Literature DB >> 28285581

Decisions, Decisions.

Emma C Potter1, Karen A Roberto2,3, Nancy Brossoie2, Rosemary Blieszner1,2.   

Abstract

African American families' experiences with mild cognitive impairment (MCI) have received little attention in the research literature. Guided by the life-course perspective, we analyzed qualitative interview data from members of 27 African American families including the person with MCI (PwMCI), a relative or friend who was highly involved in the PwMCI's daily life, and if available, a relative or friend who had at least monthly contact with the PwMCI. Findings uncovered variability in families' MCI awareness, assessment, and need for role changes; the importance of reaching out to trusted others; and honoring PwMCI's care preferences (e.g., who should provide care). Families held varying beliefs about engaging outside support; some families insisted on keeping all care within the family while others were open to the use of external services. We showcase how diagnosis acceptance and family decision-making are at the heart of how African American families respond to MCI.

Entities:  

Keywords:  African American caregivers; life course; mild cognitive impairment; qualitative research; social support

Mesh:

Year:  2017        PMID: 28285581     DOI: 10.1177/0164027516655581

Source DB:  PubMed          Journal:  Res Aging        ISSN: 0164-0275


  7 in total

1.  Patterns of Dyadic Appraisal of Decision-Making Involvement of African American Persons Living With Dementia.

Authors:  Kalisha Bonds; MinKyoung Song; Carol J Whitlatch; Karen S Lyons; Jeffrey A Kaye; Christopher S Lee
Journal:  Gerontologist       Date:  2021-04-03

2.  Promoting Caregiver Mastery in Black American Dementia Caregivers.

Authors:  Kalisha Bonds Johnson; Glenna S Brewster; Ethan Cicero; Kenneth Hepburn; Carolyn K Clevenger; Gaea Daniel; Victoria Pak; Sudeshna Paul; Fayron Epps
Journal:  Gerontologist       Date:  2022-05-26

3.  A Review of Qualitative Research of Perception and Experiences of Dementia Among Adults From Black, African, and Caribbean Background: What and Whom Are We Researching?

Authors:  Moïse Roche; Paul Higgs; Jesutofunmi Aworinde; Claudia Cooper
Journal:  Gerontologist       Date:  2021-07-13

4.  Community resource referral needs among African American dementia caregivers in an urban community: a qualitative study.

Authors:  Emily M Abramsohn; Jessica Jerome; Kelsey Paradise; Tia Kostas; Wesley Alexandra Spacht; Stacy Tessler Lindau
Journal:  BMC Geriatr       Date:  2019-11-14       Impact factor: 3.921

5.  Using poetry as data to explore daily and formal care decision making within African American dementia dyads.

Authors:  Kalisha Bonds Johnson; Fayron R Epps; MinKyoung Song; Karen S Lyons; Martha Driessnack
Journal:  Geriatr Nurs       Date:  2021-06-05       Impact factor: 2.525

6.  The Effectiveness of Community-based Outreach Events for the Promotion of African American Research Participation.

Authors:  Shoshana H Bardach; Justin M Barber; Frederick A Schmitt; Linda J Van Eldik; Morgan B Boggess; Markeda Yarbrough; Keisha C Jones; Gregory A Jicha
Journal:  Alzheimer Dis Assoc Disord       Date:  2020 Oct-Dec       Impact factor: 2.357

7.  A Long and Winding Road: Dementia Caregiving With Grit and Grace.

Authors:  Karen A Roberto; Brandy Renee Mccann; Rosemary Blieszner; Jyoti Savla
Journal:  Innov Aging       Date:  2019-08-23
  7 in total

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