Literature DB >> 28062341

Implementation and Impact of Patient Lay Navigator-Led Advance Care Planning Conversations.

Gabrielle B Rocque1, J Nicholas Dionne-Odom2, Chao-Hui Sylvia Huang3, Soumya J Niranjan4, Courtney P Williams5, Bradford E Jackson6, Karina I Halilova4, Kelly M Kenzik5, Kerri S Bevis7, Audrey S Wallace8, Nedra Lisovicz9, Richard A Taylor2, Maria Pisu6, Edward E Partridge4, Thomas W Butler10, Linda A Briggs11, Elizabeth A Kvale12.   

Abstract

CONTEXT: Advance care planning (ACP) improves alignment between patient preferences for life-sustaining treatment and care received at end of life (EOL).
OBJECTIVES: To evaluate implementation of lay navigator-led ACP.
METHODS: A convergent, parallel mixed-methods design was used to evaluate implementation of navigator-led ACP across 12 cancer centers. Data collection included 1) electronic navigation records, 2) navigator surveys (n = 45), 3) claims-based patient outcomes (n = 820), and 4) semistructured navigator interviews (n = 26). Outcomes of interest included 1) the number of ACP conversations completed, 2) navigator self-efficacy, 3) patient resource utilization, hospice use, and chemotherapy at EOL, and 4) navigator-perceived barriers and facilitators to ACP.
RESULTS: From June 1, 2014 to December 31, 2015, 50 navigators completed Respecting Choices® First Steps ACP Facilitator training. Navigators approached 18% of patients (1319/8704); 481 completed; 472 in process; 366 declined. Navigators were more likely to approach African American patients than Caucasian patients (20% vs. 14%, P < 0.001). Significant increases in ACP self-efficacy were observed after training. The mean score for feeling prepared to conduct ACP conversations increased from 5.6/10 to 7.5/10 (P < 0.001). In comparison with patients declining ACP participation (n = 171), decedents in their final 30 days of life who engaged in ACP (n = 437) had fewer hospitalizations (46% vs. 56%, P = 0.02). Key facilitators of successful implementation included physician buy-in, patient readiness, and prior ACP experience; barriers included space limitations, identifying the "right" time to start conversations, and personal discomfort discussing EOL.
CONCLUSION: A navigator-led ACP program was feasible and may be associated with lower rates of resource utilization near EOL.
Copyright © 2017 American Academy of Hospice and Palliative Medicine. All rights reserved.

Entities:  

Keywords:  Advance care planning; end of life; lay navigation; lay navigator

Mesh:

Substances:

Year:  2017        PMID: 28062341      PMCID: PMC6559345          DOI: 10.1016/j.jpainsymman.2016.11.012

Source DB:  PubMed          Journal:  J Pain Symptom Manage        ISSN: 0885-3924            Impact factor:   3.612


  37 in total

1.  Users' guides to the medical literature: XXIII. Qualitative research in health care B. What are the results and how do they help me care for my patients? Evidence-Based Medicine Working Group.

Authors:  M K Giacomini; D J Cook
Journal:  JAMA       Date:  2000-07-26       Impact factor: 56.272

Review 2.  The point of triangulation.

Authors:  V A Thurmond
Journal:  J Nurs Scholarsh       Date:  2001       Impact factor: 3.176

3.  Understanding and supporting African Americans' perspectives of end-of-life care planning and decision making.

Authors:  C M Waters
Journal:  Qual Health Res       Date:  2001-05

Review 4.  The influence of spiritual beliefs and practices on the treatment preferences of African Americans: a review of the literature.

Authors:  Kimberly S Johnson; Katja I Elbert-Avila; James A Tulsky
Journal:  J Am Geriatr Soc       Date:  2005-04       Impact factor: 5.562

5.  Understanding interobserver agreement: the kappa statistic.

Authors:  Anthony J Viera; Joanne M Garrett
Journal:  Fam Med       Date:  2005-05       Impact factor: 1.756

6.  Divergent effects of transformational and passive leadership on employee safety.

Authors:  E Kevin Kelloway; Jane Mullen; Lori Francis
Journal:  J Occup Health Psychol       Date:  2006-01

7.  Racial and ethnic differences in preferences for end-of-life treatment.

Authors:  Amber E Barnato; Denise L Anthony; Jonathan Skinner; Patricia M Gallagher; Elliott S Fisher
Journal:  J Gen Intern Med       Date:  2009-04-23       Impact factor: 5.128

8.  Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment.

Authors:  Alexi A Wright; Baohui Zhang; Alaka Ray; Jennifer W Mack; Elizabeth Trice; Tracy Balboni; Susan L Mitchell; Vicki A Jackson; Susan D Block; Paul K Maciejewski; Holly G Prigerson
Journal:  JAMA       Date:  2008-10-08       Impact factor: 56.272

9.  What explains racial differences in the use of advance directives and attitudes toward hospice care?

Authors:  Kimberly S Johnson; Maragatha Kuchibhatla; James A Tulsky
Journal:  J Am Geriatr Soc       Date:  2008-09-02       Impact factor: 5.562

10.  Racial differences in predictors of intensive end-of-life care in patients with advanced cancer.

Authors:  Elizabeth Trice Loggers; Paul K Maciejewski; Elizabeth Paulk; Susan DeSanto-Madeya; Matthew Nilsson; Kasisomayajula Viswanath; Alexi Anne Wright; Tracy A Balboni; Jennifer Temel; Heather Stieglitz; Susan Block; Holly G Prigerson
Journal:  J Clin Oncol       Date:  2009-10-05       Impact factor: 44.544

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  29 in total

1.  A mixed methods analysis of patients' advance care planning values in outpatient oncology: Person-Centered Oncologic Care and Choices (P-COCC).

Authors:  Rajiv Agarwal; Elyse Shuk; Danielle Romano; Margaux Genoff; Yuelin Li; Eileen M O'Reilly; William Breitbart; Angelo E Volandes; Andrew S Epstein
Journal:  Support Care Cancer       Date:  2019-06-13       Impact factor: 3.603

2.  Integrating Palliative Care into the Chronic Illness Continuum: a Conceptual Model for Minority Populations.

Authors:  Shena Gazaway; Merry Stewart; Autumn Schumacher
Journal:  J Racial Ethn Health Disparities       Date:  2019-06-27

3.  "Find Out What They Lack, Try to Provide": A Qualitative Investigation of Palliative Care Services Adapted to Local Need in a Low-Resource Setting.

Authors:  Grace H Taylor; Eric L Krakauer; Justin J Sanders
Journal:  J Palliat Med       Date:  2020-01-07       Impact factor: 2.947

Review 4.  Achieving Goal-Concordant Care: A Conceptual Model and Approach to Measuring Serious Illness Communication and Its Impact.

Authors:  Justin J Sanders; J Randall Curtis; James A Tulsky
Journal:  J Palliat Med       Date:  2017-11-01       Impact factor: 2.947

5.  Disparities in Hospice Utilization for Older Cancer Patients Living in the Deep South.

Authors:  Yasemin Evelyn Turkman; Courtney P Williams; Bradford E Jackson; James Nicholas Dionne-Odom; Richard Taylor; Deborah Ejem; Elizabeth Kvale; Maria Pisu; Marie Bakitas; Gabrielle B Rocque
Journal:  J Pain Symptom Manage       Date:  2019-04-11       Impact factor: 3.612

6.  What Is Important When Making Treatment Decisions in Metastatic Breast Cancer? A Qualitative Analysis of Decision-Making in Patients and Oncologists.

Authors:  Gabrielle B Rocque; Aysha Rasool; Beverly R Williams; Audrey S Wallace; Soumya J Niranjan; Karina I Halilova; Yasemin E Turkman; Stacey A Ingram; Courtney P Williams; Andres Forero-Torres; Tom Smith; Smita Bhatia; Sara J Knight
Journal:  Oncologist       Date:  2019-03-14

7.  Evaluation of Quality Improvement Initiatives to Improve and Sustain Advance Care Planning Completion and Documentation.

Authors:  Regina M Fink; Elizabeth Somes; Hareklia Brackett; Prajakta Shanbhag; Ashley N Anderson; Hillary D Lum
Journal:  J Hosp Palliat Nurs       Date:  2019-02       Impact factor: 1.918

8.  Community-Based Conversations about Advance Care Planning for Underserved Populations Using Lay Patient Navigators.

Authors:  Regina M Fink; Danielle M Kline; F Amos Bailey; Daniel L Handel; Sarah R Jordan; Hillary D Lum; Stacy M Fischer
Journal:  J Palliat Med       Date:  2020-01-16       Impact factor: 2.947

9.  Stakeholder Perspectives on the Use of Community Health Workers To Improve Palliative Care Use by African Americans with Cancer.

Authors:  Fabian M Johnston; Joseph H Neiman; Lauren E Parmley; Alison Conca-Cheng; Karen M Freund; Thomas W Concannon; Thomas J Smith; Lisa A Cooper
Journal:  J Palliat Med       Date:  2018-11-02       Impact factor: 2.947

Review 10.  Advance Care Planning and End-of-Life Decision Making for Patients with Cancer.

Authors:  Rajiv Agarwal; Andrew S Epstein
Journal:  Semin Oncol Nurs       Date:  2018-08-09       Impact factor: 2.315

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