Charles R Elder1, Lynn L Debar2, Cheryl Ritenbaugh3, Maureen H Rumptz4, Charlotte Patterson5, Allison Bonifay6, Penney Cowan7, Lindsay Lancaster8, Richard A Deyo9. 1. Physician Lead for Integrative Medicine at Kaiser Permanente Northwest and an Affiliate Investigator at the Center for Health Research in Portland, OR. charles.elder@kpchr.org. 2. Senior Investigator at the Kaiser Permanente Center for Health Research in Portland, OR. lynn.debar@kpchr.org. 3. Professor Emerita in the Department of Family and Community Medicine and Anthropology at the University of Arizona in Tucson. ritenbau@email.Arizona.edu. 4. Research Program Manager in the Science Programs Department of the Center for Health Research in Portland, OR. maureen.h.rumptz@kpchr.org. 5. Physician in the School of Community Medicine at the University of Bristol in the United Kingdom. charlotte.patterson@bristol.ac.uk. 6. Research Associate in the Behavior Assessment and Change Department at the Center for Health Research in Portland, OR. allison.d.bonifay@kpchr.org. 7. Director of the American Chronic Pain Associate in Rocklin, CA. pcowan@theacpa.org. 8. Assistant Professor at the School of Nursing at the University of Portland in OR. lancaste@up.edu. 9. Professor of Family Medicine and Internal Medicine at the Oregon Institute for Occupational Health Sciences at Oregon Health and Science University in Portland. He is also a Clinical Investigator at the Center for Health Research in Portland, OR. deyor@ohsu.edu.
Abstract
BACKGROUND: Supporting day-to-day self-care activities has emerged as a best practice when caring for patients with chronic pain, yet providing this support may introduce challenges for both patients and primary care physicians. It is essential to develop tools that help patients identify the issues and outcomes that are most important to them and to communicate this information to primary care physicians at the point of care. OBJECTIVE: We describe our process to engage patients, primary care physicians, and other stakeholders in the context of a pilot randomized controlled trial of a patient-centered assessment process implemented in an everyday practice setting. We identify lessons on how to engage stakeholders and improve patient-centered care for those with chronic conditions within the primary care setting. METHODS: A qualitative analysis of project minutes, interviews, and focus groups was conducted to evaluate stakeholder experiences. Stakeholders included patients, caregivers, clinicians, medical office support staff, health plan administrators, an information technology consultant, and a patient advocate. RESULTS: Our stakeholders included many patients with no prior experience with research. This approach enriched the applicability of feedback but necessitated extra time for stakeholder training and meeting preparation. Types of stakeholders varied over the course of the project, and more involvement of medical assistants and Information Technology staff was required than originally anticipated. CONCLUSION: Meaningful engagement of patient and physician stakeholders must be solicited in a well-coordinated manner with broad health care system supports in place to ensure full execution of patient-centered processes.
RCT Entities:
BACKGROUND: Supporting day-to-day self-care activities has emerged as a best practice when caring for patients with chronic pain, yet providing this support may introduce challenges for both patients and primary care physicians. It is essential to develop tools that help patients identify the issues and outcomes that are most important to them and to communicate this information to primary care physicians at the point of care. OBJECTIVE: We describe our process to engage patients, primary care physicians, and other stakeholders in the context of a pilot randomized controlled trial of a patient-centered assessment process implemented in an everyday practice setting. We identify lessons on how to engage stakeholders and improve patient-centered care for those with chronic conditions within the primary care setting. METHODS: A qualitative analysis of project minutes, interviews, and focus groups was conducted to evaluate stakeholder experiences. Stakeholders included patients, caregivers, clinicians, medical office support staff, health plan administrators, an information technology consultant, and a patient advocate. RESULTS: Our stakeholders included many patients with no prior experience with research. This approach enriched the applicability of feedback but necessitated extra time for stakeholder training and meeting preparation. Types of stakeholders varied over the course of the project, and more involvement of medical assistants and Information Technology staff was required than originally anticipated. CONCLUSION: Meaningful engagement of patient and physician stakeholders must be solicited in a well-coordinated manner with broad health care system supports in place to ensure full execution of patient-centered processes.
Authors: Laura P Forsythe; Lori Frank; Kara Odom Walker; Ayodola Anise; Natalie Wegener; Harlan Weisman; Gail Hunt; Anne Beal Journal: J Comp Eff Res Date: 2015-01 Impact factor: 1.744
Authors: Tully Saunders; Thomas I Mackie; Supriya Shah; Holly Gooding; Sarah D de Ferranti; Laurel K Leslie Journal: J Comp Eff Res Date: 2016-07-18 Impact factor: 1.744
Authors: Lynn L DeBar; Charles Elder; Cheryl Ritenbaugh; Mikel Aickin; Rick Deyo; Richard Meenan; John Dickerson; Jennifer A Webster; Bobbi Jo Yarborough Journal: BMC Complement Altern Med Date: 2011-11-25 Impact factor: 3.659
Authors: Lauren S Penney; Cheryl Ritenbaugh; Charles Elder; Jennifer Schneider; Richard A Deyo; Lynn L DeBar Journal: BMC Complement Altern Med Date: 2016-01-25 Impact factor: 3.659
Authors: Claire D Johnson; Scott Haldeman; Roger Chou; Margareta Nordin; Bart N Green; Pierre Côté; Eric L Hurwitz; Deborah Kopansky-Giles; Emre Acaroğlu; Christine Cedraschi; Arthur Ameis; Kristi Randhawa; Ellen Aartun; Afua Adjei-Kwayisi; Selim Ayhan; Amer Aziz; Teresa Bas; Fiona Blyth; David Borenstein; O'Dane Brady; Peter Brooks; Connie Camilleri; Juan M Castellote; Michael B Clay; Fereydoun Davatchi; Jean Dudler; Robert Dunn; Stefan Eberspaecher; Juan Emmerich; Jean Pierre Farcy; Norman Fisher-Jeffes; Christine Goertz; Michael Grevitt; Erin A Griffith; Najia Hajjaj-Hassouni; Jan Hartvigsen; Maria Hondras; Edward J Kane; Julie Laplante; Nadège Lemeunier; John Mayer; Silvano Mior; Tiro Mmopelwa; Michael Modic; Jean Moss; Rajani Mullerpatan; Elijah Muteti; Lillian Mwaniki; Madeleine Ngandeu-Singwe; Geoff Outerbridge; Shanmuganathan Rajasekaran; Heather Shearer; Matthew Smuck; Erkin Sönmez; Patricia Tavares; Anne Taylor-Vaisey; Carlos Torres; Paola Torres; Alexander van der Horst; Leslie Verville; Emiliano Vialle; Gomatam Vijay Kumar; Adriaan Vlok; William Watters; Chung Chek Wong; Jessica J Wong; Hainan Yu; Selcen Yüksel Journal: Eur Spine J Date: 2018-08-27 Impact factor: 3.134