Literature DB >> 28064402

Most National Cancer Institute-Designated Cancer Center Websites Do Not Provide Survivors with Information About Cancer Rehabilitation Services.

Julie K Silver1, Vishwa S Raj2, Jack B Fu3, Eric M Wisotzky4, Sean Robinson Smith5, Sasha E Knowlton6, Alexander J Silver7.   

Abstract

This study is the first to evaluate the existence and quality of patient-related cancer rehabilitation content on the websites of National Cancer Institute (NCI)-Designated Cancer Centers. In 2016, a team of cancer rehabilitation physicians (physiatrists) conducted an analysis of the patient-related rehabilitation content on the websites of all NCI-Designated Cancer Centers that provide clinical care (N = 62 of 69). The main outcome measures included qualitative rating of the ease of locating descriptions of cancer rehabilitation services on each website, followed by quantitative rating of the quality of the cancer rehabilitation descriptions found. More than 90% of NCI-Designated Cancer Centers providing clinical care did not have an easily identifiable patient-focused description of or link to cancer rehabilitation services on their website. Use of a website's search box and predetermined terms yielded an additional 13 descriptions (21%). Therefore, designers of nearly 70% of the websites evaluated overlooked an opportunity to present a description of cancer rehabilitation services. Moreover, only 8% of the websites included accurate and detailed information that referenced four core rehabilitation services (physiatry and physical, occupational and speech therapy). Further research is needed to confirm the presence of cancer rehabilitation services and evaluate access to these types of services at NCI-Designated Cancer Centers providing clinical care.

Entities:  

Keywords:  Cancer; Patient education; Patient-centered care; Physical and rehabilitation medicine; Survivorship

Mesh:

Year:  2018        PMID: 28064402     DOI: 10.1007/s13187-016-1157-4

Source DB:  PubMed          Journal:  J Cancer Educ        ISSN: 0885-8195            Impact factor:   2.037


  14 in total

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Authors:  Julie K Silver; Vishwa S Raj; Jack B Fu; Eric M Wisotzky; Sean Robinson Smith; Rebecca A Kirch
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2.  A quantitative assessment of changing trends in internet usage for cancer information.

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Journal:  Support Care Cancer       Date:  2014-02       Impact factor: 3.603

Review 4.  A perspective on complementary/alternative medicine use among survivors of hematopoietic stem cell transplant: Benefits and uncertainties.

Authors:  Rajshekhar Chakraborty; Bipin N Savani; Mark Litzow; Mohamad Mohty; Shahrukh Hashmi
Journal:  Cancer       Date:  2015-04-14       Impact factor: 6.860

5.  Is Online Health Activity Alive and Well or Flatlining? Findings From 10 Years of the Health Information National Trends Survey.

Authors:  Abby Prestin; Sana N Vieux; Wen-Ying Sylvia Chou
Journal:  J Health Commun       Date:  2015-06-04

6.  Advancing a Quality-of-Life Agenda in Cancer Advocacy: Beyond the War Metaphor.

Authors:  Ravi B Parikh; Rebecca A Kirch; Otis W Brawley
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Review 7.  Systematic review of internet patient information on colorectal cancer surgery.

Authors:  M Wasserman; N N Baxter; B Rosen; M Burnstein; A L Halverson
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Review 8.  Impairment-driven cancer rehabilitation: an essential component of quality care and survivorship.

Authors:  Julie K Silver; Jennifer Baima; R Samuel Mayer
Journal:  CA Cancer J Clin       Date:  2013-07-15       Impact factor: 508.702

9.  The prevalence of potentially modifiable functional deficits and the subsequent use of occupational and physical therapy by older adults with cancer.

Authors:  Mackenzi Pergolotti; Allison M Deal; Jessica Lavery; Bryce B Reeve; Hyman B Muss
Journal:  J Geriatr Oncol       Date:  2015-01-19       Impact factor: 3.599

10.  Prevalence and treatment patterns of physical impairments in patients with metastatic breast cancer.

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Journal:  J Clin Oncol       Date:  2008-06-01       Impact factor: 44.544

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  9 in total

Review 1.  Making Cancer Rehabilitation Services Work for Cancer Patients: Recommendations for Research and Practice to Improve Employment Outcomes.

Authors:  Catherine M Alfano; Erin E Kent; Lynne S Padgett; Melvin Grimes; Janet S de Moor
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2.  Older Adults with Cancer: A Randomized Controlled Trial of Occupational and Physical Therapy.

Authors:  Mackenzi Pergolotti; Allison M Deal; Grant R Williams; Ashley L Bryant; Lauren McCarthy; Kirsten A Nyrop; Kelley R Covington; Bryce B Reeve; Ethan Basch; Hyman B Muss
Journal:  J Am Geriatr Soc       Date:  2019-05       Impact factor: 5.562

3.  Nutrition Education Services Described on National Cancer Institute (NCI)-Designated Cancer Center Websites.

Authors:  Rani Polak; Julia M Reilly; Lauren E Elson; Vanessa C Gallegos-Kearin; Saurabha Bhatnagar; Jeffery C Schneider; Julie K Silver
Journal:  J Cancer Educ       Date:  2019-10       Impact factor: 2.037

4.  Promoting assessment and management of function through navigation: opportunities to bridge oncology and rehabilitation systems of care.

Authors:  Nicole L Stout; Alix Sleight; Denise Pfeiffer; Mary Lou Galantino; Bianca deSouza
Journal:  Support Care Cancer       Date:  2019-03-26       Impact factor: 3.603

5.  Characteristics of Cancer Rehabilitation Fellowship Training Programs in the USA.

Authors:  Rajesh R Yadav; An T Ngo-Huang; Amy Ng; Jack B Fu; Christian Custodio; Eric Wisotzky; Raj Mitra; Eduardo Bruera
Journal:  J Cancer Educ       Date:  2018-12       Impact factor: 2.037

6.  Patient Perspective on Post-Breast Reconstruction Exercise and Physical Therapy.

Authors:  Margaret J Higgins; Nisha Kale; Christopher Homsy; Kelsey L Alabaster; Peter Ferrin; Cadence Miskimin; Abigail E Chaffin; Mary K Mulcahey
Journal:  JPRAS Open       Date:  2021-09-20

7.  Developing an mHealth App for Empowering Cancer Survivors With Disabilities: Co-design Study.

Authors:  Rachel F Adler; Paulina Morales; Jocelyn Sotelo; Susan Magasi
Journal:  JMIR Form Res       Date:  2022-07-26

8.  A systematic review of rehabilitation and exercise recommendations in oncology guidelines.

Authors:  Nicole L Stout; Daniel Santa Mina; Kathleen D Lyons; Karen Robb; Julie K Silver
Journal:  CA Cancer J Clin       Date:  2020-10-27       Impact factor: 508.702

9.  Moving through cancer: Setting the agenda to make exercise standard in oncology practice.

Authors:  Kathryn H Schmitz; Nicole L Stout; Melissa Maitin-Shepard; Anna Campbell; Anna L Schwartz; Chloe Grimmett; Jeffrey A Meyerhardt; Jonas M Sokolof
Journal:  Cancer       Date:  2020-10-22       Impact factor: 6.860

  9 in total

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