Literature DB >> 31420754

Can the Routine Use of Patient-Reported Outcome Measures Improve the Delivery of Person-Centered Diabetes Care? A Review of Recent Developments and a Case Study.

Soren E Skovlund1,2, T H Lichtenberg3, D Hessler4, N Ejskjaer5,6.   

Abstract

PURPOSE OF REVIEW: In recent years, the recommendation for and use of patient-reported outcome measures (PROMs) in routine diabetes care has significantly increased. We review recent evidence and highlight key opportunities and challenges related to the active clinical use of PROMs to support person-centered diabetes care and focus areas for future research in the area. RECENT
FINDINGS: Recent pragmatic studies support that integration of multi-dimensional PROMs for diabetes in clinical care as part of a care improvement strategy can be acceptable for and valued by people with diabetes (PWD) and healthcare professionals (HCPs) and may improve multiple aspects of quality of care, including screening, medical care monitoring and decision support, individualization of self-management support and goal-setting, and broader benefits related to active patient participation and person-centred diabetes care. We identify multiple intervention, individual, and care setting characteristics, which influence acceptability, feasibility, implementation, and effectiveness of PROMs in routine care. Recent clinical PROM studies highlight the value of mixed methods research and systematic involvement of PWD, clinicians, and other stakeholders in the design and implementation of questionnaires for patient input in routine diabetes care. We identified a new significant trend towards participatory development of multi-dimensional PROMs with the aim of IT-enabled integration into routine diabetes care to facilitate multiple components of person-centered diabetes care and better clinical, quality of life, and cost outcomes. While results from large-scale randomized controlled studies are still limited, a growing number of pragmatic implementation studies support that user-centric PROM interventions have the potential to facilitate significant improvements in care for PWD.

Entities:  

Keywords:  Collaborative diabetes care; Health-related quality of life; Patient-reported outcomes; Person-centered diabetes care; Psychosocial diabetes care; Value-based healthcare

Mesh:

Year:  2019        PMID: 31420754     DOI: 10.1007/s11892-019-1190-x

Source DB:  PubMed          Journal:  Curr Diab Rep        ISSN: 1534-4827            Impact factor:   4.810


  88 in total

1.  The World Health Organization's WHOQOL-BREF quality of life assessment: psychometric properties and results of the international field trial. A report from the WHOQOL group.

Authors:  S M Skevington; M Lotfy; K A O'Connell
Journal:  Qual Life Res       Date:  2004-03       Impact factor: 4.147

2.  Use of the Patient Assessment of Chronic Illness Care (PACIC) with diabetic patients: relationship to patient characteristics, receipt of care, and self-management.

Authors:  Russell E Glasgow; Holly Whitesides; Candace C Nelson; Diane K King
Journal:  Diabetes Care       Date:  2005-11       Impact factor: 19.112

3.  Validation and utility of a self-report version of PRIME-MD: the PHQ primary care study. Primary Care Evaluation of Mental Disorders. Patient Health Questionnaire.

Authors:  R L Spitzer; K Kroenke; J B Williams
Journal:  JAMA       Date:  1999-11-10       Impact factor: 56.272

4.  The summary of diabetes self-care activities measure: results from 7 studies and a revised scale.

Authors:  D J Toobert; S E Hampson; R E Glasgow
Journal:  Diabetes Care       Date:  2000-07       Impact factor: 19.112

5.  Monitoring of psychological well-being in outpatients with diabetes: effects on mood, HbA(1c), and the patient's evaluation of the quality of diabetes care: a randomized controlled trial.

Authors:  F Pouwer; F J Snoek; H M van der Ploeg; H J Adèr; R J Heine
Journal:  Diabetes Care       Date:  2001-11       Impact factor: 19.112

Review 6.  The use of patient reported outcome measures in routine clinical practice: lack of impact or lack of theory?

Authors:  Joanne Greenhalgh; Andrew F Long; Rob Flynn
Journal:  Soc Sci Med       Date:  2005-02       Impact factor: 4.634

Review 7.  Not all roads lead to Rome-a review of quality of life measurement in adults with diabetes.

Authors:  J Speight; M D Reaney; K D Barnard
Journal:  Diabet Med       Date:  2009-04       Impact factor: 4.359

8.  Measuring the impact of diabetes through patient report of treatment satisfaction, productivity and symptom experience.

Authors:  Meryl Brod; Soren E Skovlund; Kim U Wittrup-Jensen
Journal:  Qual Life Res       Date:  2006-04       Impact factor: 4.147

Review 9.  The impact of measuring patient-reported outcomes in clinical practice: a systematic review of the literature.

Authors:  J M Valderas; A Kotzeva; M Espallargues; G Guyatt; C E Ferrans; M Y Halyard; D A Revicki; T Symonds; A Parada; J Alonso
Journal:  Qual Life Res       Date:  2008-01-04       Impact factor: 4.147

10.  Applying quality-of-life data formally and systematically into clinical practice.

Authors:  Marlene H Frost; Amy E Bonomi; Joseph C Cappelleri; Holger J Schünemann; Timothy J Moynihan; Neil K Aaronson
Journal:  Mayo Clin Proc       Date:  2007-10       Impact factor: 7.616

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  11 in total

Review 1.  Diabetic foot disease: a systematic literature review of patient-reported outcome measures.

Authors:  Alberto J Pérez-Panero; María Ruiz-Muñoz; Raúl Fernández-Torres; Cynthia Formosa; Alfred Gatt; Manuel Gónzalez-Sánchez
Journal:  Qual Life Res       Date:  2021-06-09       Impact factor: 4.147

Review 2.  The role of mental disorders in precision medicine for diabetes: a narrative review.

Authors:  Sanne H M Kremers; Sarah H Wild; Petra J M Elders; Joline W J Beulens; David J T Campbell; Frans Pouwer; Nanna Lindekilde; Maartje de Wit; Cathy Lloyd; Femke Rutters
Journal:  Diabetologia       Date:  2022-06-22       Impact factor: 10.460

3.  Implementing the Digital Diabetes Questionnaire as a Clinical Tool in Routine Diabetes Care: Focus Group Discussions With Patients and Health Care Professionals.

Authors:  Maria Svedbo Engström; Unn-Britt Johansson; Janeth Leksell; Ebba Linder; Katarina Eeg-Olofsson
Journal:  JMIR Diabetes       Date:  2022-05-25

4.  Hypoglycemia Communication in Primary Care Visits for Patients with Diabetes.

Authors:  Scott J Pilla; Jenny Park; Jessica L Schwartz; Michael C Albert; Patti L Ephraim; L Ebony Boulware; Nestoras N Mathioudakis; Nisa M Maruthur; Mary Catherine Beach; Raquel C Greer
Journal:  J Gen Intern Med       Date:  2021-01-21       Impact factor: 6.473

5.  Implementation of a Personalized Care Plan for Patients With Type 2 Diabetes Is Associated With Improvements in Clinical Outcomes: An Observational Real-World Study.

Authors:  Anni Vuohijoki; Ilona Mikkola; Jari Jokelainen; Sirkka Keinänen-Kiukaanniemi; Klas Winell; Lucia Frittitta; Markku Timonen; Maria Hagnäs
Journal:  J Prim Care Community Health       Date:  2020 Jan-Dec

6.  Patient-reported outcome measures for knowledge transfer and behaviour modification interventions in type 2 diabetes-the INDICA study: a multiarm cluster randomised controlled trial.

Authors:  Yolanda Ramallo-Fariña; Amado Rivero-Santana; Lidia García-Pérez; Miguel Angel García-Bello; Ana Maria Wägner; Himar Gonzalez-Pacheco; Leticia Rodríguez-Rodríguez; Sybille Kaiser-Girardot; Guillermo Monzón-Monzón; Carolina Guerra-Marrero; Carmen Daranas-Aguilar; Margarita Roldán-Ruano; Montserrat Carmona; Pedro G Serrano-Aguilar
Journal:  BMJ Open       Date:  2021-12-15       Impact factor: 2.692

7.  Measurement Properties of Patient-Reported Outcome Measures for Diabetes: Systematic Review.

Authors:  Priscilla Jia Ling Wee; Yu Heng Kwan; Dionne Hui Fang Loh; Jie Kie Phang; Troy H Puar; Truls Østbye; Julian Thumboo; Sungwon Yoon; Lian Leng Low
Journal:  J Med Internet Res       Date:  2021-08-13       Impact factor: 5.428

Review 8.  Using Person-Reported Outcomes (PROs) to Motivate Young People with Diabetes.

Authors:  Maartje de Wit; Judith Versloot; Ian Zenlea; Eveline R Goethals
Journal:  Curr Diab Rep       Date:  2020-05-16       Impact factor: 4.810

9.  Patients' and Health Care Professionals' Perceptions of the Potential of Using the Digital Diabetes Questionnaire to Prepare for Diabetes Care Meetings: Qualitative Focus Group Interview Study.

Authors:  Katarina Eeg-Olofsson; Unn-Britt Johansson; Ebba Linder; Janeth Leksell
Journal:  J Med Internet Res       Date:  2020-08-19       Impact factor: 5.428

10.  A co-design study to develop supportive interventions to improve psychological and social adaptation among adults with new-onset type 1 diabetes in Denmark and the UK.

Authors:  Mette Due-Christensen; Lene Eide Joensen; Sophie Sarre; Ewa Romanczuk; Julie Lindberg Wad; Rita Forde; Glenn Robert; Ingrid Willaing; Angus Forbes
Journal:  BMJ Open       Date:  2021-11-02       Impact factor: 2.692

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