Literature DB >> 27891628

Power, empowerment, and person-centred care: using ethnography to examine the everyday practice of unregistered dementia care staff.

Kezia Scales1,2, Simon Bailey3, Joanne Middleton4, Justine Schneider5.   

Abstract

The social positioning and treatment of persons with dementia reflects dominant biomedical discourses of progressive and inevitable loss of insight, capacity, and personality. Proponents of person-centred care, by contrast, suggest that such loss can be mitigated within environments that preserve rather than undermine personhood. In formal organisational settings, person-centred approaches place particular responsibility on 'empowered' direct-care staff to translate these principles into practice. These staff provide the majority of hands-on care, but with limited training, recognition, or remuneration. Working within a Foucauldian understanding of power, this paper examines the complex ways that dementia care staff engage with their own 'dis/empowerment' in everyday practice. The findings, which are drawn from ethnographic studies of three National Health Service (NHS) wards and one private care home in England, are presented as a narrative exploration of carers' general experience of powerlessness, their inversion of this marginalised subject positioning, and the related possibilities for action. The paper concludes with a discussion of how Foucault's understanding of power may help define and enhance efforts to empower direct-care staff to provide person-centred care in formal dementia care settings.
© 2016 Foundation for the Sociology of Health & Illness.

Entities:  

Keywords:  Foucault; dementia; ethnography; person-centred care; power

Mesh:

Year:  2017        PMID: 27891628     DOI: 10.1111/1467-9566.12524

Source DB:  PubMed          Journal:  Sociol Health Illn        ISSN: 0141-9889


  9 in total

1.  Person-Directed Care Planning in Nursing Homes: Resident, Family, and Staff Perspectives.

Authors:  Kezia Scales; Michael Lepore; Ruth A Anderson; Eleanor S McConnell; Yuting Song; Bada Kang; Kristie Porter; Trini Thach; Kirsten N Corazzini
Journal:  J Appl Gerontol       Date:  2017-09-20

Review 2.  Meanings of 'centredness' in long-term care facilities: a scoping review protocol.

Authors:  Genevieve Thompson; Chloe Lyn Shindruk; Adebusola Abiodun Adekoya; Lisa Demczuk; Susan McClement
Journal:  BMJ Open       Date:  2018-08-10       Impact factor: 2.692

3.  Supporting independence at home for people living with dementia: a qualitative ethnographic study of homecare.

Authors:  Monica Leverton; Alexandra Burton; Jules Beresford-Dent; Penny Rapaport; Jill Manthorpe; Ignacia Azocar; Clarissa Giebel; Kathryn Lord; Claudia Cooper
Journal:  Soc Psychiatry Psychiatr Epidemiol       Date:  2021-04-24       Impact factor: 4.519

Review 4.  Barriers and facilitators to the use of personal information documents in health and social care settings for people living with dementia: A thematic synthesis and mapping to the COM-B framework.

Authors:  Emily Clark; Fiona Wood; Suzanne Wood
Journal:  Health Expect       Date:  2022-04-12       Impact factor: 3.318

5.  A codesigned fit-for-purpose implementation framework for aged care.

Authors:  Claudia Meyer; Rajna Ogrin; Xanthe Golenko; Elizabeth Cyarto; Kath Paine; Willeke Walsh; Alison Hutchinson; Judy Lowthian
Journal:  J Eval Clin Pract       Date:  2022-02-06       Impact factor: 2.336

6.  The making of a professional digital caregiver: personalisation and friendliness as practices of humanisation.

Authors:  Johan Hallqvist
Journal:  Med Humanit       Date:  2021-08-20

7.  (In)visible materialities in the context of dementia care.

Authors:  Helena Cleeve; Lena Borell; Lena Rosenberg
Journal:  Sociol Health Illn       Date:  2019-09-27

Review 8.  Person-Centered Care From a Relational Ethics Perspective for the Delivery of High Quality and Safe Healthcare: A Scoping Review.

Authors:  Gianpaolo Tomaselli; Sandra C Buttigieg; Aldo Rosano; Maria Cassar; George Grima
Journal:  Front Public Health       Date:  2020-03-06

9.  'You can't just put somebody in a situation with no armour'. An ethnographic exploration of the training and support needs of homecare workers caring for people living with dementia.

Authors:  Monica Leverton; Alexandra Burton; Jules Beresford-Dent; Penny Rapaport; Jill Manthorpe; Hassan Mansour; Stefanny Guerra Ceballos; Murna Downs; Quincy Samus; Briony Dow; Kathryn Lord; Claudia Cooper
Journal:  Dementia (London)       Date:  2021-06-10
  9 in total

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