Megan M Miller1, Deanna D Rumble2, Adam T Hirsh1, Tine Vervoort3, Lori E Crosby4, Avi Madan-Swain5, Jeffrey Lebensburger5, Anna M Hood6, Zina Trost7. 1. Department of Psychology, Indiana University-Purdue University Indianapolis, Indianapolis,Indiana, USA. 2. Department of Psychology, University of Alabama at Birmingham, Birmingham, Alabama, USA. 3. Department of Experimental-Clinical and Health Psychology, Ghent University, Ghent, Belgium. 4. Division of Behavioral Medicine & Clinical Psychology, University of Cincinnati College of Medicine, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, USA. 5. Division of Hematology and Oncology, University of Alabama at Birmingham, Birmingham, Alabama, USA. 6. Developmental Neurosciences, UCL Great Ormond Street Institute of Child Health, London, UK. 7. Department of Physical Medicine and Rehabilitation, Virginia Commonwealth University, Richmond, Virginia, USA.
Abstract
OBJECTIVES: Sickle cell disease (SCD) is a genetic disorder that affects approximately 100,000 Americans, the majority of whom are African American. SCD-related pain often has deleterious effects on functioning and quality of life. The inherited nature of SCD, SCD-related stigma, and serious physical and functional impact of SCD-related pain create a situation ripe for individuals to appraise their SCD-related pain as unfair or unjust. The aim of this preliminary investigation is to explore the extent to which pediatric patients with SCD appraise their pain as unjust and how these appraisals relate to functioning. METHODS: Participants were youth with SCD (N = 30, mean age = 11.3, 57% boys) who attended a hematology clinic visit. Patients were invited to complete paper-based questionnaires assessing pain-related injustice appraisals, pain catastrophizing, pain and hurt, functional disability, depression, anxiety, and peer relationships. RESULTS: Results of hierarchical regressions indicate that pain-related injustice significantly predicted functional disability, depression, and anxiety after controlling for patient pain and catastrophizing. CONCLUSIONS: These findings suggest that pain-related injustice appraisals are an important contributor to the pain experience of youth with SCD. Early identification and remediation of pain-related injustice appraisals could have long-term functional benefits for youth with SCD.
OBJECTIVES: Sickle cell disease (SCD) is a genetic disorder that affects approximately 100,000 Americans, the majority of whom are African American. SCD-related pain often has deleterious effects on functioning and quality of life. The inherited nature of SCD, SCD-related stigma, and serious physical and functional impact of SCD-related pain create a situation ripe for individuals to appraise their SCD-related pain as unfair or unjust. The aim of this preliminary investigation is to explore the extent to which pediatric patients with SCD appraise their pain as unjust and how these appraisals relate to functioning. METHODS: Participants were youth with SCD (N = 30, mean age = 11.3, 57% boys) who attended a hematology clinic visit. Patients were invited to complete paper-based questionnaires assessing pain-related injustice appraisals, pain catastrophizing, pain and hurt, functional disability, depression, anxiety, and peer relationships. RESULTS: Results of hierarchical regressions indicate that pain-related injustice significantly predicted functional disability, depression, and anxiety after controlling for patient pain and catastrophizing. CONCLUSIONS: These findings suggest that pain-related injustice appraisals are an important contributor to the pain experience of youth with SCD. Early identification and remediation of pain-related injustice appraisals could have long-term functional benefits for youth with SCD.
Authors: Susmita Kashikar-Zuck; Stacy R Flowers; Robyn Lewis Claar; Jessica W Guite; Deirdre E Logan; Anne M Lynch-Jordan; Tonya M Palermo; Anna C Wilson Journal: Pain Date: 2011-03-31 Impact factor: 6.961
Authors: Darren A DeWalt; Heather E Gross; Debbie S Gipson; David T Selewski; Esi Morgan DeWitt; Carlton D Dampier; Pamela S Hinds; I-Chan Huang; David Thissen; James W Varni Journal: Qual Life Res Date: 2015-02-26 Impact factor: 4.147