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Literature DB >> 28053150

The study is open: Participants are now recruiting investigators.

Abstract

Two U.S. national initiatives have stated emphatically that people will be, not patients, but partners in clinical research.

Entities: Species

Mesh：

Year: 2017 PMID： 28053150 DOI： 10.1126/scitranslmed.aaf1001

Source DB: PubMed Journal: Sci Transl Med ISSN： 1946-6234 Impact factor: 17.956

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Cited

8 in total

1. Using the diffusion of innovations model to guide participant engagement in the genomics era.

Authors: Katie L Lewis; Flavia M Facio; Courtney D Berrios
Journal: J Genet Couns Date: 2019-01-17 Impact factor: 2.537

2. How resilient were we in 2021? Results of a LinkedIn Survey including biomedical and pharmaceutical professionals using the Benatti Resiliency Model.

Authors: Songmao Zheng; Karthik Venkatakrishnan; Beth Benatti Kennedy
Journal: Clin Transl Sci Date: 2022-08-18 Impact factor: 4.438

3. THE GORDON WILSON LECTURE: THE ETHICS OF HUMAN GENOME EDITING.

Authors: Barry S Coller
Journal: Trans Am Clin Climatol Assoc Date: 2020

Review 4. Prioritizing diversity in human genomics research.

Authors: Lucia A Hindorff; Vence L Bonham; Lawrence C Brody; Margaret E C Ginoza; Carolyn M Hutter; Teri A Manolio; Eric D Green
Journal: Nat Rev Genet Date: 2017-11-20 Impact factor: 53.242

5. THE GENETIC INFORMATION NONDISCRIMINATION ACT AT AGE 10: GINA'S CONTROVERSIAL ASSERTION THAT DATA TRANSPARENCY PROTECTS PRIVACY AND CIVIL RIGHTS.

Authors: Barbara J Evans
Journal: William Mary Law Rev Date: 2019

The study is open: Participants are now recruiting investigators.

1. Using the diffusion of innovations model to guide participant engagement in the genomics era.

2. How resilient were we in 2021? Results of a LinkedIn Survey including biomedical and pharmaceutical professionals using the Benatti Resiliency Model.

3. THE GORDON WILSON LECTURE: THE ETHICS OF HUMAN GENOME EDITING.

Review 4. Prioritizing diversity in human genomics research.

5. THE GENETIC INFORMATION NONDISCRIMINATION ACT AT AGE 10: GINA'S CONTROVERSIAL ASSERTION THAT DATA TRANSPARENCY PROTECTS PRIVACY AND CIVIL RIGHTS.

6. Genetics and ALS: Cause for Optimism.

7. Advancing Clinical and Translational Science.

8. Multistakeholder Engagement in PCORnet, the National Patient-Centered Clinical Research Network.