requires that patient needs, preferences, and valued outcomes are more fully integrated into all decisions. Patient-reported outcome (PRO) measures provide unique information from the patient perspective on overall health, symptoms, burden, and treatment response. OBJECTIVE: We sought to describe applications of PROs in clinical settings and considerations for implementation from the perspectives of PRO researchers, clinicians, administrators, policy makers, and patients attending a multidisciplinary meeting. DISCUSSION: Clinical applications of PROs include individual level use for medical decision making and aggregate use for comparative effectiveness research, program evaluation, quality improvement, and performance assessments. Considerations of feasibility on workflow impact and patient burden, display of results, and administration frequency are important. PROs with strong psychometric properties, actionable thresholds, and interpretable results should be selected. We provide current exemplars of PRO use in various clinical applications, initial lessons learned, and highlight conceptual, logistical, and consequential considerations of PRO data collection. A research agenda is proposed to address critical knowledge gaps. In conclusion, PROs can be used in clinical settings to support patient-centered care. This requires an assessment of feasibility in the intended setting of use, measurement considerations, and process measures to optimize integration and use.
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