Literature DB >> 25228453

Public involvement in research: making sense of the diversity.

Sandy Oliver1, Kristin Liabo2, Ruth Stewart3, Rebecca Rees4.   

Abstract

This paper presents a coherent framework for designing and evaluating public involvement in research by drawing on an extensive literature and the authors' experience. The framework consists of three key interrelated dimensions: the drivers for involvement; the processes for involvement and the impact of involvement. The pivotal point in this framework is the opportunity for researchers and others to exchange ideas. This opportunity results from the processes which bring them together and which support their debates and decisions. It is also the point at which research that is in the public interest is open to public influence and the point at which the interaction can also influence anyone directly involved. Judicious choice of methods for bringing people together, and supporting their debate and decisions, depends upon the drivers of those involved; these vary with their characteristics, particularly their degree of enthusiasm and experience, and their motivation.
© The Author(s) 2014 Reprints and permissions: sagepub.co.uk/journalsPermissions.nav.

Entities:  

Keywords:  consumer involvement in research; patient involvement in research; public involvement in research

Mesh:

Year:  2014        PMID: 25228453     DOI: 10.1177/1355819614551848

Source DB:  PubMed          Journal:  J Health Serv Res Policy        ISSN: 1355-8196


  32 in total

Review 1.  Framework for Advancing the Reporting of Patient Engagement in Rheumatology Research Projects.

Authors:  Clayon B Hamilton; Jenny C Leese; Alison M Hoens; Linda C Li
Journal:  Curr Rheumatol Rep       Date:  2017-07       Impact factor: 4.592

2.  Health Care Systems Support to Enhance Patient-Centered Care: Lessons from a Primary Care-Based Chronic Pain Management Initiative.

Authors:  Charles R Elder; Lynn L Debar; Cheryl Ritenbaugh; Maureen H Rumptz; Charlotte Patterson; Allison Bonifay; Penney Cowan; Lindsay Lancaster; Richard A Deyo
Journal:  Perm J       Date:  2017

3.  Realizing the vision of patient-relevant clinical research.

Authors:  Kirsten Patrick
Journal:  CMAJ       Date:  2016-10-03       Impact factor: 8.262

4.  Engaging Patients and Other Non-Researchers in Health Research: Defining Research Engagement.

Authors:  Lori Frank; Sally C Morton; Jeanne-Marie Guise; Janet Jull; Thomas W Concannon; Peter Tugwell
Journal:  J Gen Intern Med       Date:  2019-11-11       Impact factor: 5.128

5.  Involving service users in the Birth Timing project, a data linkage study analysing the timing of births and their outcomes.

Authors:  Mary Newburn; Miranda Scanlon; Rachel Plachcinski; Alison Jill Macfarlane
Journal:  Int J Popul Data Sci       Date:  2020-11-02

6.  Broadening public participation in systematic reviews: a case example involving young people in two configurative reviews.

Authors:  Kathryn Oliver; Rebecca Rees; Louca-Mai Brady; Josephine Kavanagh; Sandy Oliver; James Thomas
Journal:  Res Synth Methods       Date:  2015-06       Impact factor: 5.273

7.  Conceptualising and constructing 'diversity' through experiences of public and patient involvement in health research.

Authors:  Joanna Reynolds; Margaret Ogden; Ruth Beresford
Journal:  Res Involv Engagem       Date:  2021-07-22

8.  Development of a Self-Help Web-Based Intervention Targeting Young Cancer Patients With Sexual Problems and Fertility Distress in Collaboration With Patient Research Partners.

Authors:  Jeanette Winterling; Maria Wiklander; Claire Micaux Obol; Claudia Lampic; Lars E Eriksson; Britta Pelters; Lena Wettergren
Journal:  JMIR Res Protoc       Date:  2016-04-12

9.  End-user involvement in a systematic review of quantitative and qualitative research of non-pharmacological interventions for attention deficit hyperactivity disorder delivered in school settings: reflections on the impacts and challenges.

Authors:  Jo Thompson Coon; Ruth Gwernan-Jones; Darren Moore; Michelle Richardson; Catherine Shotton; Will Pritchard; Christopher Morris; Ken Stein; Tamsin Ford
Journal:  Health Expect       Date:  2015-09-21       Impact factor: 3.377

10.  Therapists' experiences with a new treatment combining physical exercise and dietary therapy (the PED-t) for eating disorders: an interview study in a randomised controlled trial at the Norwegian School of Sport Sciences.

Authors:  Maria Bakland; Jorunn Sundgot-Borgen; Rolf Wynn; Jan H Rosenvinge; Annett Victoria Stornæs; Gunn Pettersen
Journal:  BMJ Open       Date:  2018-01-11       Impact factor: 2.692

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